Andrew Spiegel
has a long and personal history in the patient advocate community. In 1998, Spiegel’s mother was diagnosed with metastatic colon cancer. She exhibited numerous symptoms, which were ignored by her physicians, and died nine months later. In a most odd and unfair twist, toward the end of his mother’s life, Spiegel’s father was diagnosed with pancreatic cancer and he died two days before Andrew’s mother. It was then that Spiegel knew the rest of his life would be spent in the patient advocacy world. Because there was already a patient advocacy group for pancreatic cancer (PANCAN), Spiegel and a group o...
Source: PHRMA - December 9, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Ronald Johnson
Ronald S. Johnson currently serves as the Vice President of Policy and Advocacy of AIDS United, a national organization that achieves its mission to end the HIV/AIDS epidemic in the United States through national, regional and local policy/advocacy, strategic grantmaking, and organizational capacity building.  AIDS United was formed from the merger of AIDS Action and the National AIDS Fund.  Mr. Johnson had served as the Deputy Director of AIDS Action. Prior to joining AIDS Action, Mr. Johnson served as the Associate Executive Director of Gay Men’s Health Crisis (GMHC).  In that capacity, he managed GM...
Source: PHRMA - December 9, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Lisa Tate
Lisa M. Tate is a health care executive, having served in leadership positions with a national nonprofit patient organization, hospital trade association, and medical society. Lisa most recently served as Interim Executive Director for HealthyWomen, the leading nonprofit health resource for women of all ages. Prior to HealthyWomen, she served as Chief Executive Officer of WomenHeart, the National Coalition for Women with Heart Disease, the only U.S. organization solely focused on the health and quality of care for women with heart disease.   Conversations Contributors (Source: PHRMA)
Source: PHRMA - December 9, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Mirta Santos
Mirta Avila Santos, MD, joined the American Behcet’s Disease Association (ABDA) in 2011. She became the executive director of the organization in 2012. She is passionate about improving the lives of patients living with autoimmune diseases, rare diseases and Behcet’s Disease in particular. Under her guidance, the ABDA has expanded the mission of the organization, and has partnered with other patient advocacy organizations to provide better access and improved care for patients. Her research background has contributed to research efforts for patients with Bechet’s. Her past experience includes clinical res...
Source: PHRMA - December 9, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Alan Balch
Chief Executive OfficeDr. Balch is the Chief Executive Officer of Patient Advocate Foundation and National Patient Advocate Foundation.  Dr. Balch has a decade of executive leadership in the non-profit sector with an emphasis on consensus-building and collaboration.  From 2006 - 2013, he served as the Vice President of the Preventive Health Partnership -- a national health promotion collaboration between the American Cancer Society, American Diabetes Association, and American Heart Association. Prior to his work with the Preventive Health Partnership, Dr. Balch was the Executive Director of Friends of Cancer Rese...
Source: PHRMA - November 5, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Julie Ward
Director, Health PolicyJulie Ward, Health Policy Director, The Arc, is responsible for representing The Arc before Congress and Federal agencies on health care reform, Medicaid, Medicare and related issues. Prior to this position, she represented The Arc and United Cerebral Palsy for seven years as part of the Disability Policy Collaboration (DPC) where she had primary responsibility for budget and appropriations, employment, TANF and transportation issues. Before that she spent 18 years with the Epilepsy Foundation, the last ten years as the Senior Director of Government Affairs, overseeing the Foundation's federal and st...
Source: PHRMA - October 23, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Randall Rutta
President and CEOIn January 2015, Randall Rutta transitioned to the role of President and Chief Executive Officer of Easter Seals, building on three decades of service to the organization, most recently as Chief Strategy Officer and Executive Vice President for Public Affairs.  He has led and played integral roles in advancing public policy, service innovation, and philanthropic initiatives at all levels of the organization. Easter Seals annually serves 1.8 million people of all ages and abilities, providing an array of home and community-based services through a national affiliate network with 550 facilities and a m...
Source: PHRMA - October 23, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Gutierrez on Hispanic Heritage
Above all else, an increase in bilingual insurance providers, doctors and personnel in the health care industry would help the Hispanic community get the best care possible. I have witnessed the benefits bilingual communication can provide through my own mother’s experience when she was redirected – after unsuccessful treatments – to a new physician who was able to communicate in Spanish. The change allowed her to fully explain her symptoms and describe her past treatment, which enabled a more precise diagnosis. In many situations, bilingual personnel can help provide a more in depth explanation of treatm...
Source: PHRMA - October 13, 2015 Category: Pharmaceuticals Authors: Julie Source Type: news

Allen Gutierrez
National Executive Director Allen Gutierrez serves as the National Executive Director of The Latino Coalition, a national organization that represents Latino interests with senior executives of many Fortune 500 companies and government agencies both federal and local. He is also the founder of The MCA Group based out of Maryland with emphasis on Federal & private sector procurement, special events management and multicultural marketing. Prior to joining the entrepreneur spirit and starting his own company he was the Chief Operating Officer of the United States Hispanic Chamber of Commerce a national organization that r...
Source: PHRMA - October 13, 2015 Category: Pharmaceuticals Authors: Julie Source Type: news

Kathleen Jaeger
President Kathleen Jaeger is President of the NACDS Foundation and Senior Vice President for Pharmacy Care and Patient Advocacy at NACDS.  In these roles, she advocates for quality, affordable pharmacy patient care before key constituencies and contributes to NACDS’s public policy initiatives. Before joining NACDS, Ms. Jaeger served as president and CEO of the Generic Pharmaceutical Association (GPhA) for over eight years.  Ms. Jaeger also chaired the food and drug practices for several national law firms and worked as a hospital pharmacist at the National Institutes of Health.  Ms. Jaeger earned ...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Nicolette Louissaint
Director of ProgrammingNicolette A. Louissaint, Ph.D. joins Healthcare Ready as the Director of Programming.  In this role she leads all projects and congressional outreach on healthcare preparedness throughout the United States.   Prior to this position, Nicolette served as a Foreign Affairs Officer at the U.S. Department of State in the Bureau of Economic and Business Affairs.  As the lead officer for health intellectual property and trade issues, she advised the State Department’s leadership on issues related to public health, technology transfer and biotechnology.  She also worked on poli...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Emily Lord
Executive DirectorEmily Lord is the Executive Director of Healthcare Ready. She provides strategic guidance and oversight to programs that build community health resilience in times of disaster or pandemic outbreaks. This includes creating partnerships with the private-sector medical supply chain, as well as public health NGOs and local, state and federal government agencies. Emily has led Healthcare Ready (formerly Rx Response) through multiple natural disasters including Hurricane Sandy. Emily’s expertise focuses on business continuity and resilience. Emily holds a Master of Public Administration from The George Wa...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Frank Caruso PA-C
DirectorFrank Caruso began responding to disasters in 1974, as a young man on a mission to serve, when he joined the West Babylon Fire Department in New York as a volunteer fire fighter and paramedic.  After rising through the ranks as Rescue Lieutenant and Fire Captain, he decided to leave his career as a science teacher and attend school at the State University of New York, Stony Brook to become a Physician Assistant (PA).  Mr. Caruso has maintained his fire fighting and paramedic skills and certifications by active membership in two fire departments: Clemmons Fire Department and Yaupon Beach Fire Department, b...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Frank Caruso
DirectorFrank Caruso began responding to disasters in 1974, as a young man on a mission to serve, when he joined the West Babylon Fire Department in New York as a volunteer fire fighter and paramedic.  After rising through the ranks as Rescue Lieutenant and Fire Captain, he decided to leave his career as a science teacher and attend school at the State University of New York, Stony Brook to become a Physician Assistant (PA).  Mr. Caruso has maintained his fire fighting and paramedic skills and certifications by active membership in two fire departments: Clemmons Fire Department and Yaupon Beach Fire Department, b...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Jim Aiken, M.D.
Associate Clinical Professor of Emergency Medicine and Public HealthDr. Aiken is an Associate Clinical Professor of Emergency Medicine and Public Health in the LSU Health Science Center, New Orleans. He serves the New Orleans University Medical Center as the Medical Director for Emergency Preparedness.. Dr. Aiken has 30 years experience in healthcare disaster management. This experience includes past executive involvement in the Louisiana U.S Health and Human Services  Hospital Preparedness  and the City of New Orleans Metropolitan Medical Response System planning, as well as representing the LSU Health Care Serv...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Jim Aiken
Associate Clinical Professor of Emergency Medicine and Public HealthDr. Aiken is an Associate Clinical Professor of Emergency Medicine and Public Health in the LSU Health Science Center, New Orleans. He serves the New Orleans University Medical Center as the Medical Director for Emergency Preparedness.. Dr. Aiken has 30 years experience in healthcare disaster management. This experience includes past executive involvement in the Louisiana U.S Health and Human Services  Hospital Preparedness  and the City of New Orleans Metropolitan Medical Response System planning, as well as representing the LSU Health Care Serv...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Lauren Wiesner, M.D.
Director of Emergency Preparedness for the Emergency DepartmentLauren Wiesner, MD is the Director of Emergency Preparedness for the Emergency Department at MedStar Washington Hospital Center in Washington, DC. She is a board-certified emergency medicine physician and Assistant Professor of Clinical Emergency Medicine at Georgetown University School of Medicine. Dr. Wiesner completed her undergraduate training at Muhlenberg College, received her medical doctorate from Drexel University College of Medicine, and completed her emergency medicine residency at MedStar Georgetown University/Washington Hospital Center. Dr. Wiesner...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Lauren Wiesner
Director of Emergency Preparedness for the Emergency DepartmentLauren Wiesner, MD is the Director of Emergency Preparedness for the Emergency Department at MedStar Washington Hospital Center in Washington, DC. She is a board-certified emergency medicine physician and Assistant Professor of Clinical Emergency Medicine at Georgetown University School of Medicine. Dr. Wiesner completed her undergraduate training at Muhlenberg College, received her medical doctorate from Drexel University College of Medicine, and completed her emergency medicine residency at MedStar Georgetown University/Washington Hospital Center. Dr. Wiesner...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Linda MacIntyre
Chief NurseLinda MacIntyre, PhD, RN is Chief Nurse for the American Red Cross, providing leadership for nurses across five Red Cross lines of business –Biomedical Services, Disaster Services, International Services, Preparedness, Health and Safety Services and Service to the Armed Forces. Dr. MacIntyre works with the National Nursing Committee and senior leaders to provide vision, direction and support related to nursing and health in meeting the mission of the Red Cross. She serves on the Institute of Medicine Forum on Medical and Public Health Preparedness for Catastrophic Events, is a member of the Federal Nursing...
Source: PHRMA - September 25, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Robert Suter, D.O.
Board of DirectorsRobert E. Suter, DO MHA is Professor at the University of Texas-Southwestern and the Vice President for Quality for the Amercian Heart Association. He graduated from Washington University in St. Louis, then received his DO and MHA degrees from Des Moines University in Des Moines, Iowa. Dr. Suter did his residency training in emergency medicine at Brooke Army-Wilford Hall USAF Medical Centers in San Antonio, Texas and is board certified by the American Board of Emergency Medicine and the AOBEM in both Emergency Medicine and EMS Systems. Dr. Suter has a long history of service to emergency medicine on a sta...
Source: PHRMA - September 25, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Robert Suter
Vice President for Quality Robert E. Suter, DO MHA is Professor at the University of Texas-Southwestern and the Vice President for Quality for the Amercian Heart Association. He graduated from Washington University in St. Louis, then received his DO and MHA degrees from Des Moines University in Des Moines, Iowa. Dr. Suter did his residency training in emergency medicine at Brooke Army-Wilford Hall USAF Medical Centers in San Antonio, Texas and is board certified by the American Board of Emergency Medicine and the AOBEM in both Emergency Medicine and EMS Systems. Dr. Suter has a long history of service to emergency medicine...
Source: PHRMA - September 25, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

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(Source: PHRMA)
Source: PHRMA - September 14, 2015 Category: Pharmaceuticals Authors: Julie Source Type: news

J. Silvio Gutkind
Associate Director, Basic ScienceJ. Silvio Gutkind received his Ph.D. in Pharmacy and Biochemistry from the University of Buenos Aires, Argentina. He was trained as a post-doctoral fellow at the NIMH and NCI, and joined the National Institute of Dental and Craniofacial Research (NIDCR), NIH, where he is currently the Chief of the Oral and Pharyngeal Cancer Branch. Dr. Gutkind is a national and international leader in the study of basic signal transduction mechanisms in cancer. He is recognized for his pioneering research aimed at unraveling the complexity of the intracellular signaling circuitry by which cell surface recep...
Source: PHRMA - September 10, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Vicki Kennedy
AttorneyVictoria Reggie Kennedy is an attorney and consultant.  Through VR Kennedy Strategies LLC, she advises clients and assists them in devising strategies to resolve complex business problems, particularly those stemming from regulatory, communications or governance concerns.  Additionally, she assists clients in navigating federal administrative processes as well as in developing and executing strategies to expand their impact in the marketplace. She is the President of the Board and co-founder of the Edward M. Kennedy Institute for the United States Senate in Boston, a non-partisan organization created to e...
Source: PHRMA - September 1, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Vicki Kennedy
AttorneyVictoria Reggie Kennedy is an attorney and consultant.  Through VR Kennedy Strategies LLC, she advises clients and assists them in devising strategies to resolve complex business problems, particularly those stemming from regulatory, communications or governance concerns.  Additionally, she assists clients in navigating federal administrative processes as well as in developing and executing strategies to expand their impact in the marketplace. She is the President of the Board and co-founder of the Edward M. Kennedy Institute for the United States Senate in Boston, a non-partisan organization created to e...
Source: PHRMA - September 1, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

PhRMA Lanza Nuevos Recursos del Cuidado de la Salud en Español
Recursos sobre la atención médica y el seguro son añadidos a AccessBetterCoverage.orgWASHINGTON (Septiembre 1, 2015) - Hoy, la empresa de Investigación y Fabricantes Farmacéuticos de América (PhRMA) lanzaron el sitio AccessBetterCoverage.com/espanol,  un centro de recursos en español sobre la atención de la salud, el seguro de salud y consejos para la compra de cobertura de salud. El nuevo sitio presenta importantes recursos para ayudar a la gente a entender mejor cómo funciona el seguro de salud y qué esperar de su cobertura. El sitio incluye una s...
Source: PHRMA - August 31, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

PhRMA Launches New Spanish-Language Health Care Resources
Bilingual resources on health care and insurance added to AccessBetterCoverage.orgWASHINGTON (September 1, 2015) — Today, the Pharmaceutical Research and Manufacturers of America (PhRMA) launched Access BetterCoverage.org/espanol, a hub of Spanish-language resources on health care, health insurance and tips for shopping for health coverage. The new site introduces important resources to help people better understand how health insurance works and what to expect from their coverage. The site includes a series of Spanish-language white board videos explaining basic insurance terms like deductibles, copays and coin...
Source: PHRMA - August 31, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Rick Dunetz
Executive Director and FounderRick Dunetz is the founder and executive director of The Side-Out Foundation. His love for the sport of volleyball drew him to the world of coaching in 2002, and he hasn’t left the courts since. He was the assistant coach of the West Springfield girls volleyball team from 2002-2003 before assuming the head coach position from 2004 through 2006. In that time, “Coach D” led the Spartans to the district finals twice (2004 and 2005), once to win their first championship which sent them on to the regional semi-finals (2004). He served as both the head freshman coach (2007) and the...
Source: PHRMA - August 31, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Rick Dunetz
Executive Director and FounderRick Dunetz is the founder and executive director of The Side-Out Foundation. His love for the sport of volleyball drew him to the world of coaching in 2002, and he hasn’t left the courts since. He was the assistant coach of the West Springfield girls volleyball team from 2002-2003 before assuming the head coach position from 2004 through 2006. In that time, “Coach D” led the Spartans to the district finals twice (2004 and 2005), once to win their first championship which sent them on to the regional semi-finals (2004). He served as both the head freshman coach (2007) and the...
Source: PHRMA - August 31, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Jay Scott
Co-Executive DirectorJay Scott is the Co-Executive Director of Alex’s Lemonade Stand Foundation. When his daughter Alexandra “Alex” Scott decided to hold a lemonade stand to help doctors find new treatments and ultimately a cure for all childhood cancers, including her own, Jay and his wife Liz supported Alex’s mission every step of the way. After cancer took Alex’s life they continued Alex’s legacy of hope. What started as the vision of one little girl has been embraced by a team of 100,000 volunteers. Jay speaks frequently to groups including businesses, schools and community groups, i...
Source: PHRMA - August 24, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Jay Scott
Co-Executive DirectorJay Scott is the Co-Executive Director of Alex’s Lemonade Stand Foundation. When his daughter Alexandra “Alex” Scott decided to hold a lemonade stand to help doctors find new treatments and ultimately a cure for all childhood cancers, including her own, Jay and his wife Liz supported Alex’s mission every step of the way. After cancer took Alex’s life they continued Alex’s legacy of hope. What started as the vision of one little girl has been embraced by a team of 100,000 volunteers. Jay speaks frequently to groups including businesses, schools and community groups, i...
Source: PHRMA - August 24, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Eric Rubin
Vice President & Therapeutic Area HeadDr. Rubin has focused on cancer drug development for over 20 years, initially as a faculty member at the Dana-Farber Cancer Institute, then as a senior leader of the Cancer Institute of New Jersey. In 2008 Dr. Rubin was recruited to Merck as Vice-President, Oncology Clinical Research. He led the development of the anti-PD-1 antibody pembrolizumab, which was the first anti-PD-1 therapy approved in the U.S., and in the identification of the significant activity of this antibody across several additional cancer types. In his current role he oversees oncology early development and tran...
Source: PHRMA - August 24, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Eric Rubin
Vice President & Therapeutic Area HeadDr. Rubin has focused on cancer drug development for over 20 years, initially as a faculty member at the Dana-Farber Cancer Institute, then as a senior leader of the Cancer Institute of New Jersey. In 2008 Dr. Rubin was recruited to Merck as Vice-President, Oncology Clinical Research. He led the development of the anti-PD-1 antibody pembrolizumab, which was the first anti-PD-1 therapy approved in the U.S., and in the identification of the significant activity of this antibody across several additional cancer types. In his current role he oversees oncology early development and tran...
Source: PHRMA - August 24, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Egge on #ALx15
YouTube ID: vsq7kiapG1Y (Source: PHRMA)
Source: PHRMA - July 28, 2015 Category: Pharmaceuticals Authors: Julie Source Type: news

Peschin on #Alz15
YouTube ID: R_4z3rZtECg (Source: PHRMA)
Source: PHRMA - July 24, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Sue Peschin
President and CEOSue Peschin, MHS, is president and CEO at the Alliance for Aging Research. As the leader of the Executive Team, she is responsible for successful execution of the current strategic plan, and for assuring the operational excellence, fiscal health and growth of the organization. Sue has more than 20 years of experience in health policy, government relations and non-profit leadership.  Prior to her current role, she was vice president of Public Policy for the Alzheimer’s Foundation of America (AFA), where she successfully advocated for passage of health reform provisions for individuals with dement...
Source: PHRMA - July 24, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

George Scangos
CEOGeorge A. Scangos, Ph.D., is our Chief Executive Officer and has served in this position and as a member of our Board of Directors since July 2010. From 1996 to July 2010, Dr. Scangos served as the President and Chief Executive Officer of Exelixis, Inc., a drug discovery and development company, where he continues to serve on the board. From 1993 to 1996, Dr. Scangos served as President of Bayer Biotechnology, where he was responsible for research, business development, process development, manufacturing, engineering and quality assurance of Bayer’s biological products. Before joining Bayer in 1987, Dr. Scang...
Source: PHRMA - July 24, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Here’s what leading experts in Alzheimer’s are saying about research and innovation.
Chin on #Alz15 Submitted by Ali on Mon, 07/20/2015 - 10:47 Share Email Print var switchTo5x = false;var __st_loadLate = true;stLight.options({"publisher":"dr-e0d16a36-b72f-d979-d8a1-314a351971a6"}); $('#shareSocial').click(function(e) { e.preventDefault(); openSocial(); }); function openSocial() { $('#shareSocial').toggleClass('active'); $('#social').slideToggle(); } Sign-up for Updates Subscribe to RSS Scangos on #Alx15 Submitted...
Source: PHRMA - July 24, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Berger on ADA
YouTube ID: kV3qzFiVyVE (Source: PHRMA)
Source: PHRMA - July 7, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Helena Berger
Acting President & CEOHelena Berger has been a disability-rights advocate for over 25 years.  She is currently the Acting President & CEO of the American Association of People with Disabilities (AAPD).  Ms. Berger has been associated with AAPD for 18 years; serving in the following leadership positions over the past 15 years: Executive Director, Chief Operating Officer, and Executive Vice President.  She is a mission-focused, seasoned, strategic, and process minded leader with experience scaling an organization, leading an executive team, and developing a performance culture among a diverse group of ...
Source: PHRMA - July 7, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Ansley on ADA
YouTube ID: mRD_ltsEqLU (Source: PHRMA)
Source: PHRMA - July 7, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Heather Ansley
Associate General Counsel for Corporate and Government RelationsHeather L. Ansley is the Associate General Counsel for Corporate and Government Relations at Paralyzed Veterans of America. Ms. Ansley began her tenure with the organization in January 2015. Her responsibilities include corporate legal matters, government relations, and disability advocacy. She also works to promote collaboration between disability organizations and veterans service organizations by serving as a co-chair of the Consortium for Citizens with Disabilities (CCD) Veterans and Military Families Task Force. Additionally, she serves as a member of CCD...
Source: PHRMA - July 7, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Weir on ADA
YouTube ID: 7W7Xn3BKvQM (Source: PHRMA)
Source: PHRMA - July 7, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Sara Weir
PresidentSara Hart Weir, MS, was appointed as the National Down Syndrome Society (NDSS) President in December 2014, after previously serving as the Vice President of Advocacy & Affiliate Relations for NDSS since 2012. Weir is responsible for overseeing the mission and administration of the organization, which is the largest nonprofit in the United States dedicated to advocating for people with Down syndrome and their families. Under Weir’s leadership, NDSS was at the forefront of the passage of the landmark and historical Stephen Beck Jr. Achieving a Better Life Experience (ABLE) Act, which will create tax free s...
Source: PHRMA - July 7, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Meltzer on ADA
YouTube ID: cpwxfA8579M (Source: PHRMA)
Source: PHRMA - July 7, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

What advancements can we celebrate 25 years after passage of the Americans with Disabilities Act?
Meltzer on ADA Submitted by Ali on Tue, 07/07/2015 - 07:51 Share Email Print var switchTo5x = false;var __st_loadLate = true;stLight.options({"publisher":"dr-e0d16a36-b72f-d979-d8a1-314a351971a6"}); $('#shareSocial').click(function(e) { e.preventDefault(); openSocial(); }); function openSocial() { $('#shareSocial').toggleClass('active'); $('#social').slideToggle(); } Sign-up for Updates Subscribe to RSS Weir on ADA Submitted by Al...
Source: PHRMA - July 2, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Jon Retzlaff
Managing Director of Science Policy and Government AffairsBefore joining the American Association for Cancer Research in 2010 as the managing director of science policy and government affairs, Jon Retzlaff led the health and biomedical practice for a government relations firm in Washington, D.C. Prior to these two positions, he served as legislative director for the Federation of American Societies for Experimental Biology from 2004-2007. Additionally, Retzlaff worked for the National Institutes of Health from 1993 to 2004 in various legislative and management positions, which also included being assigned to the House (199...
Source: PHRMA - June 18, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Hiers on Ryan White
Soon we will be celebrating the 25th anniversary of the Ryan White Act, which has saved and improved the lives of hundreds of thousands of persons living with HIV in the United States.  We commemorate both the wisdom of the law, which was introduced by the late Senator Edward Kennedy to provide a safety net for low-income persons in need of HIV care, medications, and services, and the brave young advocate himself, Ryan White, who only wanted to be treated like a normal little boy.  Instead he was expelled from his school; in response he became an activist for all people living with HIV.  Ryan was diagnosed w...
Source: PHRMA - June 8, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Terry on Ryan White
The Ryan White CARE (Comprehensive AIDS Resources Emergency) Act has facilitated tremendous advancements in the treatment of HIV and AIDS, particularly with regard to connecting people living with HIV to care and keeping those individuals in care. Specifically, the development of Early Intervention Specialist (EIS) services and Medical Case Management (MCM) services have made a significant impact on low-income people living with HIV. Appointments, transportation, childcare, navigating insurance fees and finding the appropriate medical provider can be difficult or even impossible for people living with HIV, whether they are...
Source: PHRMA - June 8, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news

Marvell Terry II
HIV/AIDS FellowMarvell Terry II has been living with HIV since 2007 – and advocating against stigma and for prevention and treatment for the last 10 years. In January, he joined the Human Rights Campaign Foundation as the HIV and AIDS Project Fellow, where he works to help those within the LGBT community who are most affected by HIV and AIDS. Conversations ContributorsCompany: Human Rights CampaignRelated Conversation: What advancements in the treatment of HIV/AIDS should be celebrated during the anniversary of the Ryan White Care Act? (Source: PHRMA)
Source: PHRMA - June 8, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news