Ethical, legal, and social aspects of symptom checker applications: a scoping review
AbstractSymptom Checker Applications (SCA) are mobile applications often  designed for the end-user to assist with symptom assessment and self-triage. SCA are meant to provide the user with easily accessible information about their own health conditions. However, SCA raise questions regarding ethical, legal, and social aspects (ELSA), for example, regarding fair access to this new technology. The aim of this scoping review is to identify the ELSA of SCA in the scientific literature. A scoping review was conducted to identify the ELSA of SCA. Ten databases (e.g., Web of Science and PubMed) were used. Studies on SCA that ad...
Source: Medicine, Health Care and Philosophy - December 1, 2022 Category: Medical Ethics Source Type: research

Patient autonomy, clinical decision making, and the Phenomenological reduction
AbstractPhenomenology gives rise to certain ontological considerations that have far-reaching implications for standard conceptions of patient autonomy in medical ethics, and, as a result, the obligations of and to patients in clinical decision-making contexts. One such consideration is thephenomenological reduction in classical phenomenology, a core feature of which is the characterisation of our primary experiences as immediately and inherently meaningful. This paper builds on and extends the analyses of the phenomenological reduction in the works of Husserl, Heidegger, and Merleau-Ponty in order to identify and explain ...
Source: Medicine, Health Care and Philosophy - December 1, 2022 Category: Medical Ethics Source Type: research

Chronic pain as a blind spot in the diagnosis of a depressed society. On the implications of the connection between depression and chronic pain for interpretations of contemporary society
AbstractOne popular description of current society is that it is adepressed society and medical evidence about depression ’s prevalence may well make such an estimation plausible. However, such normative-critical assessments surrounding depression have to date usually operated with a one-sided understanding of depression. This understanding widely neglects the various ways depression manifests as well as its comorbid ities. This becomes evident at the latest when considering one of depression’s most prominent and well-known comorbidities: chronic pain. Against this background, we aim in this article to substantiate our...
Source: Medicine, Health Care and Philosophy - December 1, 2022 Category: Medical Ethics Source Type: research

The continuing formation of relational caring professionals
AbstractLearning to work as a relational caring professional in healthcare and social welfare, is foremost a process of transformative learning, of Building, of professional subjectification. In this article we contribute to the design of such a process of formation by presenting a structured map of five domains of formational goals. It is mainly informed by many years of care-ethical research and training of professionals in healthcare and social work. The five formational domains are:Relational Caring Approach,Perception,Knowledge,Interpretation, andPractical Wisdom. The formation process, described as the recurring deto...
Source: Medicine, Health Care and Philosophy - December 1, 2022 Category: Medical Ethics Source Type: research

Disclosing the person in renal care coordination: why unpredictability, uncertainty, and irreversibility are inherent in person-centred care
This article explores an example of person-centred care: the work of so-called renal care coordinators. The empirical basis of the article consists of qualitative interviews with renal care coordinators, alongside participant observations of their patient interactions. During the analyses of the empirical material, I found that that one of the coordinators ’ most fundamental ambitions is to get to knowwho the patient is. This is also a central tenet of person-centred care. The aim of the article is not only to argue for the plausibility of this tenet, but also, and more importantly, to highlight and explore its implicati...
Source: Medicine, Health Care and Philosophy - December 1, 2022 Category: Medical Ethics Source Type: research

Metaphors in medicine
(Source: Medicine, Health Care and Philosophy)
Source: Medicine, Health Care and Philosophy - December 1, 2022 Category: Medical Ethics Source Type: research

Initial heritable genome editing: mapping a responsible pathway from basic research to the clinic
AbstractFollowing the Second Summit on Human Gene Editing in Hong Kong in 2018, where the birth of two girls with germline genome editing was revealed, the need for a responsible pathway to the clinical application of human germline genome editing has been repeatedly emphasised. This paper aims to contribute to the ongoing discussion on research ethics issues in germline genome editing by exploring key issues related to the initial applications of CRISPR in reproductive medicine. Following an overview of the current discussion on bringing germline genome editing into clinical practice, we outline the specific challenges as...
Source: Medicine, Health Care and Philosophy - November 22, 2022 Category: Medical Ethics Source Type: research

Vulnerability, ageism, and health: is it helpful to label older adults as a vulnerable group in health care?
AbstractDespite the diversity of ageing, society and academics often describe and label older persons as a vulnerable group. As the term vulnerability is frequently interchangeably used with frailty, dependence, or loss of autonomy, a connection between older age and deficits is promoted. Concerning this, the question arises to what extent it may be helpful to refer to older persons as vulnerable specifically in the context of health care. After analyzing different notions of vulnerability, I argue that it is illegitimate to conclude that older age is related to increased vulnerability. Much more, identifying older adults ...
Source: Medicine, Health Care and Philosophy - November 19, 2022 Category: Medical Ethics Source Type: research

The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization
AbstractThroughout the Global North, policymakers invest in large-scale integration of health-data infrastructures to facilitate the reuse of clinical data for administration, research, and innovation. Debates about the ethical implications of data repurposing have focused extensively on issues of patient autonomy and privacy. We suggest that it is time to scrutinize also how the everyday work of healthcare staff is affected by political ambitions of data reuse for an increasing number of purposes, and how different purposes are prioritized. Our analysis builds on ethnographic studies within the Danish healthcare system, w...
Source: Medicine, Health Care and Philosophy - November 19, 2022 Category: Medical Ethics Source Type: research

Vulnerability, ageism, and health: is it helpful to label older adults as a vulnerable group in health care?
AbstractDespite the diversity of ageing, society and academics often describe and label older persons as a vulnerable group. As the term vulnerability is frequently interchangeably used with frailty, dependence, or loss of autonomy, a connection between older age and deficits is promoted. Concerning this, the question arises to what extent it may be helpful to refer to older persons as vulnerable specifically in the context of health care. After analyzing different notions of vulnerability, I argue that it is illegitimate to conclude that older age is related to increased vulnerability. Much more, identifying older adults ...
Source: Medicine, Health Care and Philosophy - November 19, 2022 Category: Medical Ethics Source Type: research

The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization
AbstractThroughout the Global North, policymakers invest in large-scale integration of health-data infrastructures to facilitate the reuse of clinical data for administration, research, and innovation. Debates about the ethical implications of data repurposing have focused extensively on issues of patient autonomy and privacy. We suggest that it is time to scrutinize also how the everyday work of healthcare staff is affected by political ambitions of data reuse for an increasing number of purposes, and how different purposes are prioritized. Our analysis builds on ethnographic studies within the Danish healthcare system, w...
Source: Medicine, Health Care and Philosophy - November 19, 2022 Category: Medical Ethics Source Type: research

Children with medical complexities: their distinct vulnerability in health systems ’ Covid-19 response and their claims of justice in the recovery phase
AbstractIn this paper, we discuss the lack of consideration given to children in the COVID-19 health systems policy response to the pandemic. We do this by focusing on the case of children with complex medical needs. We argue that, in broad terms, health systems policies that were implemented during the pandemic failed adequately to meet our obligations to both children generally and those with complex medical needs by failing to consider those needs and so to give them fair protection against harm and disadvantage. We argue that justice requires that the distinct needs and vulnerabilities of children with medical complexi...
Source: Medicine, Health Care and Philosophy - November 16, 2022 Category: Medical Ethics Source Type: research

Empathy is not so perfect! -For a descriptive and wide conception of empathy
AbstractPhysician empathy is considered essential for good clinical care. Empirical evidence shows that it correlates with better patient satisfaction, compliance, and clinical outcomes. These data have nevertheless been criticized because of a lack of consistency and reliability. In this paper, we claim that these issues partly stem from the widespread idealization of empathy: we mistakenly assume that physician empathy always contributes to good care. This has prevented us from agreeing on a definition of empathy, from understanding the effects of its different components and from exploring its limits. This is problemati...
Source: Medicine, Health Care and Philosophy - November 15, 2022 Category: Medical Ethics Source Type: research

Love and romantic relationship in the domain of medicine
AbstractIn this paper, I explore the nature of medical interventions like neuromodulation on the complex human experience of love. Love is built upon two fundamental natures, viz: the biological and the psychosocial. As a result of this distinction, scientists, and bioethicists have been exploring the possible ways this complex human experience can be biologically tampered with to produce some supposed higher-order ends like well-being and human flourishing. At the forefront in this quest are Earp, Sandberg and Savulescu whose research works over ten years has focused on the good that could stem from the medicalization of ...
Source: Medicine, Health Care and Philosophy - November 10, 2022 Category: Medical Ethics Source Type: research