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Marfan Syndrome
Title: Marfan SyndromeCategory: Diseases and ConditionsCreated: 12/31/1997 12:00:00 AMLast Editorial Review: 4/6/2017 12:00:00 AM (Source: MedicineNet Heart General)
Source: MedicineNet Heart General - April 6, 2017 Category: Cardiology Source Type: news

Consumer Health Tips: Eating out? Tips for Watching Those Calories
Eating out? Tips for watching those calories Marfan syndrome What is BPA? Should I be worried about it? Eating disorders Bad breath: Lifestyle and home remedies (Source: News from Mayo Clinic)
Source: News from Mayo Clinic - March 22, 2016 Category: Databases & Libraries Source Type: news

Marfan syndrome sufferers mother and three daughters have combined height of 30ft
Bianca Brouwers, 33, from Aberdeen, and her daughters Leah, 12, Emma, six, and Lexi, four, all have Marfan syndrome, a rare condition that leads to abnormally long and slender limbs. (Source: the Mail online | Health)
Source: the Mail online | Health - September 2, 2015 Category: Consumer Health News Source Type: news

6'3" Aberdeen mother and her three daughters have combined height of almost 30ft  
Bianca Brouwers, 33, from Aberdeen, and her daughters Leah, 12, Emma, six, and Lexi, four, all have Marfan syndrome, a rare condition that leads to abnormally long and slender limbs. (Source: the Mail online | Health)
Source: the Mail online | Health - September 2, 2015 Category: Consumer Health News Source Type: news

Well: The Weekly Health Quiz: Getting Fit, a Banned Drug and Girls vs. Boys
Test your knowledge of this week’s health news. (Source: NYT Health)
Source: NYT Health - July 31, 2015 Category: Consumer Health News Authors: TOBY BILANOW Tags: Marfan Syndrome Quizzes medicine and health Featured Source Type: news

Well: The Weekly Health Quiz: Getting Fit, a Banned Drug and Girls vs. Boys
Test your knowledge of this week’s health news. (Source: NYT)
Source: NYT - July 31, 2015 Category: Nutrition Authors: TOBY BILANOW Tags: Marfan Syndrome Quizzes medicine and health Featured Source Type: news

The Weekly Health Quiz:: Getting Fit, a Banned Drug and Girls vs. Boys
Test your knowledge of this week’s health news. (Source: NYT)
Source: NYT - July 31, 2015 Category: Nutrition Authors: TOBY BILANOW Tags: Marfan Syndrome Quizzes medicine and health Featured Source Type: news

Mayo Clinic Launches Eight Genetic Testing Panels for Cardiac Disorders
ROCHESTER, Minn. — Mayo Clinic’s launch of eight new next-generation sequencing (NGS) panels is intended to improve the lives of patients and families living with inherited cardiac conditions by aiding in the diagnosis and management of these complex disorders. These disorders include hypertrophic cardiomyopathy, dilated cardiomyopathy, arrhythmogenic right ventricular cardiomyopathy, Noonan syndrome, Marfan syndrome, long [...] (Source: Mayo Clinic Rochester News)
Source: Mayo Clinic Rochester News - April 8, 2015 Category: Hospital Management Source Type: news

When Do Feet Have Arches?
Discussion Pes planus or flat foot is a common presentation in children and is defined as the absent or diminished longitudinal medial foot arch. Parents usually become more concerned if the child appears to have problems with walking, tripping or falling, problems with alignment (i.e. feet turning outward or inward) or if there is perceived discomfort. Some parents of older children will become concerned when they notice excessive or abnormal shoe wear. The differential diagnosis in rare cases also includes rheumatologic, neurologic, neoplastic and genetic syndromes such as Ehler-Danlos and Marfan syndrome. The different...
Source: PediatricEducation.org - March 30, 2015 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

His NBA Dream Lost, Isaiah Austin Winning in New Ways
About a month before he was expected to become a first round pick in the NBA draft, Isaiah Austin found himself in the office of a heart specialist, getting a second opinion about a red flag that came up during a routine physical by league doctors. Dr. Robert Bonow sees a handful of these referrals every year, almost always false alarms. Bonow wasn't so sure this time. The 7'1" Austin indeed had many characteristics of Marfan syndrome, a condition that is potentially fatal and certainly career-ending. The definitive answer would come from a blood test. Results wouldn't arrive until shortly before the draft. Despite...
Source: Healthy Living - The Huffington Post - March 9, 2015 Category: Consumer Health News Source Type: news

How Do You Diagnose Hypermobility?
Discussion Hypermobility can be seen in several different clinical entities. These include generalized joint hypermobility, joint hypermobility syndrome, Marfan syndrome, Ehlers-Danlos syndrome and Osteogenesis Imperfecta. For adults, a Beighton score of at least 4 or 5 is used as a definition of hypermobility. For children a score of 5 or 6 is used as a definition. (see scoring system below). Generalized joint hypermobility is hypermobility with few or no symptoms. If they occur, knee symptoms are the most common. Joint hypermobility syndrome has hypermobility along with other symptoms such as pain, reduced muscle stren...
Source: PediatricEducation.org - February 23, 2015 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

It’s MAGEC: new type of scoliosis surgery sparks a smile
When the phone rang at 9 p.m. on March 6, 2014, one of the last voices Susan Bazarnick expected to hear was John Emans, MD. Emans, director of Boston Children’s Hospital’s Spinal Surgery Division, had called to share a bit of good news. The Food and Drug Administration had approved MAGEC (MAGnetic Expansion Control system) rods for certain patients with scoliosis. Her son David, who has severe scoliosis from Marfan syndrome, was an ideal candidate. “We were elated,” says the Mont Vernon, N.H., mom. The rods are a game changer for seven-year-old David and some other children with certain types of sev...
Source: Thrive, Children's Hospital Boston - December 9, 2014 Category: Pediatrics Authors: Lisa Fratt Tags: All posts Source Type: news

PodMed: A Medical News Roundup From Johns Hopkins (with audio)
(MedPage Today) -- This weeks topics include best therapy for Marfan syndrome, food at school, high potassium treatment, and chronic cough treatment. (Source: MedPage Today Cardiovascular)
Source: MedPage Today Cardiovascular - November 29, 2014 Category: Cardiology Source Type: news

Marfan Study: ARB May Be Option
(MedPage Today) -- Still no "silver bullet" for Marfan syndrome. (Source: MedPage Today Cardiovascular)
Source: MedPage Today Cardiovascular - November 21, 2014 Category: Cardiology Source Type: news

AHA: Another Treatment Option for Marfan Syndrome?
(MedPage Today) -- ARB matched standard beta-blocker in clinical trial. (Source: MedPage Today Meeting Coverage)
Source: MedPage Today Meeting Coverage - November 20, 2014 Category: Journals (General) Source Type: news

Losartan No Better Than Atenolol In Marfan's Syndrome
Beta-blockers have been the standard treatment for people with Marfan's syndrome, a rare inherited connective tissue disorder that affects about 1 in 5000 people. The goal of treatment is to prevent or slow down the dilation of the aorta and avoid aortic dissection, the main cause of death. In recent years, studies have raised the hope that losartan, an angiotensin receptor blocker, might be more effective than beta-blockers in slowing aortic enlargement. (Source: Forbes.com Healthcare News)
Source: Forbes.com Healthcare News - November 19, 2014 Category: Pharmaceuticals Authors: Larry Husten Source Type: news

AHA Hallway Buzz: Routine Mitral Surgery with CABG?
CHICAGO (MedPage Today) -- Watch exclusive On the Scene video coverage on the Surgical Treatment of Moderate Ischemic Mitral Regurgitation trial with study author Robert E. Michler, MD, and discussants Timothy Gardner, MD, and Anthony DeMaria, MD. Plus comments on the INHERIT study, the Marfan Syndrome trial, Incidence of Infective Endocarditis, and more. (Source: MedPage Today Cardiovascular)
Source: MedPage Today Cardiovascular - November 18, 2014 Category: Cardiology Source Type: news

Atenolol vs Losartan in Patients With Marfan SyndromeAtenolol vs Losartan in Patients With Marfan Syndrome
Drs Bowen and Connolly discuss the results of a landmark head-to-head comparison of losartan vs atenolol in patients with Marfan syndrome. Mayo Clinic (Source: Medscape Cardiology Headlines)
Source: Medscape Cardiology Headlines - November 18, 2014 Category: Cardiology Tags: Cardiology Commentary Source Type: news

New treatment for marfan syndrome shows promise
An investigational treatment for Marfan syndrome is as effective as the standard therapy at slowing enlargement of the aorta, the large artery of the heart that delivers blood to the body, new research shows. The findings indicate a second treatment option for Marfan patients, who are at high risk of sudden death from tears in the aorta. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - November 18, 2014 Category: Science Source Type: news

Heart Drug, Losartan, Falls Short of Promise in a Study
The new study found there was no difference in the aortic growth rate between those taking losartan and those taking the standard treatment. (Source: NYT Health)
Source: NYT Health - November 18, 2014 Category: Consumer Health News Authors: By GINA KOLATA Tags: Marfan Syndrome Heart Blood Pressure Placebos Source Type: news

Studies Indicate that Losartan may be an effective treatment option for Marfan syndrome
Losartan blocks the action of certain natural substances that tighten the blood vessels, allowing the blood to flow more smoothly and the heart to pump more efficiently. (Source: National Institutes of Health (NIH) News Releases)
Source: National Institutes of Health (NIH) News Releases - November 18, 2014 Category: American Health Source Type: news

Isaiah Austin loses NBA dream to Marfan syndrome
Marfan syndrome, a rare condition that can weaken the aorta, sidelines basketball player who had already overcome partial blindness (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - June 23, 2014 Category: Consumer Health News Source Type: news

What is Marfan syndrome?
Four days before former Baylor University basketball star Isaiah Austin hoped to be drafted into the NBA, his dreams of playing in the pros were extinguished by a rare genetic disease called Marfan syndrome. (Source: WDSU.com - Health)
Source: WDSU.com - Health - June 23, 2014 Category: Consumer Health News Source Type: news

What is Marfan syndrome?
Four days before Baylor University basketball star Isaiah Austin hoped to be drafted into the NBA, his dreams of playing in the pros were extinguished by a rare genetic disease called Marfan syndrome. (Source: CNN.com - Health)
Source: CNN.com - Health - June 23, 2014 Category: Consumer Health News Source Type: news

When Can A Child Start Strength Training?
Discussion Exercise is an important part of health and daily life. A review of recommendations for general exercise for children and adults can be found here. Many people use pedometers as a marker of their activity and a list of activities and their equivalent steps can be found here. The benefits of strength training includes improved performance, injury prevention and rehabilitation, improved cardiovascular fitness, improved bone mineral density, improved blood lipid profiles and mental health. Improvements in strength can be found in properly structured programs of at least 8 weeks duration occurring at least 1-2 time...
Source: PediatricEducation.org - May 12, 2014 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

Marfan Syndrome: New ChallengesMarfan Syndrome: New Challenges
Many individuals with Marfan syndrome remain undiagnosed, and in spite of a much-improved chance of a normal lifespan, the risk of sudden death remains for untreated individuals. Mayo Clinic (Source: Medscape Ophthalmology Headlines)
Source: Medscape Ophthalmology Headlines - April 7, 2014 Category: Opthalmology Tags: Cardiology Commentary Source Type: news

Johns Hopkins Researcher Awarded Inaugural Harrington Prize - 2/12/14
Johns Hopkins pediatric cardiologist and geneticist Hal Dietz, M.D., has been awarded the first Harrington Prize for Innovation in Medicine for his work identifying the cause and a treatment for Marfan syndrome. (Source: Johns Hopkins Medicine News)
Source: Johns Hopkins Medicine News - February 12, 2014 Category: Research Source Type: news

Periodontal Conditions in Patients With Marfan SyndromePeriodontal Conditions in Patients With Marfan Syndrome
Orthodontic manifestations of Marfan syndrome have been well-documented. But does Marfan syndrome also increase susceptibility to periodontitis? BMC Oral Health (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - December 4, 2013 Category: Consumer Health News Tags: Dental & Oral Health Journal Article Source Type: news

Genetic Connections: Learning to Defuse the Aorta
The long search for a gene mutation has led to a chance of stopping Marfan syndrome and reducing the risk of a fatal burst before it happens.     (Source: NYT Health)
Source: NYT Health - December 2, 2013 Category: Consumer Health News Authors: By GINA KOLATA Tags: Genetics and Heredity Blood Pressure Children and Childhood Source Type: news

Engineer saves his own life and 40 others by inventing device to repair life-threatening heart defect
Tal Golesworthy, 57, from Gloucestershire, has Marfan syndrome - a genetic condition that can cause the aorta to split. (Source: the Mail online | Health)
Source: the Mail online | Health - November 20, 2013 Category: Consumer Health News Source Type: news

Multidisciplinary Approach to Marfan Syndrome Best: AAPMultidisciplinary Approach to Marfan Syndrome Best: AAP
Marfan syndrome is best managed by using a multidisciplinary approach, the American Academy of Pediatrics says in a report. Reuters Health Information (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - September 30, 2013 Category: Consumer Health News Tags: Pediatrics News Source Type: news

Common blood pressure drug losartan (Cozaar) reduces aortic enlargement in Marfan syndrome
A common drug that is used to treat high blood pressure in the general population has been found to significantly reduce a dangerous and frequently fatal cardiac problem in patients with Marfan syndrome. Results of the COMPARE (COzaar in Marfan PAtients Reduces aortic Enlargement) study reveal that patients treated with losartan (Cozaar) had a significantly reduced rate of aortic enlargement after 3 years compared to patients who did not receive the treatment... (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - September 4, 2013 Category: Consumer Health News Tags: Cardiovascular / Cardiology Source Type: news

Tall Order: Losartan Looks Promising in Marfan SyndromeTall Order: Losartan Looks Promising in Marfan Syndrome
The lead investigator for the COMPARE study says, since blood-pressure lowering is already recommended in this group, losartan could be recommended to these patients. Heartwire (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - September 2, 2013 Category: Consumer Health News Tags: Cardiology News Source Type: news

Tall order: Losartan looks promising in Marfan syndrome
The lead investigator for the COMPARE study says, since blood-pressure lowering is already recommended in this group, losartan could be recommended to these patients. (Source: theHeart.org)
Source: theHeart.org - September 2, 2013 Category: Cardiology Source Type: news

Common blood pressure drug reduces aortic enlargement in Marfan syndrome
(European Society of Cardiology) A common drug that is used to treat high blood pressure in the general population has been found to significantly reduce a dangerous and frequently fatal cardiac problem in patients with Marfan syndrome. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - September 2, 2013 Category: Global & Universal Source Type: news

Children With Marfan Syndrome and Aortic Root DilationChildren With Marfan Syndrome and Aortic Root Dilation
The high percentage of young subjects with relatives who have had aortic dissection or surgery illustrates the need for more definitive therapy. American Heart Journal (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - July 1, 2013 Category: Consumer Health News Tags: Cardiology Journal Article Source Type: news

Revised Article-Marfan Syndrome
Marfan syndrome is a condition in which your body's connective tissue is abnormal. Connective tissue helps support all parts of your body. (Source: National Heart, Lung, and Blood Institute Health Topics)
Source: National Heart, Lung, and Blood Institute Health Topics - October 19, 2010 Category: Consumer Health News Source Type: news