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Journal of Intellectual Disability Research, Ahead of Print. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 27, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 339-348, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 27, 2018 Category: Disability Source Type: research

General nutrition knowledge among carers at group homes for people with intellectual disability
Abstract BackgroundGood nutrition knowledge among carers of people with intellectual disability (ID) living in group homes is essential as they have a primary role in food provision for residents. Research on the nutrition knowledge of carers is limited. MethodThis cross‐sectional study assessed the level of general nutrition knowledge in a convenience sample of Australian carers (C) of people with ID and compared this to the general Australian community (CM). Nutrition knowledge was evaluated using the validated General Nutrition Knowledge Questionnaire. Total knowledge score as well as performance on instrument sub‐s...
Source: Journal of Intellectual Disability Research - February 27, 2018 Category: Disability Authors: N. H. Hamzaid, V. M. Flood, T. Prvan, H. T. O'Connor Tags: Original Manuscript Source Type: research

Living with family: perceptions of health and subjective well ‐being of adults with an intellectual disability
ConclusionsOn the whole, the health and well‐being of adults living with family were perceived more positively than those living out of home. However, potential health disparities exist for those with high support needs who live with family. Further longitudinal research is needed to explore causes and potential solution to these inequalities. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 26, 2018 Category: Disability Authors: J. M. Grey, V. Totsika, R. P. Hastings Tags: Original Manuscript Source Type: research

Living with family: perceptions of health and subjective well ‐being of adults with an intellectual disability
Journal of Intellectual Disability Research, EarlyView. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 26, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research, Ahead of Print. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 26, 2018 Category: Disability Source Type: research

Depression and anxiety symptoms during the transition to early adulthood for people with intellectual disabilities
ConclusionsInsight and maladaptive coping are potential targets in the treatment of anxiety and depression among YA with ID. Longitudinal intervention studies exploring the efficacy of such targeted programmes in reducing mental health symptoms and improving the transition to adulthood for these young people are recommended. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 23, 2018 Category: Disability Authors: K. L. Austin, M. Hunter, E. Gallagher, L. E. Campbell Tags: Original Manuscript Source Type: research

Depression and anxiety symptoms during the transition to early adulthood for people with intellectual disabilities
Journal of Intellectual Disability Research, EarlyView. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 23, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research, Ahead of Print. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 23, 2018 Category: Disability Source Type: research

Cri du Chat syndrome: Characteristics of 73 Brazilian patients
ConclusionsThe questionnaire was a pioneer initiative in the CdCS support group, and the answers used in this study can improve the health care assistance to these patients because they focus attention on the demands from a parental perspective. In addition, nearly half of the families stated that they did not remember information regarding recurrence risk, which reinforces the importance of genetic counselling follow‐up and the need for the expansion of genetic services in Brazil (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 20, 2018 Category: Disability Authors: R. S. Honjo, C. B. Mello, L. S. E. Pimenta, E. C. Nu ñes‐Vaca, L. M. Benedetto, R. B. F. Khoury, D. M. Befi‐Lopes, C. A. Kim Tags: Original Manuscript Source Type: research

Cri du Chat syndrome: Characteristics of 73 Brazilian patients
Journal of Intellectual Disability Research, EarlyView. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 20, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research, Ahead of Print. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 20, 2018 Category: Disability Source Type: research

Lycra splinting garments for adults with intellectual disabilities who fall due to gait or balance issues: a feasibility study
ConclusionLycra splinting socks are likely to bring about positive outcomes for adults with IDs who fall due to gait/balance issues on an individual case by case basis over time, but further research is required to test this hypothesis under randomised controlled trial conditions. Potential benefits of more intrusive LSGs are outweighed by reported problems with usability and compliance. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 14, 2018 Category: Disability Authors: J. Finlayson, J. Crockett, S. Shanmugam, B. Stansfield Tags: Original Manuscript Source Type: research

Lycra splinting garments for adults with intellectual disabilities who fall due to gait or balance issues: a feasibility study
Journal of Intellectual Disability Research, EarlyView. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 14, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research, Ahead of Print. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 14, 2018 Category: Disability Source Type: research

Embedding routine health checks for adults with intellectual disabilities in primary care: practice nurse perceptions
ConclusionWhile the trial found the intervention to be dominant over standard health care, the adjustments nurses made may not have maximised potential benefits to patients. Increasing training could further improve the benefits that health checks provide for people with IDs. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 9, 2018 Category: Disability Authors: S. Macdonald, J. Morrison, C. A. Melville, M. Baltzer, L. MacArthur, S. A. Cooper Tags: Original Manuscript Source Type: research

Embedding routine health checks for adults with intellectual disabilities in primary care: practice nurse perceptions
Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 349-357, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 9, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 349-357, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 9, 2018 Category: Disability Source Type: research

Persistence of self ‐injury, aggression and property destruction in children and adults with tuberous sclerosis complex
ConclusionThese findings suggest that self‐injurious behaviours in individuals with TSC, together with aggressive and destructive behaviours, are highly persistent and would benefit from targeted intervention. Poor adaptive skills, overactivity/impulsivity and painful health conditions may differentiate those at most risk for persistent self‐injury or aggression. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 8, 2018 Category: Disability Authors: L. Wilde, K. Wade, K. Eden, J. Moss, P. J. Vries, C. Oliver Tags: Original Manuscript Source Type: research

Persistence of self ‐injury, aggression and property destruction in children and adults with tuberous sclerosis complex
Journal of Intellectual Disability Research, EarlyView. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 8, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research, Ahead of Print. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 8, 2018 Category: Disability Source Type: research

Issue Information
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 7, 2018 Category: Disability Tags: Issue Information Source Type: research

Involvement of nurses in end ‐of‐life discussions for severely disabled children
ConclusionMost nurses were not involved in EoL discussions with parents and physicians in the hospital. Excluding nurses from EoL discussions can cause them moral distress. The involvement of nurses in EoL discussions for children with PIMD should be improved, especially by involving nurses from ID‐care services. Because these nurses are usually familiar with the child, they can be valuable sources of information about the child's quality of life. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 1, 2018 Category: Disability Authors: I. H. Zaal ‐Schuller, D. I. Willems, F. Ewals, J. B. Goudoever, M. A. Vos Tags: Original Manuscript Source Type: research

Involvement of nurses in end ‐of‐life discussions for severely disabled children
Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 330-338, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 31, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 330-338, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 31, 2018 Category: Disability Source Type: research

Carers' preferences for the delivery of therapy services for people with disability in rural Australia: evidence from a discrete choice experiment
This study aimed to determine quantitatively the relative importance that carers of people with a disability living in rural Australia place on different therapy service delivery characteristics. MethodsA stated preference discrete choice experiment was incorporated into a survey of carers of people with disability living in rural Australia. Carers chose between therapy delivery services differing in attributes such as travel time to receive therapy, sector providing the service (i.e. Government, not‐for‐profit and private), out‐of‐pocket costs, person who delivers the therapy (therapist or other staff) and waiting...
Source: Journal of Intellectual Disability Research - January 24, 2018 Category: Disability Authors: G. Gallego, A. Dew, M. Lincoln, A. Bundy, K. Bulkeley, J. Brentnall, C. Veitch Tags: Original Manuscript Source Type: research

Carers' preferences for the delivery of therapy services for people with disability in rural Australia: evidence from a discrete choice experiment
Journal of Intellectual Disability Research, EarlyView. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 24, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research, Ahead of Print. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 24, 2018 Category: Disability Source Type: research

Inflammatory biomarkers and intellectual disability in patients with Down syndrome
ConclusionsThe levels of the determined markers were higher in DS individuals compared with (cognitively) healthy subjects, and CRP showed a negative correlation with IQ in children with DS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Authors: S. Manti, M. C. Cutrupi, C. Cuppari, E. Ferro, V. Dipasquale, G. Di Rosa, R. Chimenz, M. A. La Rosa, A. Valenti, V. Salpietro Tags: Original Manuscript Source Type: research

Low performance on mathematical tasks in preschoolers: the importance of domain ‐general and domain‐specific abilities
ConclusionsCurrent findings suggest that preschool LAs constitute a heterogeneous group and stress the importance of domain‐general factors for the development of mathematical abilities during the preschool years. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Authors: H. M. Costa, B. Nicholson, C. Donlan, J. Van Herwegen Tags: Original Manuscript Source Type: research

Inflammatory biomarkers and intellectual disability in patients with Down syndrome
Journal of Intellectual Disability Research, EarlyView. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Source Type: research

Low performance on mathematical tasks in preschoolers: the importance of domain ‐general and domain‐specific abilities
Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 292-302, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research, Ahead of Print. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 292-302, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Source Type: research

Problem behaviours and psychotropic medication use in intellectual disability: a multinational cross ‐sectional survey
ConclusionsWe found evidence of prevalent potential ‘off‐label’ use for psychotropic medication, which may be due to PBs. We also found evidence of potential diagnostic‐overshadowing, where symptoms of psychiatric co‐morbidity may have been attributed to PBs. Our findings provide renewed importance, across borders and health systems, for clinicians to consider a holistic approach to treating PBs, and attempting to best understand the precipitants and predisposing factors before psychotropic prescribing. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Authors: B. I. Perry, H. F. Kwok, J. Mendis, K. Purandare, A. Wijeratne, S. Manjubhashini, M. Dasari, F. Esan, I. Gunaratna, R. A. Naseem, S. Hoare, V. Chester, A. Roy, J. Devapriam, R. Alexander, S. E. Cooray Tags: Original Manuscript Source Type: research

Severity of cognitive disability and mental health court determinations about fitness to stand trial
ConclusionsSeverity of cognitive disability is associated with determinations of unfitness but does not predict determinations of unsoundness in the Queensland Mental Health Court. Psychiatric assessments of cognitive impairment play a pivotal role in mental health court determinations for people with cognitive disability. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Authors: J. T. Young, F. J. Davis, S. Wardale, M. Vassos, K. Dooren, K. Nankervis, N. G. Lennox Tags: Original Manuscript Source Type: research

Issue Information
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 19, 2018 Category: Disability Tags: Issue Information Source Type: research

Convergent validity of actigraphy with polysomnography and parent reports when measuring sleep in children with Down syndrome
Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 281-291, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 5, 2018 Category: Disability Source Type: research

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Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 281-291, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 5, 2018 Category: Disability Source Type: research

Prevalence and patterns of anti ‐epileptic medication prescribing in the treatment of epilepsy in older adults with intellectual disabilities
ConclusionsPrevalence of epilepsy was high among older people with ID, and half were exposed to two or more AEDs. Despite the use of AED therapy, over half had seizures in the previous 2 years. As the primary goals of optimal AED treatment are to achieve seizure freedom without unacceptable adverse effects, this was not achievable for many older patients with ID and epilepsy. Our findings indicated that people with ID and epilepsy were often exposed to psychotropic medications that may lower the seizure threshold. Regular review of epilepsy and medicines (including medicines that may interact with AEDs or lower the se...
Source: Journal of Intellectual Disability Research - January 5, 2018 Category: Disability Authors: M. O'Dwyer, J. Peklar, N. Mulryan, P. McCallion, M. McCarron, M. C. Henman Tags: Original Manuscript Source Type: research

The quality of life of children with severe developmental disabilities
ConclusionsInterventions to promote positive outcomes for children with SDD should target both characteristics of the individual and the environment. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 1, 2018 Category: Disability Authors: B. L. Ncube, A. Perry, J. A. Weiss Tags: Original Manuscript Source Type: research

Convergent validity of actigraphy with polysomnography and parent reports when measuring sleep in children with Down syndrome
ConclusionOur current data suggest that actigraph watches demonstrate convergent validity and are sensitive to measuring certain sleep constructs (duration, efficiency) in children with Down syndrome. However, parent reports, such as the Children's Sleep Habits Questionnaire, may be measuring other sleep constructs. These findings highlight the importance of selecting measures of sleep related to target concerns. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 1, 2018 Category: Disability Authors: A. J. Esbensen, E. K. Hoffman, E. Stansberry, R. Shaffer Tags: Original Manuscript Source Type: research

The Spanish version of the Self ‐Determination Inventory Student Report: application of item response theory to self‐determination measurement
ConclusionsThese findings further support the instrument's psychometric properties and outline future research directions. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 28, 2017 Category: Disability Authors: C. Mumbard ó‐Adam, J. Guàrdia‐Olmos, C. Giné, S. K. Raley, K. A. Shogren Tags: Original Manuscript Source Type: research

The Spanish version of the Self ‐Determination Inventory Student Report: application of item response theory to self‐determination measurement
Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 303-311, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 28, 2017 Category: Disability Source Type: research

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Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 303-311, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 28, 2017 Category: Disability Source Type: research

Links between sleep and daytime behaviour problems in children with Down syndrome
ConclusionThe study findings suggest that sleep problems have complex relationships to both parent‐reported and teacher‐reported daytime behaviour concerns in children with Down syndrome. These findings have implications for understanding the factors impacting behavioural concerns and their treatment in school‐age children with Down syndrome. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 28, 2017 Category: Disability Authors: A. J. Esbensen, E. K. Hoffman, D. W. Beebe, K. C. Byars, J. Epstein Tags: Original Manuscript Source Type: research

High prevalence of diabetes mellitus, hypertension and obesity among persons with a recorded diagnosis of intellectual disability or autism spectrum disorder
ConclusionsDiabetes and blood pressure health screening, along with efforts to prevent development of obesity already in childhood, are necessary for individuals with IDs and ASD. We believe that there is a need for adapted community‐based health promotion programmes to ensure more equitable health for these populations. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 27, 2017 Category: Disability Authors: E. Flygare Wall én, G. Ljunggren, A. C. Carlsson, D. Pettersson, P. Wändell Tags: Original Manuscript Source Type: research

A systematic review and meta ‐analysis of interventions to increase physical activity in children and adolescents with intellectual disabilities
Abstract BackgroundIncreasing physical activity (PA) through intervention can promote physical and mental health benefits in children and adolescents. However, children and adolescents with intellectual disabilities (ID) have consistently been shown to engage in low levels of PA, which are insufficient for long‐term health. Despite this, little is known about the effectiveness of interventions to increase PA in children and adolescents with ID. The aims of this study were therefore to systematically review how effective interventions are at increasing PA levels in children and adolescents with ID and to further examine w...
Source: Journal of Intellectual Disability Research - December 26, 2017 Category: Disability Authors: A. M. McGarty, S. J. Downs, C. A. Melville, L. Harris Tags: Original Manuscript Source Type: research

A systematic review and meta ‐analysis of interventions to increase physical activity in children and adolescents with intellectual disabilities
Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 312-329, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 26, 2017 Category: Disability Source Type: research

High prevalence of diabetes mellitus, hypertension and obesity among persons with a recorded diagnosis of intellectual disability or autism spectrum disorder
Journal of Intellectual Disability Research,Volume 62, Issue 4, Page 269-280, April 2018. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 26, 2017 Category: Disability Source Type: research