The effectiveness of staff training focused on increasing emotional intelligence and improving interaction between support staff and clients
ConclusionsA staff training aimed at emotional intelligence and staff‐client interactions is effective in improving emotional intelligence and coping styles of support staff. However, the need for more research aiming at the relationship between staff characteristics, organisational factors and their mediating role in the effectiveness of staff training is emphasised. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 29, 2014 Category: Disability Authors: L. J. M. Zijlmans, P. J. C. M. Embregts, L. Gerits, A. M. T. Bosman, J. J. L. Derksen Tags: Original Article Source Type: research

Predictors of distress and well‐being in parents of young children with developmental delays and disabilities: the importance of parent perceptions
ConclusionsThe results of this study highlight not only the importance of including positive as well as negative outcomes in research with parents but also the importance of including parent characteristics such as coping strategies (e.g. reframing and empowerment/self‐efficacy) as potential predictors of outcome in such studies. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 29, 2014 Category: Disability Authors: P. Minnes, A. Perry, J. A. Weiss Tags: Original Article Source Type: research

Comparison of social circumstances, substance use and substance‐related harm in soon‐to‐be‐released prisoners with and without intellectual disability
In this study we aimed to describe social circumstances, patterns of substance use and substance‐related harm in soon‐to‐be‐released prisoners with ID. We compare this group with those without ID, to better understand how the health‐related needs of this group compare with the ‘mainstream’ prison population. MethodsData came from face‐to‐face, confidential interviews with 1325 adult prisoners in seven adult prisons in Queensland, Australia. Prisoners with ID were identified using the Hayes Ability Screening Index (HASI). We used cross‐sectional data to examine (i) demographics and criminographic...
Source: Journal of Intellectual Disability Research - August 29, 2014 Category: Disability Authors: A. Bhandari, K. Dooren, G. Eastgate, N. Lennox, S. A. Kinner Tags: Original Articles Source Type: research

The association between a single bout of moderate physical activity and executive function in young adults with Down syndrome: a preliminary study
ConclusionsGiven the improved inhibition ability, exercise may be an effective intervention, even in a signal session. However, only a few studies have focused on this topic. Based on theoretical models linking exercise to executive function, we proposed that exercise may increase arousal status or enhance neural transmission. Hence, future work is needed to examine the exact mechanism in the relationship between exercise and executive function for individuals with DS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 29, 2014 Category: Disability Authors: C.‐C. (JJ) Chen, S. D. R. Ringenbach, D. Crews, P. H. Kulinna, Eric L. Amazeen Tags: Original Articles Source Type: research

Drawing ability in typical and atypical development; colour cues and the effect of oblique lines
ConclusionWe suggest that colour acted as a cue to individuate the dots, thus enabling participants to better ascertain the spatial relationships between the parts of each figure, to determine the start and end points of component lines, and to determine the correspondence between the model and their replication. The reduced facilitation in the WS group is discussed in relation to the effect of oblique versus non‐oblique lines, the use of atypical drawing strategies, and reduced attention to the model when drawing the replication. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 28, 2014 Category: Disability Authors: E. K. Farran, G. F. Dodd Tags: Original Article Source Type: research

Developmental changes in cognitive and behavioural functioning of adolescents with fragile‐X syndrome
ConclusionThese findings revealed specific developmental changes in cognitive and behavioural functioning of individuals with fragile‐X syndrome, likely related to a progressive maturation of brain systems devoted to attentional control. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 27, 2014 Category: Disability Authors: A. Frolli, S. Piscopo, M. Conson Tags: Original Article Source Type: research

Ethnicity and self‐reported experiences of stigma in adults with intellectual disability in Cape Town, South Africa
ConclusionInterventions should target the Black African community in South Africa and should include the reduction of both public stigma and self‐reported stigma. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 27, 2014 Category: Disability Authors: A. Ali, E. Kock, C. Molteno, N. Mfiki, M. King, A. Strydom Tags: Original Article Source Type: research

Developmental trajectories in behavioural phenotypes
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 8, 2014 Category: Disability Authors: Chris Oliver Tags: Editorial Source Type: research

‘It's made all of us bond since that course…’ – a qualitative study of service users' experiences of a CBT anger management group intervention
ConclusionsThe results will be discussed in the context of applying group CBT for adults with ID and implications for service development. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 5, 2014 Category: Disability Authors: P. McMahon, B. Stenfert Kroese, A. Jahoda, A. Stimpson, N. Rose, J. Rose, J. Townson, K. Hood, P. Willner Tags: Mental health Source Type: research

The provision of aids and adaptations, risk assessments, and incident reporting and recording procedures in relation to injury prevention for adults with intellectual disabilities: cohort study
ConclusionMore work is needed to better understand, and more fully incorporate, best practice injury prevention measures into routine support planning for adults with IDs within a positive risk‐taking and risk reduction framework. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 31, 2014 Category: Disability Authors: J. Finlayson, A. Jackson, D. Mantry, J. Morrison, S.‐A. Cooper Tags: Original Article Source Type: research

Relationship dimensions of the ‘Down syndrome advantage’
ConclusionsChildren with Down syndrome and their mothers have more positive interactions than children with other developmental disabilities, both in terms of the responsiveness of mothers and of child responses contingent on maternal behaviour. These findings suggest that both children with Down syndrome themselves and their mothers are contributing to a Down syndrome advantage. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 29, 2014 Category: Disability Authors: D. B. Mitchell, P. Hauser‐Cram, M. K. Crossman Tags: Original Article Source Type: research

A tale worth telling: the impact of the diagnosis experience on disclosure of genetic disorders
ConclusionsAs expected this study highlights how difficult most parents find the diagnosis experience. Importantly, the data indicate that the personal experiences the parents have can have a long‐term impact on how well they cope with telling their child about the diagnosis. It is important for clinicians to consider the long‐term ramifications of the diagnosis experience and give the parents opportunities; through, for instance, psychoeducation to prepare for telling their child about the diagnosis. Further research is warranted to explore what type of information would be useful for parents to receive. (Source: Jour...
Source: Journal of Intellectual Disability Research - July 25, 2014 Category: Disability Authors: J. Goodwin, K. Schoch, V. Shashi, S. R. Hooper, O. Morad, M. Zalevsky, D. Gothelf, L. E. Campbell Tags: Original Article Source Type: research

Atypical development of configural face recognition in children with autism, Down syndrome and Williams syndrome
ConclusionWe discuss the implications for the nature of face processing within the respective developmental disorders, and how the cross‐sectional syndrome comparison informs the constraints that shape the typical development of face recognition. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 25, 2014 Category: Disability Authors: D. Dimitriou, H. C. Leonard, A. Karmiloff‐Smith, M. H. Johnson, M. S. C. Thomas Tags: Original Article Source Type: research

The impact of individual and organisational factors on engagement of individuals with intellectual disability living in community group homes: a multilevel model
ConclusionThese results suggested that engagement is a dynamic construct. The extent to which an individual with ID is engaged in daily life is a result of interplay between the individual's characteristics and the group home environment. Future research is needed to investigate the influence of variables specific to the group home on the engagement level of individuals with disabilities. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 25, 2014 Category: Disability Authors: X. Qian, R. Tichá, S. A. Larson, R. J. Stancliffe, A. Wuorio Tags: Original Article Source Type: research

A preliminary controlled trial of a trans‐diagnostic programme for cognitive behaviour therapy with adults with intellectual disability
ConclusionsIt was possible to treat a range of symptoms and psychiatric diagnoses with a general trans‐diagnostic CBT manual. The effects of therapy were promising, suggesting that the participants could respond to treatment in a meaningful and helpful manner and supporting the case for further evaluation of the trans‐diagnostic approach in ID. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 21, 2014 Category: Disability Authors: W. R. Lindsay, S. Tinsley, N. Beail, R. P. Hastings, A. Jahoda, J. L. Taylor, C. Hatton Tags: Original Article Source Type: research

Norms of the Attitudes Toward Intellectual Disability Questionnaire
ConclusionThese norms will provide an essential tool to compare different groups and assess the effectiveness of various public campaigns to encourage more positive attitudes towards persons with ID. These norms would also allow international comparisons. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 21, 2014 Category: Disability Authors: D. Morin, M. Rivard, C. P. Boursier, A. G. Crocker, J. Caron Tags: Original Article Source Type: research

Social networks of people with mild intellectual disabilities: characteristics, satisfaction, wishes and quality of life
ConclusionsThe significance of family and the importance of high‐quality interpersonal relationships between professional and client in the lives of young adults with ID cannot be overestimated. Although measures of satisfaction and wishes can have limitations, in actual practice it is considered useful to assess the opinions of clients with respect to their social networks. Interventions can then be tailored to the needs and wishes of the persons themselves. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 1, 2014 Category: Disability Authors: A. E. Asselt‐Goverts, P. J. C. M. Embregts, A. H. C. Hendriks Tags: Original Article Source Type: research

Beyond the floor effect on the Wechsler Intelligence Scale for Children – 4th Ed. (WISC‐IV): calculating IQ and Indexes of subjects presenting a floored pattern of results
ConclusionsThe Authors reflect on clinical utility of this method and on the meaning of raw score of 0 on subtest. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 1, 2014 Category: Disability Authors: A. Orsini, L. Pezzuti, S. Hulbert Tags: Original Articles Source Type: research

Inpatient Children and Adolescent Mental Health Services (CAMHS): outcomes of young people with and without intellectual disability
ConclusionsThis study needs replication because of the small sample and incomplete data but it suggests that young people with ID and mental disorders significantly improve clinically when admitted to hospital as do their non‐disabled peers. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 1, 2014 Category: Disability Authors: R. Chaplin, S. Roach, H. Johnson, P. Thompson Tags: Mental health Source Type: research

The relationship between area deprivation and contact with community intellectual disability psychiatry
ConclusionsIn the area under study, contact with ID psychiatry was greater in more deprived areas. Given the high psychiatric morbidity of people with ID, if services do not adjust for deprivation, this may lead to further discrimination in an already disadvantaged population. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 1, 2014 Category: Disability Authors: L. Nicholson, H. Hotchin Tags: Brief Report Source Type: research

ASD, ADHD, mental health conditions and psychopharmacology in neurogenetic syndromes: parent survey
ConclusionReasons for a lower recognition of ASD, ADHD and mental health conditions in clinical practice compared with research studies may include ‘diagnostic overshadowing’ due to presence of intellectual disability and a genetic syndrome. However, there may also be a lack of belief in the utility of such diagnoses in neurogenetic syndromes among relevant professionals and/or lack of access to professionals with sufficient expertise in the recognition of such diagnoses in those with neurogenetic syndromes. The low rates of prescribing of medication for behavioural/psychiatric reasons may reflect the low level...
Source: Journal of Intellectual Disability Research - June 26, 2014 Category: Disability Authors: C. Reilly, J. Senior, L. Murtalgh Tags: Original Article Source Type: research

Development of physical fitness in children with intellectual disabilities
ConclusionsDespite statistically significant development of physical fitness in children with ID, their physical fitness levels should be stimulated. This should start already in young children (
Source: Journal of Intellectual Disability Research - June 23, 2014 Category: Disability Authors: E. Hartman, J. Smith, M. Westendorp, C. Visscher Tags: Original Article Source Type: research

Medical, psychological and social features in a large cohort of adults with Prader–Willi syndrome: experience from a dedicated centre in France
ConclusionsAdult patients with PWS showed high prevalence of comorbid health problems that need to be monitored for early treatment. Some of them are influenced by genotype and age. Another salient problem concerns the lack of adapted structures for better social integration. Further data about the real life and health conditions of adults with PWS are necessary to further our knowledge of the natural history of the disease and to design appropriate care strategies. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 20, 2014 Category: Disability Authors: V. Laurier, A. Lapeyrade, P. Copet, G. Demeer, M. Silvie, E. Bieth, M. Coupaye, C. Poitou, F. Lorenzini, F. Labrousse, C. Molinas, M. Tauber, D. Thuilleaux, J. Jauregi Tags: Original Article Source Type: research

‘To move or not to move’: a national survey among professionals on beliefs and considerations about the place of end‐of‐life care for people with intellectual disabilities
ConclusionsProfessionals agree that end‐of‐life care for people with ID should preferably take place in the client's home environment, even when nursing expertise, experience and adequate equipment are not (yet) in place. Nonetheless, a lack of expertise in end‐of‐life care is the foremost consideration in decisions to move a client. If ID care services want to promote end‐of‐life care in the client's own home, we recommend formulating a policy on how to realise end‐of‐life care in the client's own home environment and provide sufficient training and support for staff. To involve people with ID as much as p...
Source: Journal of Intellectual Disability Research - May 27, 2014 Category: Disability Authors: N. Bekkema, A. J. E. Veer, A. M. A Wagemans, C. M. P. M. Hertogh, A. L. Francke Tags: Original Article Source Type: research

Predicting reading comprehension academic achievement in late adolescents with velo‐cardio‐facial (22q11.2 deletion) syndrome (VCFS): a longitudinal study
Conclusions Childhood predictors of late adolescent reading comprehension in VCFS differ in some meaningful ways from predictors in the non‐VCFS population. These results offer some guidance for how best to consider intervention efforts to improve reading comprehension in the VCFS population. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - May 26, 2014 Category: Disability Authors: K. Antshel, B. Hier, W. Fremont, S. V. Faraone, W. Kates Tags: Original Article Source Type: research

Psychological interventions for women with intellectual disabilities and forensic care needs: a systematic review of the literature
ConclusionsThis review has identified a significant gap in relation to research‐based therapies for women with ID and forensic care needs. In particular, more research is needed focusing on women with a dual diagnosis of ID and psychiatric disorder who present challenging or criminal behaviour. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - May 9, 2014 Category: Disability Authors: M. Hellenbach, M. Brown, T. Karatzias, R. Robinson Tags: Mental health Source Type: research

Initiation of activities and alertness in individuals with profound intellectual and multiple disabilities
ConclusionsThese results have striking implications for the lives of individuals with PIMD. It is quite possible that DSPs often act too quickly, whereas they would be better off waiting for a reaction on the part of their client. In general, DSPs need to find a balance between being passive themselves and promoting in the individual with PIMD a state of being as active and alert as possible. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - May 8, 2014 Category: Disability Authors: V. Munde, C. Vlaskamp Tags: Original Article Source Type: research

Clumsiness in fine motor tasks: evidence from the quantitative drawing evaluation of children with Down Syndrome
DiscussionWhile clumsiness in gross movements manifests mainly as slow, less efficient movements, it manifests as high velocity and inaccurate movements in fine motor tasks such as drawing. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 29, 2014 Category: Disability Authors: S. L. Vimercati, M. Galli, G. Stella, G. Caiazzo, A. Ancillao, G. Albertini Tags: Original Article Source Type: research

Knowledge exchange and integrated services: experiences from an integrated community intellectual (learning) disability service for adults
ConclusionsKnowledge exchange processes play an important role in the functioning of integrated services incorporating health and care management components. Managers need to ensure that knowledge exchange processes facilitate both explicit and tacit knowledge exchange and do not rely excessively on informal, ‘ad hoc’ interactions. Research on integrated services should take account of micro‐scale knowledge exchange dynamics and relationships between social dynamics and physical factors. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 25, 2014 Category: Disability Authors: C. Farrington, I. C. H. Clare, A. J. Holland, M. Barrett, E. Oborn Tags: Original Article Source Type: research

Improving health behaviours of Latina mothers of youths and adults with intellectual and developmental disabilities
ConclusionsWhile additional research is needed to determine long‐term effects and to replicate findings, our results suggest that this culturally sensitive health intervention is a promising way to increase health behaviours which may lead to overall good health for Latina mothers who care for children with IDD across the lifespan. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 25, 2014 Category: Disability Authors: S. Magaña, H. Li, E. Miranda, R. Paradiso de Sayu Tags: Original Articles Source Type: research

Men with intellectual disabilities with a history of sexual offending: empathy for victims of sexual and non‐sexual crimes
ConclusionsThe findings suggest that it is important include interventions within treatment programmes that attempt to improve empathy and perspective‐taking. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 25, 2014 Category: Disability Authors: O. J. Hockley, P. E. Langdon Tags: Mental health Source Type: research

Drug administration via enteral feeding tubes in residential care facilities for individuals with intellectual disability: an observational study
ConclusionThis study found that current guidelines concerning medication preparation and administration through EFT are often not followed in Belgian RCFs for individuals with ID. Further research aimed at understanding why current guidelines are not followed seems warranted. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 25, 2014 Category: Disability Authors: E. Joos, E. Mehuys, J. Van Bocxlaer, J. P. Remon, M. Van Winckel, K. Boussery Tags: Original Article Source Type: research

Adverse health in parents of children with disabilities and chronic health conditions: a meta‐analysis using the Parenting Stress Index's Health Sub‐domain
Abstract BackgroundCompared with parents of same‐aged children without disabilities, parents of children with disabilities and with chronic health conditions (CHC) show higher levels of stress and depression. Fewer studies, however, examine the physical health of these parents, and studies report mixed findings. Many studies, however, report mother's self‐reported health using the Health Sub‐domain of Abidin's Parenting Stress Index (PSI). We therefore conducted a meta‐analysis comparing the physical health of parents of children with developmental disabilities (DD) and CHC vs. parents of children without DD/CHC in...
Source: Journal of Intellectual Disability Research - April 24, 2014 Category: Disability Authors: N. Miodrag, M. Burke, E. Tanner‐Smith, R. M. Hodapp Tags: Original Article Source Type: research

Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability?
ConclusionFindings from this study point to the importance of supporting caregivers of individuals with ASD to decrease their feelings of stigma. It is also important to further develop scales measuring affiliate stigma in order to capture the multi‐dimensional nature of the concept. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 24, 2014 Category: Disability Authors: S. Werner, C. Shulman Tags: Original Articles Source Type: research

What WE Have Done: An Oral History of the Disability Rights Movement by Fred Pelka University of Massachusetts Press, Amherst and Boston. 2012. 592 pp., £25.95 (soft cover). ISBN 978‐1558499195.
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 10, 2014 Category: Disability Authors: Claire Kelly Tags: Book review Source Type: research

Risk factors associated with the mental health of fathers of children with an intellectual disability in Australia
ConclusionThis study is among one of the first to report the mental health of fathers of children with a disability in Australia. Findings highlight that some fathers of children with ID are at heightened risk of experiencing mental health difficulties, underscoring the importance of the provision of information and interventions to promote their mental health. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 20, 2014 Category: Disability Authors: R. Giallo, M. Seymour, J. Matthews, S. Gavidia‐Payne, A. Hudson, C. Cameron Tags: Original Article Source Type: research

Predictors of sense of coherence in typically developing adolescent siblings of individuals with autism spectrum disorder
ConclusionsASD severity and TD adolescent sibling resources influence sense of coherence in adolescent TD siblings of individuals with ASD. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 20, 2014 Category: Disability Authors: L. O. Smith, J. H. Elder, E. A. Storch, M. A. Rowe Tags: Original Article Source Type: research

Neonatal diagnosis of Down syndrome in the Netherlands: suspicion and communication with parents
Abstract ObjectivesTo analyse which dysmorphic features are most recognised in newborns with Down syndrome (DS). Furthermore to evaluate the communication techniques used by clinicians to inform parents about the postnatal diagnosis and compare these to current best practice guidelines. Study designProspective study of a birth cohort of newborns with DS born between 1 January 2003 and 31 December 2006 registered by the Dutch Paediatric Surveillance Unit (DPSU). ResultsA total of 586 children with trisomy 21 were analysed. Most recognised dysmorphic features in DS newborns were ‘upslanted palpebral fissures’ (74...
Source: Journal of Intellectual Disability Research - March 14, 2014 Category: Disability Authors: M. D. Groot‐van der Mooren, R. J. B. J. Gemke, M. C. Cornel, M. E. Weijerman Tags: Original Article Source Type: research

Factor validity and reliability of the Aberrant Behavior Checklist‐Community (ABC‐C) in an Indian population with intellectual disability
In this study realised in collaboration with the department of psychology and parapsychology of Andhra University, validation of the Aberrant Behavior Checklist‐Community (ABC‐C) in Telugu, the official language of Andhra Pradesh, one of India's 28 states, was carried out. MethodsTo assess the factor validity and reliability of this Telugu version, 120 participants with moderate to profound intellectual disability (94 men and 26 women, mean age 25.2, SD 7.1) were rated by the staff of the Lebenshilfe Institution for Mentally Handicapped in Visakhapatnam, Andhra Pradesh, India. Rating data were analysed with a confirmat...
Source: Journal of Intellectual Disability Research - March 11, 2014 Category: Disability Authors: R. Lehotkay, T. Saraswathi Devi, M. V. R. Raju, P. K. Bada, S. Nuti, N. Kempf, G. Galli Carminati Tags: Original Article Source Type: research

Maternal perceptions of sibling adaptation in Korean families of children with Down syndrome
ConclusionsThese findings highlight the importance of familial contexts in understanding sibling adaptation. Knowledge of family factors associated with better adaptation in Korean siblings of child with DS will facilitate the development of culturally appropriate interventions for these children and their families. In addition, an awareness of demographic characteristics associated with sibling adaptation will help health care professionals identify siblings who are at increased risk of experiencing difficulties in adapting. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 11, 2014 Category: Disability Authors: H. Choi, M. Van Riper Tags: Original Article Source Type: research

The relationship between living arrangement and adherence to antiepileptic medications among individuals with developmental disabilities
Abstract BackgroundNon‐adherence to antiepileptic drugs (AEDs) is associated with considerable morbidity and mortality in the general population but little is known about adherence in individuals with intellectual disability (ID). MethodUsing the records of a closed pharmacy billing system over a 30 month period, we examined the medication non‐adherence rates for AEDs among 793 individuals with ID. We calculated the medication possession ratio (number of days each participant was in possession of an AED), and defined non‐adherence as 25% or more of the exposure days without the possession of an AED. All participants ...
Source: Journal of Intellectual Disability Research - March 11, 2014 Category: Disability Authors: C. L. Hom, P. Touchette, V. Nguyen, G. Fernandez, A. Tournay, L. Plon, P. Himber, I. T. Lott Tags: Brief Report Source Type: research

Are opioid antagonists effective in attenuating the core symptoms of autism spectrum conditions in children: a systematic review
ConclusionsNaltrexone may improve hyperactivity and restlessness in children with autism but there was not sufficient evidence that it had an impact on core features of autism in majority of the participants. It is likely that a subgroup of children with autism and abnormal endorphin levels may respond to naltrexone and identifying the characteristics of these children must become a priority. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 4, 2014 Category: Disability Authors: A. Roy, M. Roy, S. Deb, G. Unwin, A. Roy Tags: Mental health Source Type: research

Psychopathology in adults with 22q11 deletion syndrome and moderate and severe intellectual disability
ConclusionThis is the first report addressing adult patients with 22q11DS and moderate to severe ID. Overall we found high levels of psychopathology with higher scores of psychopathology in the intellectual decline group. Life time psychosis seems to be related to deterioration. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 17, 2014 Category: Disability Authors: L. J. M. Evers, T. A. M. J. Amelsvoort, M. J. J. M. Candel, H. Boer, J. J. M Engelen, L. M. G. Curfs Tags: Original Article Source Type: research

Consistency between research and clinical diagnoses of autism among boys and girls with fragile X syndrome
ConclusionsASD in FXS may be under‐diagnosed in clinical/educational settings, which raises questions regarding access to ASD‐related services. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 17, 2014 Category: Disability Authors: J. Klusek, G. E. Martin, M. Losh Tags: Original Article Source Type: research

The stories of ‘snake children’: killing and abuse of children with developmental disabilities in West Africa
ConclusionKilling and abuse of children with ID are explained within the context of indigenous African religions, animism and folk culture. The concept of disability ‘otherness’ and inferiority is also explored as a framework for reflection and ethical debate. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 28, 2014 Category: Disability Authors: Mojdeh Bayat Tags: Original Article Source Type: research

The accuracy of the Child and Adolescent Intellectual Disability Screening Questionnaire (CAIDS‐Q) in classifying severity of impairment: a brief report
ConclusionsWhile the CAIDS‐Q can accurately discriminate between those with and without ID, and provides a heuristic for severity of ID, the results indicate that it does not reliably identify whether an individual falls into the severe or significant category of intellectual impairment. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 27, 2014 Category: Disability Authors: A. L. Murray, K. McKenzie Tags: Brief report Source Type: research

The neurobiology of aggression: implications for the pharmacotherapy of aggressive challenging behaviour by people with intellectual disabilities
ConclusionWith the possible exception of risperidone, there is no reliable evidence that antidepressant, neuroleptic or anticonvulsant drugs are effective treatments for aggression by people with ID. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 27, 2014 Category: Disability Authors: Paul Willner Tags: Invited Review Source Type: research

Characteristics and the trajectory of psychotropic medication use in general and antipsychotics in particular among adults with an intellectual disability who exhibit aggressive behaviour
ConclusionsTo our knowledge, this is the first ever comprehensive follow‐up study of use of psychotropic medications in general but antipsychotics in particular over a 6‐month period in adults with ID and aggressive behaviour, in a clinic‐based community setting which also compared the trajectory of severity of aggressive behaviour with that of antipsychotic medication dose. Our study shows that not only the use of psychotropic medication is common among adults with ID who attend psychiatric clinics for aggressive behaviour, the use of polypharmacy of psychotropic medications in general and high dose of antipsychotic...
Source: Journal of Intellectual Disability Research - January 23, 2014 Category: Disability Authors: S. Deb, G. Unwin, T. Deb Tags: Original Article Source Type: research

Marital satisfaction of Chinese mothers of children with autism and intellectual disabilities in Hong Kong
ConclusionTo address the negative consequences brought on by stigma, measures can be taken to prevent stigmatisation and minimise the harmful effects. To alleviate mothers' perceived burden, Acceptance and Commitment Therapy, mutual support groups and psycho‐educational and skills training programmes can be conducted for the mothers. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 22, 2014 Category: Disability Authors: S. Y. C. L. Kwok, C. L. K. Leung, D. F. K. Wong Tags: Original Article Source Type: research

Eliciting perceptions of satisfaction with services and supports from persons with intellectual disability and developmental disabilities: a review of the literature
ConclusionsAssessing the satisfaction with supports and services of individuals with ID and DD is complex particularly for persons with extensive support needs. Continued research using varied conceptual frameworks and new technologies is needed. Also helpful will be teaching persons with disabilities about the assessment process and how to use its results. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 17, 2014 Category: Disability Authors: S. R. Copeland, R. Luckasson, R. Shauger Tags: Original Article Source Type: research