CUSTOM-SEQ: A Prototype for Oncology Rapid Learning in a Comprehensive EHR Environment
Background: As targeted cancer therapies and molecular profiling become widespread, the era of "precision oncology" is at hand. However, cancer genomes are complex, making mutation-specific outcomes difficult to track. We created a proof-of-principle, CUSTOM-SEQ: Continuously Updating System for Tracking Outcome by Mutation, to Support Evidence-based Querying, to automatically calculate and display mutation-specific survival statistics from electronic health record data.Methods: Patients with cancer genotyping were included, and clinical data was extracted through a variety of algorithms. Results were refreshed r...
Source: Journal of the American Medical Informatics Association - March 23, 2016 Category: Information Technology Authors: Warner, J. L., Wang, L., Pao, W., Sosman, J. A., Atreya, R. V., Carney, P., Levy, M. A. Tags: Research and Applications Source Type: research

The frequency of inappropriate nonformulary medication alert overrides in the inpatient setting
Conclusion Approximately 1 in 5 NFM alert overrides are overridden inappropriately. Future research should evaluate the impact of mandating a valid override reason and adding a list of formulary alternatives to each NFM alert; we speculate these NFM alert features may decrease the frequency of inappropriate overrides. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - March 21, 2016 Category: Information Technology Authors: Her, Q. L., Amato, M. G., Seger, D. L., Beeler, P. E., Slight, S. P., Dalleur, O., Dykes, P. C., Gilmore, J. F., Fanikos, J., Fiskio, J. M., Bates, D. W. Tags: Research and Applications Source Type: research

Is the problem list in the eye of the beholder? An exploration of consistency across physicians
Conclusions The problem list is a physician’s mental model of a patient’s health status. These mental models were found to vary significantly between physicians, raising questions about whether problem lists created by individual physicians can serve their intended purpose to improve care coordination. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - March 21, 2016 Category: Information Technology Authors: Krauss, J. C., Boonstra, P. S., Vantsevich, A. V., Friedman, C. P. Tags: Research and Applications Source Type: research

Describing the evolution of mobile technology usage for Latino patients and comparing findings to national mHealth estimates
Objectives Describe the change in mobile technology used by an urban Latino population between 2011 and 2014, and compare findings with national estimates.Materials and Methods Patients were surveyed on medical history and mobile technology use. We analyzed specific areas of mobile health capacity stratified by chronic disease, age, language preference, and educational attainment.Results Of 2144 Latino patients, the percentage that owned a cell phone and texted were in-line with Pew estimates, but app usage was not. Patients with chronic disease had reduced access to mobile devices (P
Source: Journal of the American Medical Informatics Association - March 19, 2016 Category: Information Technology Authors: Arora, S., Ford, K., Terp, S., Abramson, T., Ruiz, R., Camilon, M., Coyne, C. J., Lam, C. N., Menchine, M., Burner, E. Tags: Brief Communication Source Type: research

Balancing digital information-sharing and patient privacy when engaging families in the intensive care unit
Patients in intensive care units (ICUs) may lack decisional capacity and may depend on proxy decision makers (PDMs) to make medical decisions on their behalf. High-quality information-sharing with PDMs, including through such means as health information technology, could improve communication and decision making and could potentially minimize the psychological consequences of an ICU stay for both patients and their family members. However, alongside these anticipated benefits of information-sharing are risks of unwanted disclosure of sensitive information. Approaches to identifying the optimal balance between access to dig...
Source: Journal of the American Medical Informatics Association - March 16, 2016 Category: Information Technology Authors: Brown, S. M., Aboumatar, H. J., Francis, L., Halamka, J., Rozenblum, R., Rubin, E., Sarnoff Lee, B., Sugarman, J., Turner, K., Vorwaller, M., Frosch, D. L., for the Privacy, Access, and Engagement Task Force of the Libretto Consortium of the Gordon and Be Tags: Perspective Source Type: research

Data-driven health management: reasoning about personally generated data in diabetes with information technologies
Conclusion Overall, the study showed that identifying trends in the data collected with self-monitoring is a complex process, and that conclusions reached by both individuals with diabetes and diabetes educators are not always reliable. This suggests the need for new ways to facilitate individuals’ reasoning with informatics interventions. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - March 16, 2016 Category: Information Technology Authors: Mamykina, L., Levine, M. E., Davidson, P. G., Smaldone, A. M., Elhadad, N., Albers, D. J. Tags: Research and Applications Source Type: research

Sociocultural Variation in Attitudes Toward use of Genetic Information and Participation in Genetic Research by Race in the United States: Implications for Precision Medicine
Conclusions Important dimensions that underlay PM are not universally accepted by all populations. Without clear attention to concerns, AA communities may not equally benefit from the rapidly-emerging trend in PM-centered research and clinical practice. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - March 16, 2016 Category: Information Technology Authors: Dye, T., Li, D., Demment, M., Groth, S., Fernandez, D., Dozier, A., Chang, J. Tags: Brief Communication Source Type: research

A rational approach to legacy data validation when transitioning between electronic health record systems
Conclusions Compared to the typical industry approach, we have demonstrated that a statistical approach to sampling size for data validation can ensure consistent confidence levels while maximizing efficiency of the validation process during a major electronic health record conversion. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - March 14, 2016 Category: Information Technology Authors: Pageler, N. M., Grazier GSell, M. J., Chandler, W., Mailes, E., Yang, C., Longhurst, C. A. Tags: Brief Communication Source Type: research

A patient-centered system in a provider-centered world: challenges of incorporating post-discharge wound data into practice
Conclusion We have identified critical barriers to integrating PGHD into clinical care and describe design implications to help address these barriers. Our work informs future efforts to ensure the smooth integration of essential PGHD into clinical practice. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - March 14, 2016 Category: Information Technology Authors: Sanger, P. C., Hartzler, A., Lordon, R. J., Armstrong, C. A., Lober, W. B., Evans, H. L., Pratt, W. Tags: Research and Applications Source Type: research

Automatic Detection of Social Rhythms in Bipolar Disorder
Objective To evaluate the feasibility of automatically assessing the Social Rhythm Metric (SRM), a clinically-validated marker of stability and rhythmicity for individuals with bipolar disorder (BD), using passively-sensed data from smartphones.Methods Seven patients with BD used smartphones for 4 weeks passively collecting sensor data including accelerometer, microphone, location, and communication information to infer behavioral and contextual patterns. Participants also completed SRM entries using a smartphone app.Results We found that automated sensing can be used to infer the SRM score. Using location, distance travel...
Source: Journal of the American Medical Informatics Association - March 14, 2016 Category: Information Technology Authors: Abdullah, S., Matthews, M., Frank, E., Doherty, G., Gay, G., Choudhury, T. Tags: Research and Applications Source Type: research

Precision medicine: opportunities, possibilities, and challenges for patients and providers
Precision medicine approaches disease treatment and prevention by taking patients’ individual variability in genes, environment, and lifestyle into account. Although the ideas underlying precision medicine are not new, opportunities for its more widespread use in practice have been enhanced by the development of large-scale databases, new methods for categorizing and representing patients, and computational tools for analyzing large datasets. New research methods may create uncertainty for both healthcare professionals and patients. In such situations, frameworks that address ethical, legal, and social challenges can...
Source: Journal of the American Medical Informatics Association - March 14, 2016 Category: Information Technology Authors: Adams, S. A., Petersen, C. Tags: Perspective Source Type: research

SMART on FHIR: a standards-based, interoperable apps platform for electronic health records
Conclusion In this paper, we describe the creation of SMART on FHIR, relate the experience of the vendors and developers who built SMART on FHIR prototypes, and discuss some challenges in going from early industry prototyping to industry-wide production use. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 17, 2016 Category: Information Technology Authors: Mandel, J. C., Kreda, D. A., Mandl, K. D., Kohane, I. S., Ramoni, R. B. Tags: Research and Applications Source Type: research

Effects of an e-Prescribing interface redesign on rates of generic drug prescribing: exploiting default options
Objective Increasing the use of generic medications could help control medical costs. However, educational interventions have limited impact on prescriber behavior, and e-prescribing alerts are associated with high override rates and alert fatigue. Our objective was to evaluate the effect of a less intrusive intervention, a redesign of an e-prescribing interface that provides default options intended to "nudge" prescribers towards prescribing generic drugs.Methods This retrospective cohort study in an academic ambulatory multispecialty practice assessed the effects of customizing an e-prescribing interface to sub...
Source: Journal of the American Medical Informatics Association - February 17, 2016 Category: Information Technology Authors: Malhotra, S., Cheriff, A. D., Gossey, J. T., Cole, C. L., Kaushal, R., Ancker, J. S. Tags: Research and Applications Source Type: research

Automated identification and predictive tools to help identify high-risk heart failure patients: pilot evaluation
Conclusions Using clinical decision support to help identify HF patients and automatically calculating their 30-day all-cause readmission and 30-day mortality risks, coupled with a multidisciplinary care process pathway, was found to be an effective process to improve HF patient identification, significantly reduce 30-day mortality, and significantly increase patient discharges to home care. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 17, 2016 Category: Information Technology Authors: Evans, R. S., Benuzillo, J., Horne, B. D., Lloyd, J. F., Bradshaw, A., Budge, D., Rasmusson, K. D., Roberts, C., Buckway, J., Geer, N., Garrett, T., Lappe, D. L. Tags: Research and Applications Source Type: research

A method for modeling co-occurrence propensity of clinical codes with application to icd-10-pcs auto-coding
Conclusions The promising results obtained for International Statistical Classification of Diseases-10 procedure codes suggest that the proposed method may have wider applications in auto-coding. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 17, 2016 Category: Information Technology Authors: Subotin, M., Davis, A. R. Tags: Research and Applications Source Type: research

Managing research and surveillance projects in real-time with a novel open-source eManagement tool designed for under-resourced countries
Conclusions The user friendly, open source odk_planner is a simple, but multi-functional, Web-based eManagement tool with add-ons that helps researchers conduct studies in under-resourced countries. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 15, 2016 Category: Information Technology Authors: Steiner, A., Hella, J., Grüninger, S., Mhalu, G., Mhimbira, F., Cercamondi, C. I., Doulla, B., Maire, N., Fenner, L. Tags: Research and Applications Source Type: research

Informational and emotional elements in online support groups: a Bayesian approach to large-scale content analysis
Conclusion Our findings provide an empirical foundation for building theory on informational versus emotional support across conditions, give insights for practitioners to better understand the role of online support groups for different patients, and show the usefulness of machine-learning approaches to analyze large-scale qualitative health data from online settings. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 15, 2016 Category: Information Technology Authors: Deetjen, U., Powell, J. A. Tags: Research and Applications Source Type: research

Development and validation of a predictive model for detection of colorectal cancer in primary care by analysis of complete blood counts: a binational retrospective study
Conclusions Our model may help to detect CRC earlier in clinical practice. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 15, 2016 Category: Information Technology Authors: Kinar, Y., Kalkstein, N., Akiva, P., Levin, B., Half, E. E., Goldshtein, I., Chodick, G., Shalev, V. Tags: Research and Applications Source Type: research

Patients learning to read their doctors notes: the importance of reminders
Conclusion Note viewing persists when accompanied by email alerts, but may decline substantially in their absence. Non-white patients at BIDMC viewed notes less frequently than whites, although their interest also persisted. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 11, 2016 Category: Information Technology Authors: Mafi, J. N., Mejilla, R., Feldman, H., Ngo, L., Delbanco, T., Darer, J., Wee, C., Walker, J. Tags: Research and Applications Source Type: research

Leveraging cues from person-generated health data for peer matching in online communities
(Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 11, 2016 Category: Information Technology Tags: Research and Applications Source Type: research

Harnessing next-generation informatics for personalizing medicine: a report from AMIAs 2014 Health Policy Invitational Meeting
This report summarizes the findings (n = 6) and recommendations (n = 15) from the policy meeting, which were clustered into 3 broad areas: (1) policies governing data access for research and personalization of care; (2) policy and research needs for evolving data interpretation and knowledge representation; and (3) policy and research needs to ensure data integrity and preservation. The meeting outcome underscored the need to address a number of important policy and technical considerations in order to realize the potential of personalized or precision medicine in actual clinical contexts. (Source: Journal of the American ...
Source: Journal of the American Medical Informatics Association - February 5, 2016 Category: Information Technology Authors: Wiley, L. K., Tarczy-Hornoch, P., Denny, J. C., Freimuth, R. R., Overby, C. L., Shah, N., Martin, R. D., Sarkar, I. N. Tags: Perspective Source Type: research

Leveraging cues from person-generated health data for peer matching in online communities
Conclusion Peer-matching systems in online health communities offer a promising approach for leveraging PGHD to connect patients. Our findings point to interpersonal communication cues embedded in PGHD that could prove critical for building mentoring relationships among the growing membership of online health communities. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 5, 2016 Category: Information Technology Authors: Hartzler, A. L., Taylor, M. N., Park, A., Griffiths, T., Backonja, U., McDonald, D. W., Wahbeh, S., Brown, C., Pratt, W. Tags: Research and Applications Source Type: research

Modeling information flows in clinical decision support: key insights for enhancing system effectiveness
This article outlines such a framework. We present a two-stream model of information flow within clinical decision-support systems (CDSSs): reasoning about the patient (the clinical stream), and reasoning about the user (the cognitive-behavioral stream). We propose that CDSS "effectiveness" be measured not only in terms of a system’s impact on clinical care, but also in terms of how (and by whom) the system is used, its effect on work processes, and whether it facilitates appropriate decisions by clinicians and patients. Future research into which factors improve the effectiveness of decision support should...
Source: Journal of the American Medical Informatics Association - February 5, 2016 Category: Information Technology Authors: Medlock, S., Wyatt, J. C., Patel, V. L., Shortliffe, E. H., Abu-Hanna, A. Tags: Perspective Source Type: research

Extracting information from the text of electronic medical records to improve case detection: a systematic review
Conclusions Text in EMRs is accessible, especially with open source information extraction algorithms, and significantly improves case detection when combined with codes. More harmonization of reporting within EMR studies is needed, particularly standardized reporting of algorithm accuracy metrics like positive predictive value (precision) and sensitivity (recall). (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 5, 2016 Category: Information Technology Authors: Ford, E., Carroll, J. A., Smith, H. E., Scott, D., Cassell, J. A. Tags: Reviews Source Type: research

Data interchange using i2b2
Conclusion New analytical requirements can be quickly and cost-effectively supported by i2b2 without creating new data extraction processes from the EHR. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - February 5, 2016 Category: Information Technology Authors: Klann, J. G., Abend, A., Raghavan, V. A., Mandl, K. D., Murphy, S. N. Tags: Research and Applications Source Type: research

Integrating patient voices into health information for self-care and patient-clinician partnerships: Veterans Affairs design recommendations for patient-generated data applications
Electronic health record content is created by clinicians and is driven largely by intermittent and brief encounters with patients. Collecting data directly from patients in the form of patient-generated data (PGD) provides an unprecedented opportunity to capture personal, contextual patient information that can supplement clinical data and enhance patients’ self-care. The US Department of Veterans Affairs (VA) is striving to implement the enterprise-wide capability to collect and use PGD in order to partner with patients in their care, improve the patient healthcare experience, and promote shared decision making. Th...
Source: Journal of the American Medical Informatics Association - February 5, 2016 Category: Information Technology Authors: Woods, S. S., Evans, N. C., Frisbee, K. L. Tags: Perspective Source Type: research

Harnessing person-generated health data to accelerate patient-centered outcomes research: the Crohns and Colitis Foundation of America PCORnet Patient Powered Research Network (CCFA Partners)
The Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network (PPRN) seeks to advance and accelerate comparative effectiveness and translational research in inflammatory bowel diseases (IBDs). Our IBD-focused PCORnet PPRN has been designed to overcome the major obstacles that have limited patient-centered outcomes research in IBD by providing the technical infrastructure, patient governance, and patient-driven functionality needed to: 1) identify, prioritize, and undertake a patient-centered research agenda through sharing person-generated health data; 2) develop and test patient and provide...
Source: Journal of the American Medical Informatics Association - January 28, 2016 Category: Information Technology Authors: Chung, A. E., Sandler, R. S., Long, M. D., Ahrens, S., Burris, J. L., Martin, C. F., Anton, K., Robb, A., Caruso, T. P., Jaeger, E. L., Chen, W., Clark, M., Myers, K., Dobes, A., Kappelman, M. D. Tags: Brief Communication Source Type: research

An exploratory study using an openEHR 2-level modeling approach to represent common data elements
Conclusion The findings from this research show that the openEHR archetype has structural coverage for the CDEs, namely the openEHR archetype is able to represent the CDEs and meet the functional expectations of the CDEs. This work can be used as a reference when improving CDE structure using an advanced modeling approach. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 23, 2016 Category: Information Technology Authors: Lin, C.-H., Fann, Y.-C., Liou, D.-M. Tags: Research and Applications Source Type: research

Self-monitoring practices, attitudes, and needs of individuals with bipolar disorder: implications for the design of technologies to manage mental health
Conclusion This study provides increased understanding of self-monitoring practices, attitudes, and needs of individuals with bipolar disorder. This knowledge bears implications for clinical researchers and practitioners seeking insight into how individuals independently self-manage their condition as well as for researchers designing monitoring technologies to support mental health management. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 23, 2016 Category: Information Technology Authors: Murnane, E. L., Cosley, D., Chang, P., Guha, S., Frank, E., Gay, G., Matthews, M. Tags: Research and Applications Source Type: research

Using the electronic health record for assessment of health insurance in community health centers
Objective To demonstrate use of the electronic health record (EHR) for health insurance surveillance and identify factors associated with lack of coverage.Materials and Methods Using EHR data, we conducted a retrospective, longitudinal cohort study of adult patients (n = 279 654) within a national network of community health centers during a 2-year period (2012–2013).Results Factors associated with higher odds of being uninsured (vs Medicaid-insured) included: male gender, age>25 years, Hispanic ethnicity, income above the federal poverty level, and rural residence (P
Source: Journal of the American Medical Informatics Association - January 23, 2016 Category: Information Technology Authors: Hatch, B., Tillotson, C., Angier, H., Marino, M., Hoopes, M., Huguet, N., DeVoe, J. Tags: Brief Communication Source Type: research

The influence of health-specific social network site use on the psychological well-being of cancer-affected people
Conclusion This research assessed the relationship between the use of SNSs, specifically OCA Facebook, and the psychological well-being of cancer-affected people. The study confirmed that using OCA Facebook can improve psychological well-being by demonstrating the potential value of SNSs as a support service in the healthcare industry. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 17, 2016 Category: Information Technology Authors: Erfani, S. S., Blount, Y., Abedin, B. Tags: Research and Applications Source Type: research

Potential benefit of electronic pharmacy claims data to prevent medication history errors and resultant inpatient order errors
Conclusion When current SEPCD was available for older adult patients on complex medication regimens, it had substantial potential to prevent AMH errors and resultant inpatient order errors, with greater potential to prevent more severe errors. Further study is needed to measure the benefit of SEPCD in actual use at hospital admission. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 17, 2016 Category: Information Technology Authors: Pevnick, J. M., Palmer, K. A., Shane, R., Wu, C. N., Bell, D. S., Diaz, F., Cook-Wiens, G., Jackevicius, C. A. Tags: Research and Applications Source Type: research

A high-precision rule-based extraction system for expanding geospatial metadata in GenBank records
Conclusion Our system performs reasonably well for linking GenBank records for the influenza A virus to the geo-coordinates of their LOIH based on record metadata and information extracted from related full-text articles. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 17, 2016 Category: Information Technology Authors: Tahsin, T., Weissenbacher, D., Rivera, R., Beard, R., Firago, M., Wallstrom, G., Scotch, M., Gonzalez, G. Tags: Research and Applications Source Type: research

Mobile health devices: will patients actually use them?
Although mobile health (mHealth) devices offer a unique opportunity to capture patient health data remotely, it is unclear whether patients will consistently use multiple devices simultaneously and/or if chronic disease affects adherence. Three healthy and three chronically ill participants were recruited to provide data on 11 health indicators via four devices and a diet app. The healthy participants averaged overall weekly use of 76%, compared to 16% for those with chronic illnesses. Device adherence declined across all participants during the study. Patients with chronic illnesses, with arguably the most to benefit from...
Source: Journal of the American Medical Informatics Association - January 17, 2016 Category: Information Technology Authors: Shaw, R. J., Steinberg, D. M., Bonnet, J., Modarai, F., George, A., Cunningham, T., Mason, M., Shahsahebi, M., Grambow, S. C., Bennett, G. G., Bosworth, H. B. Tags: Brief Communication Source Type: research

Assessing Strength of Evidence of Appropriate Use Criteria for Diagnostic Imaging Examinations
Conclusions A novel annotation framework was effective for grading the strength of evidence supporting appropriate use criteria for diagnostic imaging exams. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 17, 2016 Category: Information Technology Authors: Lacson, R., Raja, A. S., Osterbur, D., Ip, I., Schneider, L., Bain, P., Mita, C., Whelan, J., Silveira, P., Dement, D., Khorasani, R. Tags: Brief Communication Source Type: research

Computers in the clinical encounter: a scoping review and thematic analysis
Conclusion In contrast to the common negative views of HIT, it affects the clinical encounter in multiple ways. By applying identified strategies and best practices, HIT can support patient-clinician interactions rather than interfering with them. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 14, 2016 Category: Information Technology Authors: Crampton, N. H., Reis, S., Shachak, A. Tags: Review Source Type: research

VERTIcal Grid lOgistic regression (VERTIGO)
Conclusion The proposed VERTIGO algorithm can generate accurate global models to support federated data analysis of vertically partitioned data. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 8, 2016 Category: Information Technology Authors: Li, Y., Jiang, X., Wang, S., Xiong, H., Ohno-Machado, L. Tags: Research and Applications Source Type: research

Quantifying usability: an evaluation of a diabetes mHealth system on effectiveness, efficiency, and satisfaction metrics with associated user characteristics
Conclusion Using the ISO 9241-11 usability standard, the SUS instrument for satisfaction and measuring user characteristics provided objective measures of patients’ experienced usability. These could serve as an exemplar for standardized, quantitative methods for usability studies on mHealth systems. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 7, 2016 Category: Information Technology Authors: Georgsson, M., Staggers, N. Tags: Research and Applications Source Type: research

Interactive tools for inpatient medication tracking: a multi-phase study with cardiothoracic surgery patients
Conclusions Inpatient medication-tracking tools, when designed to meet patients’ needs, can play an important role in fostering patient participation in their own care and patient-provider communication during a hospital stay. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - January 7, 2016 Category: Information Technology Authors: Wilcox, L., Woollen, J., Prey, J., Restaino, S., Bakken, S., Feiner, S., Sackeim, A., Vawdrey, D. K. Tags: Research and Applications Source Type: research

Development of a large urban longitudinal HIV clinical cohort using a web-based platform to merge electronically and manually abstracted data from disparate medical record systems: technical challenges and innovative solutions
Conclusions Our experiences may have practical implications for researchers who seek to merge data from diverse clinical databases, and are applicable to the study of health-related issues beyond HIV. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 31, 2015 Category: Information Technology Authors: Greenberg, A. E., Hays, H., Castel, A. D., Subramanian, T., Happ, L. P., Jaurretche, M., Binkley, J., Kalmin, M. M., Wood, K., Hart, R., on behalf of the DC Cohort Executive Committee Tags: Research and Applications Source Type: research

Patient-generated health data: a pathway to enhanced long-term cancer survivorship
This article describes the challenges that cancer survivors and their providers face in managing survivors’ care and identifies several ways that using patient-generated health data can improve survivors’ and providers’ ability to manage survivorship care at the individual and population levels. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 29, 2015 Category: Information Technology Authors: Petersen, C. Tags: Perspectives Source Type: research

Disparities in the use of a mHealth medication adherence promotion intervention for low-income adults with type 2 diabetes
Conclusions Racial/ethnic minorities, older adults, and persons with lower health literacy or more depressive symptoms appeared to be the least engaged in a mHealth intervention. To facilitate equitable intervention impact, future research should identify and address factors interfering with mHealth engagement. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 11, 2015 Category: Information Technology Authors: Nelson, L. A., Mulvaney, S. A., Gebretsadik, T., Ho, Y.-X., Johnson, K. B., Osborn, C. Y. Tags: Research and Applications Source Type: research

Assessing race and ethnicity data quality across cancer registries and EMRs in two hospitals
Background Measurement of patient race/ethnicity in electronic health records is mandated and important for tracking health disparities.Objective Characterize the quality of race/ethnicity data collection efforts.Methods For all cancer patients diagnosed (2007–2010) at two hospitals, we extracted demographic data from five sources: 1) a university hospital cancer registry, 2) a university electronic medical record (EMR), 3) a community hospital cancer registry, 4) a community EMR, and 5) a joint clinical research registry. The patients whose data we examined (N = 17 834) contributed 41 025 entries (range: 2&ndas...
Source: Journal of the American Medical Informatics Association - December 11, 2015 Category: Information Technology Authors: Lee, S. J. C., Grobe, J. E., Tiro, J. A. Tags: Research and Applications Source Type: research

The feasibility of text reminders to improve medication adherence in adolescents with asthma
Conclusions MMH was associated with improved medication adherence, perceived quality of life, and self-efficacy.Trial Registration This project was registered under http://clinicaltrials.gov/ identifier NCT01730235. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 11, 2015 Category: Information Technology Authors: Johnson, K. B., Patterson, B. L., Ho, Y.-X., Chen, Q., Nian, H., Davison, C. L., Slagle, J., Mulvaney, S. A. Tags: Research and Applications Source Type: research

Immune modulators in disease: integrating knowledge from the biomedical literature and gene expression
Conclusion Using integrated large-scale data captured from the scientific literature and experimental data, a better understanding of the immune mechanisms underlying disease can be achieved and applied to research. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 11, 2015 Category: Information Technology Authors: Geifman, N., Bhattacharya, S., Butte, A. J. Tags: Research and Applications Source Type: research

Tweeting back: predicting new cases of back pain with mass social media data
Conclusion These findings give directions for future research that could use social media for innovative public health interventions. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 11, 2015 Category: Information Technology Authors: Lee, H., McAuley, J. H., Hübscher, M., Allen, H. G., Kamper, S. J., Moseley, G. L. Tags: Brief Communication Source Type: research

A framework for self-experimentation in personalized health
Conclusion Using mobile technology to guide people through self-experimentation to investigate health questions is a feasible and promising approach to advancing personalized health. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 7, 2015 Category: Information Technology Authors: Karkar, R., Zia, J., Vilardaga, R., Mishra, S. R., Fogarty, J., Munson, S. A., Kientz, J. A. Tags: Research and Applications Source Type: research

OpenFDA: an innovative platform providing access to a wealth of FDAs publicly available data
Conclusion With easier and faster access to these datasets, consumers worldwide can learn more about FDA-regulated products. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 7, 2015 Category: Information Technology Authors: Kass-Hout, T. A., Xu, Z., Mohebbi, M., Nelsen, H., Baker, A., Levine, J., Johanson, E., Bright, R. A. Tags: Research and Applications Source Type: research

Design simplicity influences patient portal use: the role of aesthetic evaluations for technology acceptance
Conclusion This study provides evidence that aesthetic evaluations – specifically regarding simplicity – function as a significant antecedent variable to patients’ use of patient portals and should influence patient portal design strategies. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - December 3, 2015 Category: Information Technology Authors: Lazard, A. J., Watkins, I., Mackert, M. S., Xie, B., Stephens, K. K., Shalev, H. Tags: Brief Communication Source Type: research

The utility of web mining for epidemiological research: studying the association between parity and cancer risk
Conclusion This large web-mining study on parity and cancer risk produced findings very similar to those reported with traditional observational studies. It may be used as a promising strategy to generate study hypotheses for guiding and prioritizing future epidemiological studies. (Source: Journal of the American Medical Informatics Association)
Source: Journal of the American Medical Informatics Association - November 27, 2015 Category: Information Technology Authors: Tourassi, G., Yoon, H.-J., Xu, S., Han, X. Tags: Research and Applications Source Type: research