Persistent inequitable design and implementation of patient portals for users at the margins
Discussion and conclusionAlthough feminist scholars have developed important understandings of the exclusion of citizens living in vulnerable circumstances from portal design, other academic efforts have profoundly shaped daily practices of portal development. Diane Forsythe would likely have taken up this discrepancy as a challenge by finding ways to translate these insights into mainstream systems design. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 19, 2021 Category: Information Technology Source Type: research

Enabling realistic health data re-identification risk assessment through adversarial modeling
ConclusionsThis research illustrates that re-identification risk is situationally dependent and that appropriate adversarial modeling may permit biomedical data sharing on a wider scale than is currently the case. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 15, 2021 Category: Information Technology Source Type: research

Recommendations for the safe, effective use of adaptive CDS in the US healthcare system: an AMIA position paper
AbstractThe development and implementation of clinical decision support (CDS) that trains itself and adapts its algorithms based on new data —here referred to as Adaptive CDS—present unique challenges and considerations. Although Adaptive CDS represents an expected progression from earlier work, the activities needed to appropriately manage and support the establishment and evolution of Adaptive CDS require new, coordinated initiativ es and oversight that do not currently exist. In this AMIA position paper, the authors describe current and emerging challenges to the safe use of Adaptive CDS and lay out recommendations ...
Source: Journal of the American Medical Informatics Association - January 15, 2021 Category: Information Technology Source Type: research

Measurement of clinical documentation burden among physicians and nurses using electronic health records: a scoping review
ConclusionFurther research is needed to reliably operationalize the concept of documentation burden, explore best practices for measurement, and standardize its use. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 12, 2021 Category: Information Technology Source Type: research

Information Blocking Remains Prevalent at the Start of 21 Century Cures: Results from a Survey of Health Information Exchange Organizations
ConclusionEnforcement aimed at reducing information blocking should consider variation in prevalence and how to most effectively target efforts. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 7, 2021 Category: Information Technology Source Type: research

Comparison of family health history in surveys vs electronic health record data mapped to the observational medical outcomes partnership data model in the All of Us Research Program
ConclusionsCompiling data from both surveys and EHR can provide a more comprehensive source for family health history, but informatics challenges and opportunities exist. Access to more complete understanding of a person ’s family health history may provide opportunities for precision medicine. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 5, 2021 Category: Information Technology Source Type: research

The case for information fiduciaries: The implementation of a data ethics checklist at Seattle Children ’s Hospital
AbstractThere is little debate about the importance of ethics in health care, and clearly defined rules, regulations, and oaths help ensure patients ’ trust in the care they receive. However, standards are not as well established for the data professions within health care, even though the responsibility to treat patients in an ethical way extends to the data collected about them. Increasingly, data scientists, analysts, and engineers are beco ming fiduciarily responsible for patient safety, treatment, and outcomes, and will require training and tools to meet this responsibility. We developed a data ethics checklist that...
Source: Journal of the American Medical Informatics Association - January 5, 2021 Category: Information Technology Source Type: research

Speaking up about patient-perceived serious visit note errors: Patient and family experiences and recommendations
ConclusionsAbout half of patients and families who perceived a serious mistake in their notes reported it. Identified barriers demonstrate modifiable issues such as establishing clear mechanisms for reporting and more challenging issues such as creating a supportive culture. Respondents offered new ideas for engaging patients and families in improving note accuracy. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 23, 2020 Category: Information Technology Source Type: research

Factors associated with nurse well-being in relation to electronic health record use: A systematic review
ConclusionsThe overarching finding from this synthesis reveals a critical need for multifaceted interventions that better organize, manage, and display information for clinicians to facilitate decision making. Our study also suggests that nurses have valuable insight into ways to reduce EHR-related burden. Future research is needed to test multicomponent interventions that address these complex factors and use participatory approaches to engage nurses in intervention development. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 23, 2020 Category: Information Technology Source Type: research

Artificial intelligence in breast cancer screening: primary care provider preferences
Conclusions and RelevanceSensitivity was the most important attribute overall, but other key attributes should be addressed to produce clinically acceptable products. We also found that most PCPs accept the use of AI to make determinations about likely negative mammograms without radiologist confirmation. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 23, 2020 Category: Information Technology Source Type: research

UMLS-based data augmentation for natural language processing of clinical research literature
ConclusionsThis study presents a UMLS-based data augmentation method, UMLS-EDA. It is effective at improving deep learning models for both NER and sentence classification, and contributes original insights for designing new, superior deep learning approaches for low-resource biomedical domains. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 23, 2020 Category: Information Technology Source Type: research

Application of Bayesian networks to generate synthetic health data
ConclusionWe conclude the application of Bayesian networks is a promising option for generating realistic synthetic health data that preserves the features of the original data without compromising data privacy. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 23, 2020 Category: Information Technology Source Type: research

Conceptual considerations for using EHR-based activity logs to measure clinician burnout and its effects
AbstractElectronic health records (EHR) use is often considered a significant contributor to clinician burnout. Informatics researchers often measure clinical workload using EHR-derived audit logs and use it for quantifying the contribution of EHR use to clinician burnout. However, translating clinician workload measured using EHR-based audit logs into a meaningful burnout metric requires an alignment with the conceptual and theoretical principles of burnout. In this perspective, we describe a systems-oriented conceptual framework to achieve such an alignment and describe the pragmatic realization of this conceptual framew...
Source: Journal of the American Medical Informatics Association - December 22, 2020 Category: Information Technology Source Type: research

Enhancing filter-based parenthetic abbreviation extraction methods
AbstractThis letter discusses the limitations of the use of filters to enhance the accuracy of the extraction of parenthetic abbreviations from scholarly publications and proposes the usage of the parentheses level count algorithm to efficiently extract entities between parentheses from raw texts as well as of machine learning-based supervised classification techniques for the identification of biomedical abbreviations to significantly reduce the removal of acronyms including disallowed punctuations. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 22, 2020 Category: Information Technology Source Type: research

Proper filter usage to retrieve multiwords from the MEDLINE n-gram set: Reply to the Turki et al commentary “Enhancing filter-based parenthetic abbreviation extraction methods”
First of all, we thank Turki et al for being interested in our work. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 22, 2020 Category: Information Technology Source Type: research