Relationships among psychological safety, the principles of high reliability, and safety reporting intentions in pediatric nursing
The purpose of this study was to explore relationships among psychological safety, the principles of high reliability, and safety reporting intentions in pediatric nursing. Patient safety events are underreported and costly. To promote reporting, many healthcare organizations have adopted the high reliability framework with strategies to foster team psychological safety. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 7, 2023 Category: Nursing Authors: Lauren Pfeifer, Judith Vessey, Mary Cazzell, Pat Reid Ponte, David Geyer Source Type: research
The barriers to family-centered care in the pediatric rehabilitation ward: A qualitative study
This study aimed at exploring the barriers to FCC in the pediatric rehabilitation ward. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 2, 2023 Category: Nursing Authors: Taban Nematifard, Kian Norouzi Tabrizi, Narges Arsalani, Masoud Fallahi-Khoshknab, Leili Borimnejad Source Type: research
The experiences of mothers of children with food allergy: A qualitative study
This study aims to examine the experiences of mothers who have children with food allergies within the framework of the biopsychosocial-spiritual model. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Cigdem Sari Ozturk, Ozlem Selime Merter, Zeynep Kisecik Sengul Source Type: research
Diagnosing adrenal insufficiency in the setting of new assays with increased sensitivity
Cosyntropin or Adrenocorticotropic hormone (ACTH) stimulation testing is the gold standard for diagnosing adrenal insufficiency (AI). Current practice requires measuring cortisol levels at baseline, +30, and + 60 min post-cosyntropin (1 μg) administration. Older polyclonal antibody assays require peak cortisol levels of 18 μg/dL to rule-out AI. In 2019, monoclonal or LCMS/MS assays were introduced offering increased sensitivity, potentially lowering the cut-off value for ruling out AI (14mcd/dL). (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Lisa Whipple Source Type: research
Effects of untreated congenital hypothyroidism
A 12-year-old female, recently relocated from Guatemala, South America. The primary language of patient and family is Spanish, and the patient does not have health care insurance. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Jennifer L. Brown Source Type: research
Aromatase inhibitor monotherapy in non-classic congenital adrenal hyperplasia
Case 1 is a 19-year-old female, diagnosed with non-classic congenital adrenal hyperplasia (NCCAH) at age 3.5 years. Case 2 is the 17-year-old sister diagnosed with NCCAH at age 2 years. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Amy Drilling, Natalie Schmitz, Jane Torkelson Source Type: research
Noonan syndrome and implications related to endocrine follow-up and coordination of care
Noonan syndrome (NS) is a genetic condition with a prevalence of 1:1000 -2500. NS is a variably expressed, multisystem disorder. Individuals may experience blood clotting abnormalities, congenital heart defects including hypertrophic cardiomyopathy and pulmonary valve stenosis, malformations of lymph vessels, short stature, autoimmune thyroiditis, impaired feeding with failure to thrive, and learning disorders. Due to the inconsistencies in presentation, these patients require multidisciplinary care including pediatric endocrinology. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Marcy DeEmedio Source Type: research
The Face of Diabetes (FOD) 2022
Drawing the “Face of Diabetes” (FOD) in 2014 provided opportunity for youth to express unspoken emotions and experiences, increasing understanding in living with Type 1 Diabetes. Diabetes care has evolved with use of real time glucose sensors, insulin pumps and “closed loop” technology. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Shari Liesch Source Type: research
Lessons from the first decade of adrenoleukodystrophy newborn screening in the United States
Adrenoleukodystrophy is an X-linked genetic condition causing the accumulation of very long-chain fatty acids in the brain, spinal cord, adrenal glands, and testes. Males with adrenoleukodystrophy must undergo serial evaluation for neurological and endocrine sequela. There is no genotype/phenotype correlation or predictive biomarker to guide clinical evaluation, and an estimated 86% of male children with adrenoleukodystrophy will develop adrenal insufficiency. New York became the first state to enact adrenoleukodystrophy newborn screening in 2013. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Leslie Pitts, J. Michelle White, Sigrid Ladores, Christina M. Wilson Source Type: research
After-hours nursing care of an ill child living with diabetes
Children's Health established a nurse advice line (NAL) service to support community physicians in 2013. The endocrine providers approached this team requesting support in the after-hours setting to help manage children with diabetes. The goal was to decrease the burden on the on-call providers and improve the consistency of triage decisions. Schmitt Thompson's telephone triage guidelines were leveraged to build our institution-specific diabetes management guidelines, then embedded in EPIC for documentation. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Tamara Siegmund Source Type: research
Course of COVID-19 infection in patients with congenital adrenal hyperplasia
Patients with primary adrenal insufficiency (PAI) are at risk for life-threatening adrenal crises that are most often triggered by illness. Prior studies suggest possible inefficient immune response in PAI. The COVID-19 pandemic created new risks and challenges for patient management. There is a lack of data regarding COVID-19, risk of severe illness, and prevention of adrenal crisis in patients with PAI due to congenital adrenal hyperplasia (CAH). (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Amy Moon Source Type: research
Practical management of pediatric growth hormone deficiency with lonapegsomatropin
Lonapegsomatropin (TransCon hGH) is the first FDA approved once-weekly prodrug of somatropin for pediatric growth hormone deficiency (GHD). In the pivotal phase 3 heiGHt trial, lonapegsomatropin demonstrated noninferior and superior annualized height velocity (AHV) and a comparable safety profile to daily somatropin in treatment-na ïve children with GHD. Efficacy and safety were demonstrated in previously treated children with GHD who switched to lonapegsomatropin from their prior daily growth hormone, and long term tolerability, safety and efficacy has been demonstrated in the ongoing open-label extension trial enliGHten...
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Terri Lipman Source Type: research
Patient-centric design of the lonapegsomatropin auto-injector for pediatric growth hormone deficiency
Together with once-weekly lonapegsomatropin, the lonapegsomatropin Auto-Injector may facilitate to overcome challenges in treatment of pGHD such as needle anxiety and difficulties with injection and may improve adherence and outcomes in real-world use. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Josephine Jensen Source Type: research
6-Month subcutaneous leuprolide acetate achieved and maintained hormonal suppression in overweight children
Childhood obesity is associated with an increased risk of central precocious puberty (CPP) (Liu G 2021). Thus, data looking at the treatment effects in overweight children with CPP would be valuable for pediatric endocrine nurses to ensure correct clinical management. (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Keisha Bird, Deborah M. Boldt-Houle, Stuart N. Atkinson Source Type: research
Clinical experience with 6-month subcutaneous leuprolide acetate for central precocious puberty
A 6-year-5-month-old female presented with concerns of central precocious puberty (CPP). (Source: Journal of Pediatric Nursing)
Source: Journal of Pediatric Nursing - September 1, 2023 Category: Nursing Authors: Jori Matushek, Deborah M. Boldt-Houle, Stuart N. Atkinson Source Type: research
