Andrew Spiegel
has a long and personal history in the patient advocate community. In 1998, Spiegel’s mother was diagnosed with metastatic colon cancer. She exhibited numerous symptoms, which were ignored by her physicians, and died nine months later. In a most odd and unfair twist, toward the end of his mother’s life, Spiegel’s father was diagnosed with pancreatic cancer and he died two days before Andrew’s mother. It was then that Spiegel knew the rest of his life would be spent in the patient advocacy world.
Because there was already a patient advocacy group for pancreatic cancer (PANCAN), Spiegel and a group of others founded...
Source: PHRMA - December 9, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Ronald Johnson
Ronald S. Johnson currently serves as the Vice President of Policy and Advocacy of AIDS United, a national organization that achieves its mission to end the HIV/AIDS epidemic in the United States through national, regional and local policy/advocacy, strategic grantmaking, and organizational capacity building. AIDS United was formed from the merger of AIDS Action and the National AIDS Fund. Mr. Johnson had served as the Deputy Director of AIDS Action.
Prior to joining AIDS Action, Mr. Johnson served as the Associate Executive Director of Gay Men’s Health Crisis (GMHC). In that capacity, he managed GMHC’s public po...
Source: PHRMA - December 9, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Lisa Tate
Lisa M. Tate is a health care executive, having served in leadership positions with a national nonprofit patient organization, hospital trade association, and medical society. Lisa most recently served as Interim Executive Director for HealthyWomen, the leading nonprofit health resource for women of all ages. Prior to HealthyWomen, she served as Chief Executive Officer of WomenHeart, the National Coalition for Women with Heart Disease, the only U.S. organization solely focused on the health and quality of care for women with heart disease.
Conversations Contributors (Source: PHRMA)
Source: PHRMA - December 9, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Mirta Santos
Mirta Avila Santos, MD, joined the American Behcet’s Disease Association (ABDA) in 2011. She became the executive director of the organization in 2012. She is passionate about improving the lives of patients living with autoimmune diseases, rare diseases and Behcet’s Disease in particular. Under her guidance, the ABDA has expanded the mission of the organization, and has partnered with other patient advocacy organizations to provide better access and improved care for patients. Her research background has contributed to research efforts for patients with Bechet’s. Her past experience includes clinical research at Rus...
Source: PHRMA - December 9, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Alan Balch
Chief Executive OfficeDr. Balch is the Chief Executive Officer of Patient Advocate Foundation and National Patient Advocate Foundation.
Dr. Balch has a decade of executive leadership in the non-profit sector with an emphasis on consensus-building and collaboration. From 2006 - 2013, he served as the Vice President of the Preventive Health Partnership -- a national health promotion collaboration between the American Cancer Society, American Diabetes Association, and American Heart Association. Prior to his work with the Preventive Health Partnership, Dr. Balch was the Executive Director of Friends of Cancer Research.
He...
Source: PHRMA - November 5, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Julie Ward
Director, Health PolicyJulie Ward, Health Policy Director, The Arc, is responsible for representing The Arc before Congress and Federal agencies on health care reform, Medicaid, Medicare and related issues. Prior to this position, she represented The Arc and United Cerebral Palsy for seven years as part of the Disability Policy Collaboration (DPC) where she had primary responsibility for budget and appropriations, employment, TANF and transportation issues. Before that she spent 18 years with the Epilepsy Foundation, the last ten years as the Senior Director of Government Affairs, overseeing the Foundation's federal and st...
Source: PHRMA - October 23, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Randall Rutta
President and CEOIn January 2015, Randall Rutta transitioned to the role of President and Chief Executive Officer of Easter Seals, building on three decades of service to the organization, most recently as Chief Strategy Officer and Executive Vice President for Public Affairs.
He has led and played integral roles in advancing public policy, service innovation, and philanthropic initiatives at all levels of the organization. Easter Seals annually serves 1.8 million people of all ages and abilities, providing an array of home and community-based services through a national affiliate network with 550 facilities and a multi...
Source: PHRMA - October 23, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Gutierrez on Hispanic Heritage
Above all else, an increase in bilingual insurance providers, doctors and personnel in the health care industry would help the Hispanic community get the best care possible.
I have witnessed the benefits bilingual communication can provide through my own mother’s experience when she was redirected – after unsuccessful treatments – to a new physician who was able to communicate in Spanish. The change allowed her to fully explain her symptoms and describe her past treatment, which enabled a more precise diagnosis.
In many situations, bilingual personnel can help provide a more in depth explanation of treatment plans th...
Source: PHRMA - October 13, 2015 Category: Pharmaceuticals Authors: Julie Source Type: news
Allen Gutierrez
National Executive Director Allen Gutierrez serves as the National Executive Director of The Latino Coalition, a national organization that represents Latino interests with senior executives of many Fortune 500 companies and government agencies both federal and local.
He is also the founder of The MCA Group based out of Maryland with emphasis on Federal & private sector procurement, special events management and multicultural marketing. Prior to joining the entrepreneur spirit and starting his own company he was the Chief Operating Officer of the United States Hispanic Chamber of Commerce a national organization that r...
Source: PHRMA - October 13, 2015 Category: Pharmaceuticals Authors: Julie Source Type: news
Kathleen Jaeger
President Kathleen Jaeger is President of the NACDS Foundation and Senior Vice President for Pharmacy Care and Patient Advocacy at NACDS. In these roles, she advocates for quality, affordable pharmacy patient care before key constituencies and contributes to NACDS’s public policy initiatives. Before joining NACDS, Ms. Jaeger served as president and CEO of the Generic Pharmaceutical Association (GPhA) for over eight years. Ms. Jaeger also chaired the food and drug practices for several national law firms and worked as a hospital pharmacist at the National Institutes of Health. Ms. Jaeger earned her Bachelor of Scie...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Nicolette Louissaint
Director of ProgrammingNicolette A. Louissaint, Ph.D. joins Healthcare Ready as the Director of Programming. In this role she leads all projects and congressional outreach on healthcare preparedness throughout the United States. Prior to this position, Nicolette served as a Foreign Affairs Officer at the U.S. Department of State in the Bureau of Economic and Business Affairs. As the lead officer for health intellectual property and trade issues, she advised the State Department’s leadership on issues related to public health, technology transfer and biotechnology. She also worked on policies related to pharmace...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Emily Lord
Executive DirectorEmily Lord is the Executive Director of Healthcare Ready. She provides strategic guidance and oversight to programs that build community health resilience in times of disaster or pandemic outbreaks. This includes creating partnerships with the private-sector medical supply chain, as well as public health NGOs and local, state and federal government agencies. Emily has led Healthcare Ready (formerly Rx Response) through multiple natural disasters including Hurricane Sandy. Emily’s expertise focuses on business continuity and resilience. Emily holds a Master of Public Administration from The George Washin...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Frank Caruso PA-C
DirectorFrank Caruso began responding to disasters in 1974, as a young man on a mission to serve, when he joined the West Babylon Fire Department in New York as a volunteer fire fighter and paramedic. After rising through the ranks as Rescue Lieutenant and Fire Captain, he decided to leave his career as a science teacher and attend school at the State University of New York, Stony Brook to become a Physician Assistant (PA). Mr. Caruso has maintained his fire fighting and paramedic skills and certifications by active membership in two fire departments: Clemmons Fire Department and Yaupon Beach Fire Department, both in N...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Frank Caruso
DirectorFrank Caruso began responding to disasters in 1974, as a young man on a mission to serve, when he joined the West Babylon Fire Department in New York as a volunteer fire fighter and paramedic. After rising through the ranks as Rescue Lieutenant and Fire Captain, he decided to leave his career as a science teacher and attend school at the State University of New York, Stony Brook to become a Physician Assistant (PA). Mr. Caruso has maintained his fire fighting and paramedic skills and certifications by active membership in two fire departments: Clemmons Fire Department and Yaupon Beach Fire Department, both in N...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Jim Aiken, M.D.
Associate Clinical Professor of Emergency Medicine and Public HealthDr. Aiken is an Associate Clinical Professor of Emergency Medicine and Public Health in the LSU Health Science Center, New Orleans. He serves the New Orleans University Medical Center as the Medical Director for Emergency Preparedness..
Dr. Aiken has 30 years experience in healthcare disaster management. This experience includes past executive involvement in the Louisiana U.S Health and Human Services Hospital Preparedness and the City of New Orleans Metropolitan Medical Response System planning, as well as representing the LSU Health Care Services Div...
Source: PHRMA - September 28, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
