Hysterectomy Association Newsletter September 2014
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. Welcome to the September newsletter. Well, my dire predictions of the summer ending thankfully didn’t come to anything and we seem to be enjoying a late summer bonus here in the UK. Hopefully that’s the case elsewhere in the world too. The Hysteria Writing Competition has finally closed to entries for this year and our judges are busy finishing off reading all the entries that arrived in the last week of August. When our...
Source: The Hysterectomy Association - September 11, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Newsletters Amyloidosis sleeping Source Type: news

Pre hysterectomy, looking for support – Lisa’s Story
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. I am scheduled for a hysterectomy in 2 days and I am freaking out! I have been doing some research, including reading stories here and often women take medication to shrink their fibroid tumors prior to surgery. I am now wondering why my doctor would not have me do the same. My story is this, I have been having issues with heavy periods, abdominal discomfort and expanding abdomen for a couple of years now! I was feeling run down, de...
Source: The Hysterectomy Association - September 11, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids Source Type: news

Constipation and My Intestines after TAH/BSO – Gretchen’s Story
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. I had a TAH/BSO in June of 2012 after findings of precancerous cells of the uterus. The surgery went well and minimal pain afterwards. The feeling of my insides “sloshing around” in my abdomen wasn’t something I expected. I had a vertical abdominal incision and since the surgery the abdomen to the right of the incision has been a protrusion, as if my intestines had settled into a ball, in that area. I found out by ...
Source: The Hysterectomy Association - September 11, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories bilateral salpingo oophorectomy constipation tah total abdominal hysterectomy Source Type: news

One week on – Lynn’s Story
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. Well, its one week on since my hysterectomy, two days in hospital then discharged and feel not too bad – better than I thought I would. Went back to hospital yesterday to have stitches removed and have an infection in the wound which is being treated with antibiotics – apparently not an unusual situation. All feels good although painful around the scar. Gradually building up my exercise regime and now on a ten minute ge...
Source: The Hysterectomy Association - September 11, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories Source Type: news

Amyloidosis – Can you help relieve the pressure?
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. Have you ever heard of amyloidosis? Don’t worry, I hadn’t either! The good news is you don’t have to be an expert on this rare and dangerous disease to help lighten the load of its victims. Amyloidosis is a condition which causes an excessive build-up of proteins in the blood. These proteins form clusters called ‘amyloids’, which are deposited around the sufferer’s body, putting undue pressure on ...
Source: The Hysterectomy Association - September 2, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Health Conditions Amyloidosis invisible illness Source Type: news

Feeling Guilty For Our Son After Emergency Hysterectomy – Amanda’s Story
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. I’m 27 years old, been with my husband for almost 11 years, married 2 1/2 years. My waters broke 4 weeks early with our first child,while I was walking in the hallway of our house. We rushed to the hospital, obviously found out we were in labor! We were soooo excited! Well after a slow start, then 20 hours later pushing for 3 hours, then they decided to do a c-section. After a few minutest short of 24 hours! We had our son, t...
Source: The Hysterectomy Association - September 2, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories emergency hysterectomy post partum haemorrhage Source Type: news

The Forty Year Wait – Andi’s Story
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. Every since I was 11 years old I had terrible periods. My mother used to sit me on the lawn with a towel and told me only to come inside when the towel needed changing. When I talk about a towel I mean a bath towel – not a sanitary napkin!! Eventually I was taken to the doctor and despite my mothers support the doctor always said it was “in my head”, so all my growing up years I was plagued with these terrible peri...
Source: The Hysterectomy Association - August 30, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories endometrial ablation fibroids laparascopic hysterectomy Source Type: news

How sleep can get you through the menopause
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. For whatever reason you may have for deciding to have an elective hysterectomy, it’s important that you consider all of the effects of an operation which will inevitably change your life. Should you need a hysterectomy at a younger age, one of the effects is the early onset of menopause, which can be both a difficult but also enlightening time in a woman’s life in which her body experiences many changes. The menopause ca...
Source: The Hysterectomy Association - August 30, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: menopause sleeping Source Type: news

Don’t worry about a thing! – Debbie’s Story
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. Well it’s been three and a half years since my op and I feel brilliant! However I remember every worry and concern pre op as if it were yesterday. I was 43 when I was diagnosed with fibroids, usual symptoms, heavy periods lasting ages, aches and pains etc. I had 2 children with no intention of having more but the second I was told I needed a hysterectomy I suddenly needed more children! I had a great sex life and thought it wo...
Source: The Hysterectomy Association - August 27, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids Source Type: news

Hysterectomy Association Newsletter August 2014
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. Welcome to the August newsletter. Has summer officially ended? The rain we’ve had in Dorset today would suggest that it has; mind you at least it was warm, if a tad damp! Hopefully, you have all been out enjoying the sun. Those who are recovering from surgery could certainly have used the time to sit and enjoy a good book in the shade perhaps. Other News Items In our regular monthly look at invisible illnesses, this months po...
Source: The Hysterectomy Association - August 25, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Newsletters research Source Type: news

The Countdown Clock is Ticking for Hysteria 2014
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. The clock’s ticking away and the August 31st writing competition deadline for Hysteria 2014 is approaching fast. If you’ve already got something down on paper now is the time to start editing. Hemingway said write drunk and edit sober. In other words, after the passion and fire that comes with creativity you have to look at your work with a cool, dispassionate eyes – almost as if someone else had written it. Changi...
Source: The Hysterectomy Association - August 18, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Hysteria Writing Competition bridget whelan hysteria 2014 writer in residence Source Type: news

Pelvic Pain: The Master of Disguise
Sourced from The Hysterectomy Association: Hysterectomy Association - Hysterectomy Association - hysterectomy, menopause and hormone replacement therapy (hrt) information and support for women. In July we started a new series of posts about invisible illnesses in conjunction with Covance. This month’s post is one which has a huge amount of relevance to our readers because it’s a problem which will almost certainly affect most, if not all at some point. The reason the subject caught our eye was because one study in particular has stood out for Covance recently – the trialling of a brand new treatment for c...
Source: The Hysterectomy Association - August 12, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Health Conditions cancer covance endometriosis fibroids pelvic inflammatory disease pelvic pain Source Type: news

Thank goodness I went to GP!! – Joy’s Story
Hi all. I started off the year badly! I slipped over on a slimey wet path onto my front & badly bruised & battered myself, this was in February 2014! In March I had an itchy clear discharge, firstly I thought it was thrush, & treated accordingly. But still it continued! I made an appointment to see my GP for the following week. Believe it or not on the day, of my GP appointment the discharge became blood stained, I may not have mentioned it otherwise! As I’m 3 years post menopause my GP fast tracked me to the local hospital! So in April I had an appointment for an ultrasound in the morning & hysterosc...
Source: The Hysterectomy Association - August 8, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Women's Health cancer Source Type: news

Ending Years of Suffering – Katina’s Story
My name is Katina and I am 41 years old. Three months ago I had a total abdominal hysterectomy. I have always had a abnormal menstrual cycle, but last year in November my cycle started to become regular after 20 years. So in January I had a pap smear and my doctor told me that the doctor before her was doing the pap smear as if I had a hysterectomy. He was just testing the walls of my uterus. So she performed a regular pap smear and the results came back normal. In February, I started abnormal bleeding which lasted for two weeks. The bleeding stopped for two weeks and then started back again. By this time, I had good healt...
Source: The Hysterectomy Association - August 8, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids total abdominal hysterectomy transvaginal ultrasound uterine cancer Source Type: news

My 18 Day Bleeding Nightmare – Raylene’s Story
I am 41 years of age and and two years ago I was diagnosed with endometriosis after having tubal litigation on the 1st July 2011. I suffered with severe lower back, leg and abdominal pain and heavy periods for three years. I tried treatments of Provera tablets and the Mirena coil to see if the symptoms would disappear. After enduring severe pain for years and see my gyno we decided that a total hysterectomy would be my final option. So, on the 6th June 2014 I underwent surgery. The surgery was a success with five small laparascopic incisions, I still had my ovaries remaining. I was informed by my gyno that there was no end...
Source: The Hysterectomy Association - August 8, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories adenomyosis blood clot endometriosis laparascopic hysterectomy Source Type: news

My Hysterectomy Recovery – Lisa’s Story
I have 4 children 15, 13, 11 and 11, since my last two (twins) were born I have suffered with heavy periods! I teach Pilates and Fitness Classes so this was sometimes a real challenge, often I would have to leave the class to change my pad etc. I had the Mirena Coil fitted and for 5 years everything was OK. Then I had to have it replaced……. The replacement was rejected by my body into the shower tray, then I had a third replacement which was also rejected, during all this my periods were everlasting and really, really heavy…. I was exhausted and finding it a challenge to teach my classes and look after...
Source: The Hysterectomy Association - August 8, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories abdominal hysterectomy fibroids heavy bleeding Source Type: news

Three Operations in One Year – Sally’s Story
My name is Sally and this is my story. I’d suffered with my periods for many, many years; I had tried the pill, the coil & many various tablets to combat the pain & discomfort, nothing worked. Finally in August 2013 I was admitted to have the ‘Novasure’ laser treatment & was to be sterilised at the same time. Arriving at the hospital with high hopes that this would end some of the pain I had every month. After the operation I waited to see my gynaecologist before I was discharged home. She told me that she couldn’t use the laser treatment as my womb was tilted & was shaped like a hea...
Source: The Hysterectomy Association - August 6, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories oophorectomy painful periods tah total abdominal hysterectomy Source Type: news

Best thing I ever did – Debbie’s Story
Hi, I am 44 and childless and made one if the most difficult decisions in my life to have a total abdominal hysterectomy. I had large uterine fibroids that had basically taken over my womb. They were causing me to have very heavy very long periods (11 weeks was the record) plus I was in severe pain and some days unable to walk properly. They also effected my bowels and my bladder as my uterus was so big it was pushing on all of my other organs in that region. I was given decapeptyl injections for 8 months to try and reduce the size of the fibroids before my op. Horrible things but they did the job, however not without awfu...
Source: The Hysterectomy Association - August 5, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids tah total abdominal hysterectomy Source Type: news

Is An Ectopic Pregnancy Likely After Hysterectomy?
Q. I am fairly certain that contraception will not be necessary after a hysterectomy but, given that the ovaries remain, I would like to know that ectopic pregnancy would be unlikely to occur in the future as well. A. An ectopic pregnancy is one which occurs outside the uterus and are always life threatening. If they have been removed, along with the ovaries then this is not possible. If they remain and the ovaries are still functioning then there is a small risk of an ectopic pregnancy occurring. In most cases where the cervix is removed the vagina will be stitched at the top. This means that semen should be containe...
Source: The Hysterectomy Association - August 5, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: FAQ Source Type: news

What would you you want from a health app?
PatientView and Health 2.0 are undertaking a short survey. It aims to find out how what patients and carers REALLY WANT from health apps. This survey is an opportunity for patients and carers to tell app developers how health apps can be improved to better meet the needs of patients and carers. The survey is open to anybody who is living with illnesses or conditions that last many years (or even a lifetime), and to the carers of people living with illnesses or conditions that last many years (or even a lifetime). ​The survey is COMPLETELY ANONYMOUS AND CONFIDENTIAL. The results of the survey will be made public on Novem...
Source: The Hysterectomy Association - August 4, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Research health app Source Type: news

It was almost Good Bye Cruel World! – Jaishree’s Story
The title says it all really. They almost lost me on the operating table when I had my hysterectomy and oophorectomy! It was a three year battle with the NHS to recognise the fact that I was bleeding buckets every two weeks and the pain – worse than labour pain. Was told maybe its fibroids, had scans and then was told the fibroids are too small (duh!). Not one GP (of the three who saw me) thought of referring me to a Gynae. Then when I had my MRI for a broken back, they discoverd I had fibroids as a side issue and I went to see a Gynae privately. Had a laprosocopy and was told endometriosis. Was 46 by this time. Give...
Source: The Hysterectomy Association - August 1, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories endometriosis fibroids Source Type: news

Incisional Hernia after Total Abdominal Hysterectomy – Margaret’s Story
I had my TAH (total abdominal hysterectomy) 3 years ago (I was 61 years). The reason for needing an op, was not about hysterectomy, but needing to have a 22cm ovarian cyst removed, the doctors thought may be dangerous, they decided its best to also have a TAH. So really having the hysterectomy op was a precaution. The reason I decided to post my experience here, is this. Two years after the double op, while working towards selling my property, I heard a sound of ‘pop’ somewhere inside me. I did not realise then what was happening. The next day I was in the worst pain I had ever had. In short, because of the op ...
Source: The Hysterectomy Association - July 31, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories hernia tah total abdominal hysterectomy Source Type: news

My Emergency Hysterectomy- Andrea’s Story
I would like to share my story as my hysterectomy was such a shock and perhaps will help others in the same position. I underwent endometrial ablation in March after suffering extreme pain in tummy and severe bleeding for years. The operation I was told was a success and my periods stopped.However I never felt quite right after it and still had pain in abdomen and especially my lower back. I was tired all the time and just generally miserable. In June I went to doctor in unbelievable pain and got sent straight to hospital. After tests and scans the next day I was told I had a massive cyst and was asked about cancer in the...
Source: The Hysterectomy Association - July 30, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories emergency hysterectomy endometriosis Source Type: news

Still Waiting for My Op – Anna’s Story
I have struggled with Adenomnyosis and Endometriosis (hope those spellings are right) for a very long time. Heavy bleeding, flooding, discomfort, lots of pain and a massive belly for so long. Part of the reason for bearing with the pain all this long was the hope that I would conceive. I have been married 12 years now and he has finally filled for divorce so he can move on with his life and father a child hopefully. I have tried everything from tablets, Mirena coil, I was aware of the hysterectomy option but I had been so scared to make that decision. Now the dynamics of my life have changed, all I can think of is having m...
Source: The Hysterectomy Association - July 29, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories adenomyosis endometriosis Source Type: news

Fibroid Blocked My Bladder – Rachel’s Story
Thanks very much for all the emails which were very useful enhanced by the 101 hints in the book and the website.  I didn’t have long to get my head round having a hysterectomy – the first time it was mentioned was 15 days before it happened so your emails, website and book provided much reassuring advice and information. I went into urinary retention for the second time in the space of 7 weeks at the end of June.  The GP I saw wanted to know why and very quickly found what she thought was a large fibroid which was confirmed by the emergency clinic at the hospital the next day.  I had had my son ...
Source: The Hysterectomy Association - July 25, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids oophorectomy subtotal hysterectomy Source Type: news

Hysterectomy Association Newsletter July 2014
Welcome to the Hysterectomy Association Newsletter – July 2014. Phew! It’s been a hot few weeks here in the UK hasn’t it and the weather has brought out a rash of emails and questions about coping with hot flushes. Inevitably, if you are suffering from menopausal symptoms, heat is going to make you wilt. Last year, we put together a quick update on our Facebook page about staying cool in hot weather – this seems like a good time to share it again. You can find it here: 5 top tips for staying cool in the heat. As well as the questions about HRT another popular email topic has been the age at which wo...
Source: The Hysterectomy Association - July 23, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Newsletters hormone replacement therapy research Source Type: news

5 Weeks’ Post-op TAH – Tracey’s Story
I had a TAH (total abdominal hysterectomy) five weeks ago. I was diagnosed with endometriosis when I was 30 after a laparoscopy. Up to then what I had thought of as ‘the norm’ for periods was revealed to be exactly the opposite (awful pain, bleeding between periods, discolouration). My consultant stopped my periods after that op for 6 months and after that I considered myself one of the ‘lucky ones’ for years; living a relatively pain-free existence. However, the endo started to creep back up on me and when I returned to my GP last year, at the age of 43, I was already thinking a hysterectomy seemed...
Source: The Hysterectomy Association - July 21, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories endometriosis oophorectomy tah total abdominal hysterectomy Source Type: news

Advice on Submitting a Poem to the Hysteria Writing Competition
Want to submit a poem to the Hysteria Writing Competition? Here’s advice from our Writer in Residence. I’m not a poet, says Bridget Whelan, but I’ve read enough bad poetry to know what to avoid… Carl Sandburg said that for him poetry was a synthesis of hyacinths and biscuits. I don’t know if that helps as you think about the poem you want to send to the Hysteria competition which ends in six weeks. But to be a winning poem it does have to have something of that element of surprise that catches the reader unawares, the sense that this is something different, even if the subject has been ...
Source: The Hysterectomy Association - July 17, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Hysteria Writing Competition bridget whelan hysteria 2014 writer in residence Source Type: news

Lymphoedema Awareness – Chris’s Story
I had a Wertheim’s hysterectomy, bilateral salpingo-oophorectomy and pelvic lymph node dissection in December 2010. All went well. I was informed that as I had had lymph nodes removed from my pelvis, that I had to be careful about getting Lymphoedema. As I do quite a lot of sport I always carried with me disinfection wipes and spray plaster. To try and stop infection. However, I went on a long haul flight to Australia, wore flight socks, walked around the plane often. But, when I reached my destination, my legs ankles and feet were twice/three times the size! It took several days to abate. From that time on I ha...
Source: The Hysterectomy Association - July 7, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories bilateral salpingo oophorectomy lymphoedema wertheims hysterectomy Source Type: news

Feeling Wonderful After Total Hysterectomy – Diane’s Story
I had been visiting my doctor for several years with really heavy and painful periods. They suggested my best option was to have a Myrena coil fitted, which they said would help with my periods. As I was close to menopausal age. In my late 40′s I did not think this would not be right for me. Last year, in desperation, I asked to see a consultant and paid privately. It was the best money I have ever spent. My consultant was fantastic and after examining me said that a coil would not have solved my problems, as my uterus was equivalent to a 14 week pregnancy. I had my total hysterectomy late May – having my ovari...
Source: The Hysterectomy Association - July 7, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories heavy bleeding total hysterectomy Source Type: news

I Wasn’t Expecting A Lung Infection After Hysterectomy – Lia’s Story
Hi Everyone. I had a total hysterectomy in Feb 2014. My surgeon was brilliant, I have absolutely nothing bad to say about him, in my eyes a top surgeon deffo. Yes, I had a lot of pain but I definitely feel a lot better for having this op. However, I do have underlying lung problems so with that and my op I did expect to feel tired and I was. I went to my doctors with what I thought was a bad chest infection. I was given steroids and antibiotics but they didn’t work. I was asked to bring in a sputum sample which I did. The results came back that I had a very rare bacteria that you can only catch in hospital through ho...
Source: The Hysterectomy Association - July 7, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories post op infection total hysterectomy Source Type: news

2 Weeks After Hysterectomy and Appendectomy – Lynne’s Story
Hi. It’s just over 2 weeks since I had a full hysterectomy and appendectomy where they also took my appendix out. I was not bleeding after the op but have now started to bleed nothing to worry about the doc says. They removed my staples before leaving hospital and they also leaked for a few days but it has settled down now. I spent 5 days in hospital I was extremely sick and knew it was the pain killers that was causing it had a hard time convincing the nursing staff that I did not want any more pain relief one nurse said “you will not get a medal for this” I explained I could work through the pain but no...
Source: The Hysterectomy Association - July 7, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories appendectomy total hysterectomy Source Type: news

Hysterectomy, Anterior and Posterior Repair – Bernadette’s Story
I had hysterectomy, anterior and posterior repair on 2nd June 14. It was all done vaginally. After 2 years of bowel and bladder problems it was discovered by the practice nurse at my cervical smear I had a significant prolapse. My outpatient appt then went onto me being offered the operation. I was I must say very calm and positive about having the operation being a nurse myself, even though others tried to put me off. The day after surgery I walked to bathroom with only slight discomfort. Day by day I have got stronger. I did have a urine infection which was treated with antibiotics and was constipated, which I think is n...
Source: The Hysterectomy Association - July 7, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories anterior repair posterior repair prolapse Source Type: news

My Total Vaginal Hysterectomy – Sangita’s Story
I was going through the menopause for the last 2 years with no real problems and am 50 years old. Then in February I went to the Dr’s because my stomach started to feel huge and was sent for scan. My scan revealed the lining of the womb was usually thick for someone who was menopausal and was told I had a fibriod and had to see a gnecologist. Just before my appointment I had a really heavy bleed completely out if the blue. My gnecologist arranged a biopsy and hystroscopy to rule out cancer. I was so scared and waiting for the results was a nightmare I kept thinking cancer all the time. Thank god my result was all goo...
Source: The Hysterectomy Association - July 4, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids laparascopic hysterectomy total vaginal hysterectomy Source Type: news

Living with Sjogren’s – When your grin shows, but your illness hides…
An autoimmune disorder is any illness in which the body turns on itself – white blood cells which are designed to protect your body’s intricate systems malfunction and attack. Types of autoimmune disorder are many and varied, but the majority are able to pass under the radar because they chiefly affect the interior working of glands, joints and the nervous system. One example which is prevalent in women aged over 40 is Sjogren’s syndrome. As an invisible illness, this one is quite the heavy-hitter. It may be unfamiliar to you, and you might well be wondering how to even say it! Aptly, Sjogren’s is p...
Source: The Hysterectomy Association - July 3, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Women's Health invisible illness Sjogren’s venus williams Source Type: news

My HRT Question – Joan’s Story
Two years ago I found a lump in my pelvis which turned out to be a fibroid. I was offered a hysterectomy then which shocked me as I felt it was a drastic step in relation to my symptoms ie.pressure effects and heavy periods which though a pain  have always been regular. I declined this and asked about embolization at which my consultant basically said was not an option as I am not concerned about preserving my fertility. Early this year I felt my fibroid had grown and the pressure effects to have got worse so I asked my GP to discuss the  pros and cons of a hysterectomy, however, he said it would be better if I w...
Source: The Hysterectomy Association - July 3, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids hormone replacement therapy Source Type: news

My total laparascopic hysterectomy :) – Lucy’s Story
I had a TLH (total laparascopic hysterectomy) this week, finally after having 2 previous cancellations, all went went, took everything apart from ovaries. They found a 12cm fibroid (goodness only knows where that was hiding) bought it out PV (per vaginam – through the vagina) – she said it was like a baby’s head! All OK for a few hours, bleeding straight away in recovery but I was told it was to be expected, it got worse in the next 4 hours and passed a clot size of an orange plus loads of blood. BP (blood pressure) really low, temp high, HB (heamoglobin) dropping and I felt very light headed. Reviewed al...
Source: The Hysterectomy Association - July 2, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids heavy bleeding laparascopic hysterectomy Source Type: news

My hysterectomy after PID – Deanne’s Story
I was only young when I had my two children with a previous partner, but I was having problems with heavy but painful periods, so opted for sterilisation in 2008, unaware nearly 5 years later I would regret that decision. Over the years my periods where still heavy and getting more painful even sex was too, couldn’t understand why it was making me more bloated too. GP said I needed to have another smear test and he noticed I had more infections than normal every time I visited, so referred me to a gynaecologist. Especially when I was holding my left side the whole time, and the pain was so unbearable that it landed m...
Source: The Hysterectomy Association - July 1, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories pelvic inflammatory disease Source Type: news

Research Priorities in Anaesthesia and Perioperative Care
Dr Oliver Boney is leading a nationwide project on behalf of the Royal College of Anaesthetists to gather ideas about research priorities in Anaesthesia and Perioperative Care. The focus of the Royal College resaerch is to improve the quality of care for anyone having an operation but to do that they need to know what both patients and clinicians feel are the most important things to focus on. As a result they are now running a survey asking patients, carers and  relatives, about what areas of anaesthesia and perioperative care should be ‘research priorities‘ in the future. The online survey takes no more ...
Source: The Hysterectomy Association - June 23, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Research anaesthetic Source Type: news

Not Prepared For Hysterectomy – Jan’s Story
Hi everyone. My name is Jan and I had a hysterectomy in 2014. Since 1998 I had a history of abnormal cervical smears which were treated in different ways many times. During that period I also had VAIN 2 pre-cancerous cells in the vagina. I have had bleeding in the urine from sept 2013 and was told it was looking like bladder cancer and was kept in hospital and underwent several tests. It wasn’t thank God. no reason for bleed given. Then as I still had abdominal pain and a history of ovarian cancer with grandmother they investigated me for possible ovarian cancer. Transvaginal scan ok and ultrasound fine. Then they in...
Source: The Hysterectomy Association - June 23, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories adhesions total abdominal hysterectomy uterine cancer Source Type: news

3 Months Post-Op Hysterectomy – Shea’s Story
This hysterectomy has been a journey and a half, I was anxious about the surgery and had a few complications but overall went well. I’m still experiencing some pain and burning in my stomach and have very little sex drive as it feels totally different for myself and husband. He’s very understanding and doesn’t pressure me he makes me feel very comfortable however I will be scheduling an appointment with my ob/gyn due to my husband experiencing piercing and being a little uncomfortable. I’ve be hospitalized 1 1/2 months post opt due to having blood clots that currently I’m being treated for an...
Source: The Hysterectomy Association - June 23, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories sexuality Source Type: news

The War Cry of the Menopause Generation
This little video has to become the new war cry of the menopause generation and never again can I be accused of not posting fun things. When I saw this video I just had to share it with you all. It’s a great song, it speaks for all us older ladies and I guarantee you’ll be smiling (even laughing by the end of it!). The post The War Cry of the Menopause Generation appeared first on Hysterectomy Association. (Source: The Hysterectomy Association)
Source: The Hysterectomy Association - June 20, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Latest News video Source Type: news

Invisible Illness: It’s not easy to combat what you can’t see!
There is a surprising common factor which is shared by a vast range of physical and mental health conditions. Fibromyalgia, anxiety, endometriosis, lupus, endometriosis, pelvic pain and depression may vary in causes and symptoms, but all of them have a deadly weapon in common – invisibility. They are often classed as an invisible illness. These conditions fight their invisible war on two fronts. Firstly, they leave no trace. The majority of these diseases attack the body internally, leaving no external signs which might allow the patient’s suffering to be easily recognised. As well as causing physical pain, inv...
Source: The Hysterectomy Association - June 13, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Health Conditions anxiety autoimmune disease depression endometriosis fibromyalgia invisible illness lupus pelvic pain Source Type: news

Cheers – to new beginnings, bright colours and a bright future! – Michelle’s Story
I will start at the beginning as some of you may relate to symptoms I have experienced. 2 years ago, my periods were starting to get heavier and longer. This was very unusual for me, I was always like clockwork. It started to effect me emotionally and physically. I had the usual referral to the gynaecology dept and it was confirmed that I had fibroids. I didn’t really know much about these and no one really offered any comforting information, other than they should shrink over time. I wasn’t really convinced by the “should”. I was offered the Mirena Coil to stop my bleeding because that was the pri...
Source: The Hysterectomy Association - June 13, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories fibroids mirena coil vaginal hysterectomy Source Type: news

5 Top Flash Fiction Tips for Writers – Hysteria Writing Competition
Flash Fiction goes by many names: micro fiction, sudden fiction, short short stories, skinny stories (no fat allowed) and postcard fiction. I gather in China it translates to a palm-sized smoke because it should only last as long as a cigarette (thanks Wikipedia). There’s no easy way to describe what it is, but I think the organisers of the annual Bridport Prize have come up with a useful working definition. The Bridport, by the way, has just closed its doors for 2014: next year’s international competition opens again in late November. Flash fiction contains the classic story elements: protagonist, conflict, ob...
Source: The Hysterectomy Association - June 13, 2014 Category: OBGYN Authors: Bridget Whelan Tags: Hysteria Writing Competition bridget whelan hysteria 2014 Source Type: news

Hysterectomy Association Founder & CEO Named Inspirational Woman 2014
PRESS RELEASE: FOR IMMEDIATE RELEASE The Hysterectomy Association are proud to announce that Founder and CEO, Linda Parkinson-Hardman, was named Venus Awards Dorset Inspirational Woman 2014 for her work supporting women facing hysterectomy. Wednesday 11th June saw the glittering finale of this year’s Venus Awards Dorset at The Lighthouse in Poole. Long and luscious was the order of the day for the nominee ladies who were all accompanied by friends, family and work colleagues. The awards, founded by Tara Howard, celebrate the achievement of women in 15 different business categories. Speaking last night, Linda said &ld...
Source: The Hysterectomy Association - June 13, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Press Releases awards Source Type: news

Simple Pre and Post Hysterectomy Recovery Hints & Tips
We get many emails from women sharing various hysterectomy recovery hints and tips that have worked for them over the years. I thought it would be helpful to begin a brand new series of posts that contain very simple pre and post hysterectomy recovery hints and tips. The sorts of information you’ll find here will be the little things you can do quickly, easily and either free or at low cost as we all know that taking time off work can cause some financial discomfort. The first 3 tips come from Debbie who says: I hardly ate much in the days leading up to my surgery.  This helped because it made the bowel prep mu...
Source: The Hysterectomy Association - June 3, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Hysterectomy Recovery hysterectomy tips Source Type: news

Hysterectomy Association Newsletter – May 2014
Welcome to the May 2014 Hysterectomy Association newsletter. It’s been great getting a bit of a welcome break from all the bad weather we’ve had here in the UK over the last few months. In fact I’m sitting writing this one in a tee-shirt and shorts no less. Given that I’ve been welded to a hot water bottle for ages, that’s a result indeed. However, I realised that the warmer actually makes it harder for me to sleep. Recognising this I decided to crowd-source the answer in our wonderful Facebook community. You can see all the comments by clicking here. If you have a suggestion of your own plea...
Source: The Hysterectomy Association - May 14, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Newsletters awards research sleeping Source Type: news

Wish I’d a hysterectomy years ago! – Sharon’s Story
At the age of 40 I was diagnosed with fibroids. A scan confirmed I had about 10 of them, the largest was almost the size of a rugby football, the others between the size of a tangerine and an orange. All of them subserosal so my uterus was quite deformed. As I had no intention of having children, the mistake I made was not opting to go for a hysterectomy immediately. Instead I thought I would try embolization, mainly because I was self employed and taking between 2 – 3 months off work was not cost effective for me, so a 2 week recovery post-embolization was a lot more appealing. I had it done – not a pleasant p...
Source: The Hysterectomy Association - May 14, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories bilateral salpingo oophorectomy embolisation endometriosis fibroids laparascopic hysterectomy Source Type: news

1 week post op full hysterectomy and feeling good – Linda’s Story
Hi all. It’s 9 days since I had my full hysterectomy op (uterus and cervix) removal for prolapsed uterus. The symptoms pre op were really frustrating as although I didn’t have pain or bleeding and my monthly cycle was regular, I constantly felt like my womb was falling and it restricted my day to day activities. At 47 I really didn’t want to carry on with this feeling anymore as it was affecting my day to day life. I was put in touch with a fantastic surgeon who put my mind at ease and had my operation for hysterectomy and repair on the 30 April. WOW recovering at home and feeling pretty good already. I a...
Source: The Hysterectomy Association - May 14, 2014 Category: OBGYN Authors: Linda Parkinson-Hardman Tags: Your Stories prolapse Source Type: news