Pseudoxanthoma Elasticum
Title: Pseudoxanthoma ElasticumCategory: Diseases and ConditionsCreated: 12/31/1997 12:00:00 AMLast Editorial Review: 9/12/2016 12:00:00 AM (Source: MedicineNet Arthritis General)
Source: MedicineNet Arthritis General - September 12, 2016 Category: Rheumatology Source Type: news
Sharon Terry
President and CEOSharon F. Terry is President and CEO of Genetic Alliance, a network of more than 10,000 organizations, of which 1,200 are disease advocacy organizations. Genetic Alliance engages individuals, families and communities to transform health.
She is the founding CEO of PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE). PXE affects Terry’s two adult children. As co-discoverer of the gene associated with PXE, she holds the patent for ABCC6 to act as its steward and has assigned her rights to the foundation. She developed a diagnostic test and cond...
Source: PHRMA - November 13, 2014 Category: Pharmaceuticals Authors: Emily Source Type: news
Pseudoxanthoma Elasticum
Title: Pseudoxanthoma ElasticumCategory: Diseases and ConditionsCreated: 12/31/1997 12:00:00 AMLast Editorial Review: 12/19/2013 12:00:00 AM (Source: MedicineNet Arthritis General)
Source: MedicineNet Arthritis General - December 19, 2013 Category: Rheumatology Source Type: news
Sharon F. Terry
Credentials: CEO, Genetic Alliance and CEO, PXE InternationalBio: Sharon F. Terry is President and CEO of Genetic Alliance, a network of more than 10,000 organizations, of which 1,200 are disease advocacy organizations. Genetic Alliance enables individuals, families and communities to reclaim their health and become full participants in translational research and services.
She is the founding CEO of PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE). As co-discoverer of the gene associated with PXE, she holds the patent for ABCC6 to act as its steward an...
Source: PHRMA - October 8, 2013 Category: Pharmaceuticals Authors: Stephen Source Type: news
