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These Adorable Atlanta Children's Hospital Patients Are Pumped For The Super Bowl
Football fans across the Atlanta area are gearing up to watch the Falcons face the New England Patriots in the Super Bowl on Sunday. In fact, even the tiniest Falcons fans are getting in the spirit.  Children’s Healthcare of Atlanta (CHOA) posted photos of young patients decked out in their Falcons gear on Facebook. One special fan is 17-month-old Wyatt Keeton. Wyatt was born at 37 weeks and diagnosed with spondyloepiphyseal dysplasia, a rare form of dwarfism. He was later diagnosed with spinal cord stenosis, a condition that commonly occurs in dwarfism when a child’s head is disproportionate to his or he...
Source: Healthy Living - The Huffington Post - February 3, 2017 Category: Consumer Health News Source Type: news

The Moment You Face Your Child's Mortality
You just read that title and thought "I know my kid is mortal. I've faced this." And I would agree with you before my daughter was diagnosed with cancer. But I didn't realize what my child's mortality really was until it slapped me in the face. I knew, when I got pregnant, that I had this precious life that I had to care for. It was up to me to keep her healthy and warm and safe. It was up to me to make sure she grew up into a moderately tolerable adult. But I didn't see the forest for the trees. I was too concerned with whether she was walking or talking or behaving the way she was supposed to. I was too concer...
Source: Healthy Living - The Huffington Post - September 14, 2016 Category: Consumer Health News Source Type: news

BRAF Mutation in Langerhans Cell HistiocytosisBRAF Mutation in Langerhans Cell Histiocytosis
Children with Langerhans cell histiocytosis (LCH) and the BRAFV600E mutation may be at greater risk for worse outcomes, including permanent injury and poor short-term response to chemotherapy, according to new research from France. Reuters Health Information (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - July 11, 2016 Category: Consumer Health News Tags: Hematology-Oncology News Source Type: news

Boy with has rare disease LCH causing 'chicken pox' lumps all over his body
Oscar Langham, 10 months old, of Leek, Staffordshire, suffers from Langerhans' cell histiocytosis, a rare disease of the immune cells which causes an angry red rash. (Source: the Mail online | Health)
Source: the Mail online | Health - April 6, 2016 Category: Consumer Health News Source Type: news

Pediatric cancer patients’ art exhibit shows courage and creativity
The artist Henri Matisse once said, “Creativity takes courage.” So does facing cancer as a child. Cancer, creativity and courage merged at a recent exhibit of art by patients of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. Here is a sampling of the patients’ work and what they say about it. Nate Cavallo, 14, of Lexington, Massachusetts Sarcoma Photographs These were taken on my Make-A-Wish trip to Moorea in French Polynesia. My goal was to experience a magical underwater world, which I’d often dreamed of seeing. It’s great I was able to capture this once-in-a-lifetim...
Source: Thrive, Children's Hospital Boston - May 13, 2015 Category: Pediatrics Authors: Irene Sege Tags: Cancer Our patients’ stories Source Type: news

Histiocytosis: Symptoms and Treatment Information
Histiocytosis is also referred to as, "Langerhans Cell Histiocytosis (LCH)," or more formally as, "Histiocytosis X," and represents a group of rare disorders involving specific cells that usually have important roles as part of a person's immune system. (Source: Disabled World)
Source: Disabled World - October 7, 2014 Category: Disability Tags: Autoimmune Diseases Source Type: news

Your NEJM Group Today: Langerhans'-Cell Histiocytosis Image, Draw-a-Child Test, Connecticut Hospitalist Opportunity (FREE)
By the Editors NEJM Group offers so many valuable resources for practicing clinicians. Here's what we chose for you … (Source: Physician's First Watch current issue)
Source: Physician's First Watch current issue - September 16, 2014 Category: Primary Care Source Type: news

Boy battling blood disease dies 24 hours after contracting 'infection'
Toddler Max Moment, from Lancashire, died after developing a deadly infection after months of chemotherapy to treat Langerhans Cell Histiocytosis. Just weeks before his death doctors told his parents he was in remission and beating the rare disease. (Source: the Mail online | Health)
Source: the Mail online | Health - July 9, 2014 Category: Consumer Health News Source Type: news

Dying mother's last wish 'to smile in photo with sons' after losing teeth to rare disease
Kelly Murray, from New Whittington in Derbyshire, was diagnosed with the rare disease langerhan cell histiocytosis, which caused the bones in her mouth to disintegrate. (Source: the Mail online | Health)
Source: the Mail online | Health - May 22, 2014 Category: Consumer Health News Source Type: news

The girl as delicate as a china doll: Hollie, 4, has bones as fragile as glass that can shatter with the slightest impact
Hollie Hunter from Chester-le-Street, County Durham, suffers from Langerhans' cell histiocytosis, which only affects one in 200,000 children. (Source: the Mail online | Health)
Source: the Mail online | Health - November 4, 2013 Category: Consumer Health News Source Type: news

Toddler's amazing recovery after having 100 blood transfusions and a bone marrow transplant BEFORE her first birthday
Ava Maye Riley-Maher, now 14 months, from Manchester, was diagnosed with a rare cancer-like disease – called Langerhan's Cell Histiocytosis (LCH) - aged just five months. (Source: the Mail online | Health)
Source: the Mail online | Health - August 6, 2013 Category: Consumer Health News Source Type: news

Longer Treatment For Children With Langerhans Cell Hystiocytosis Improves Survival Rates
A new international study finds that prolonged, intense initial treatment in children with multi-system Langerhans cell histiocytosis (MS-LCH) can achieve survival rates as high as 84 percent - a full 15 percent improvement over the previous clinical trial in this series. The study, LCH-III, is published in Blood, the journal of the American Society of Hematology. It is the third in a series of international randomized clinical trials for LCH that spans twenty years initiated and coordinated by the Histiocyte Society, a group of more than 200 physicians and scientists worldwide... (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - May 31, 2013 Category: Consumer Health News Tags: Lymphoma / Leukemia / Myeloma Source Type: news

Study shows longer treatment for children with langerhans cell hystiocytosis improves survival rates
(Children's National Medical Center) A new international study finds that prolonged, intense initial treatment in children with multi-system Langerhans cell histiocytosis can achieve survival rates as high as 84 percent -- a full 15 percent improvement over the previous clinical trial in this series. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - May 29, 2013 Category: Global & Universal Source Type: news

What Causes Spontaneous Pneumothorax?
Discussion “A pneumothorax is a collection of air in the pleural space, and it can be categorized into spontaneous, traumatic or iatrogenic. Spontaneous pneumothorax can be further classified into primary with no clinical evidence of underlying lung disease or secondary due to pre-existing lung disease.” Spontaneous pneumothorax is a condition that is relatively rare in pediatrics. There is a bimodal age distribution – neonates and late adolescence. It is caused by tearing of the visceral pleural. Clinical signs include chest pain, dyspnea, tachycardia, tracheal deviation towards contralateral side, hypot...
Source: PediatricEducation.org - May 20, 2013 Category: Pediatrics Authors: Donna M. D'Alessandro, M.D. Tags: Uncategorized Source Type: news