Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians
CONCLUSIONS: There were similarities and differences between respondents across the country in the perceived impact of the pandemic, mental health scores, and strategies used to cope with stress. Recommendations: strategies to increase PAG access for PIBD and their PG during pandemics and natural disasters, ongoing assessment and adaptation to provide supportive resources to specific patient subgroups.PMID:38099480 | DOI:10.1080/17474086.2023.2277323 (Source: Expert Review of Hematology)
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Sylvia von Mackensen Maria E Santaella Cynthia D Nichols Kate Khair Angela Y Lambing Michelle L Witkop Source Type: research
National strategic advocacy to manage patients with inherited bleeding disorders in low and lower-middle income countries
Expert Rev Hematol. 2023 Jul-Dec;16(12):1063-1076. doi: 10.1080/17474086.2023.2293092. Epub 2023 Dec 18.ABSTRACTINTRODUCTION: Inherited bleeding disorders (IBDs) including hemophilia, von Willebrand disease, platelet disorders, mucocutaneous bleeding disorders and coagulation factor deficiencies are rarely found and under-recognized in low and lower-middle-income countries. Some patients succumbed to serious bleeding without diagnosis and treatment during childhood.AREA COVERED: Diagnosis, management, and prevention should be integrated into the existing health care system. Although some countries have not implemented appr...
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Ampaiwan Chuansumrit Theera Ruchutrakul Nongnuch Sirachainan Pimpun Kitpoka Monratta Panuwannakorn Panyu Panburana Monthon Suwannuraks Nantana Sri-Udomporn Chusak Kijkunasathian Suphaneewan Jaovisidha Chirawat Utamakul Rungrote Natesirinilkul Bunchoo Pong Source Type: research
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians
CONCLUSIONS: There were similarities and differences between respondents across the country in the perceived impact of the pandemic, mental health scores, and strategies used to cope with stress. Recommendations: strategies to increase PAG access for PIBD and their PG during pandemics and natural disasters, ongoing assessment and adaptation to provide supportive resources to specific patient subgroups.PMID:38099480 | DOI:10.1080/17474086.2023.2277323 (Source: Expert Review of Hematology)
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Sylvia von Mackensen Maria E Santaella Cynthia D Nichols Kate Khair Angela Y Lambing Michelle L Witkop Source Type: research
National strategic advocacy to manage patients with inherited bleeding disorders in low and lower-middle income countries
Expert Rev Hematol. 2023 Jul-Dec;16(12):1063-1076. doi: 10.1080/17474086.2023.2293092. Epub 2023 Dec 18.ABSTRACTINTRODUCTION: Inherited bleeding disorders (IBDs) including hemophilia, von Willebrand disease, platelet disorders, mucocutaneous bleeding disorders and coagulation factor deficiencies are rarely found and under-recognized in low and lower-middle-income countries. Some patients succumbed to serious bleeding without diagnosis and treatment during childhood.AREA COVERED: Diagnosis, management, and prevention should be integrated into the existing health care system. Although some countries have not implemented appr...
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Ampaiwan Chuansumrit Theera Ruchutrakul Nongnuch Sirachainan Pimpun Kitpoka Monratta Panuwannakorn Panyu Panburana Monthon Suwannuraks Nantana Sri-Udomporn Chusak Kijkunasathian Suphaneewan Jaovisidha Chirawat Utamakul Rungrote Natesirinilkul Bunchoo Pong Source Type: research
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians
CONCLUSIONS: There were similarities and differences between respondents across the country in the perceived impact of the pandemic, mental health scores, and strategies used to cope with stress. Recommendations: strategies to increase PAG access for PIBD and their PG during pandemics and natural disasters, ongoing assessment and adaptation to provide supportive resources to specific patient subgroups.PMID:38099480 | DOI:10.1080/17474086.2023.2277323 (Source: Expert Review of Hematology)
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Sylvia von Mackensen Maria E Santaella Cynthia D Nichols Kate Khair Angela Y Lambing Michelle L Witkop Source Type: research
National strategic advocacy to manage patients with inherited bleeding disorders in low and lower-middle income countries
Expert Rev Hematol. 2023 Jul-Dec;16(12):1063-1076. doi: 10.1080/17474086.2023.2293092. Epub 2023 Dec 18.ABSTRACTINTRODUCTION: Inherited bleeding disorders (IBDs) including hemophilia, von Willebrand disease, platelet disorders, mucocutaneous bleeding disorders and coagulation factor deficiencies are rarely found and under-recognized in low and lower-middle-income countries. Some patients succumbed to serious bleeding without diagnosis and treatment during childhood.AREA COVERED: Diagnosis, management, and prevention should be integrated into the existing health care system. Although some countries have not implemented appr...
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Ampaiwan Chuansumrit Theera Ruchutrakul Nongnuch Sirachainan Pimpun Kitpoka Monratta Panuwannakorn Panyu Panburana Monthon Suwannuraks Nantana Sri-Udomporn Chusak Kijkunasathian Suphaneewan Jaovisidha Chirawat Utamakul Rungrote Natesirinilkul Bunchoo Pong Source Type: research
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians
CONCLUSIONS: There were similarities and differences between respondents across the country in the perceived impact of the pandemic, mental health scores, and strategies used to cope with stress. Recommendations: strategies to increase PAG access for PIBD and their PG during pandemics and natural disasters, ongoing assessment and adaptation to provide supportive resources to specific patient subgroups.PMID:38099480 | DOI:10.1080/17474086.2023.2277323 (Source: Expert Review of Hematology)
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Sylvia von Mackensen Maria E Santaella Cynthia D Nichols Kate Khair Angela Y Lambing Michelle L Witkop Source Type: research
National strategic advocacy to manage patients with inherited bleeding disorders in low and lower-middle income countries
Expert Rev Hematol. 2023 Dec 15:1-14. doi: 10.1080/17474086.2023.2293092. Online ahead of print.ABSTRACTINTRODUCTION: Inherited bleeding disorders (IBDs) including hemophilia, von Willebrand disease, platelet disorders, mucocutaneous bleeding disorders and coagulation factor deficiencies are rarely found and under-recognized in low and lower-middle-income countries. Some patients succumbed to serious bleeding without diagnosis and treatment during childhood.AREA COVERED: Diagnosis, management, and prevention should be integrated into the existing health care system. Although some countries have not implemented appropriate ...
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Ampaiwan Chuansumrit Theera Ruchutrakul Nongnuch Sirachainan Pimpun Kitpoka Monratta Panuwannakorn Panyu Panburana Monthon Suwannuraks Nantana Sri-Udomporn Chusak Kijkunasathian Suphaneewan Jaovisidha Chirawat Utamakul Rungrote Natesirinilkul Bunchoo Pong Source Type: research
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians
CONCLUSIONS: There were similarities and differences between respondents across the country in the perceived impact of the pandemic, mental health scores, and strategies used to cope with stress. Recommendations: strategies to increase PAG access for PIBD and their PG during pandemics and natural disasters, ongoing assessment and adaptation to provide supportive resources to specific patient subgroups.PMID:38099480 | DOI:10.1080/17474086.2023.2277323 (Source: Expert Review of Hematology)
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Sylvia von Mackensen Maria E Santaella Cynthia D Nichols Kate Khair Angela Y Lambing Michelle L Witkop Source Type: research
National strategic advocacy to manage patients with inherited bleeding disorders in low and lower-middle income countries
Expert Rev Hematol. 2023 Dec 15:1-14. doi: 10.1080/17474086.2023.2293092. Online ahead of print.ABSTRACTINTRODUCTION: Inherited bleeding disorders (IBDs) including hemophilia, von Willebrand disease, platelet disorders, mucocutaneous bleeding disorders and coagulation factor deficiencies are rarely found and under-recognized in low and lower-middle-income countries. Some patients succumbed to serious bleeding without diagnosis and treatment during childhood.AREA COVERED: Diagnosis, management, and prevention should be integrated into the existing health care system. Although some countries have not implemented appropriate ...
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Ampaiwan Chuansumrit Theera Ruchutrakul Nongnuch Sirachainan Pimpun Kitpoka Monratta Panuwannakorn Panyu Panburana Monthon Suwannuraks Nantana Sri-Udomporn Chusak Kijkunasathian Suphaneewan Jaovisidha Chirawat Utamakul Rungrote Natesirinilkul Bunchoo Pong Source Type: research
Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians
CONCLUSIONS: There were similarities and differences between respondents across the country in the perceived impact of the pandemic, mental health scores, and strategies used to cope with stress. Recommendations: strategies to increase PAG access for PIBD and their PG during pandemics and natural disasters, ongoing assessment and adaptation to provide supportive resources to specific patient subgroups.PMID:38099480 | DOI:10.1080/17474086.2023.2277323 (Source: Expert Review of Hematology)
Source: Expert Review of Hematology - December 15, 2023 Category: Hematology Authors: Sylvia von Mackensen Maria E Santaella Cynthia D Nichols Kate Khair Angela Y Lambing Michelle L Witkop Source Type: research
Efficacy/effectiveness and safety of emicizumab prophylaxis of people with hemophilia A: a systematic review and meta-analysis
CONCLUSIONS: Emicizumab prophylaxis was superior in reducing the ABR-all when compared with prophylaxis with FVIII or BPA.PMID:38066708 | DOI:10.1080/17474086.2023.2293096 (Source: Expert Review of Hematology)
Source: Expert Review of Hematology - December 9, 2023 Category: Hematology Authors: Roberto L úcio Muniz Ricardo Mesquita Camelo Maiara Silva Ara újo Mariana Michel Barbosa Augusto Afonso Guerra Francisco de Assis Acurcio Juliana Alvares-Teodoro Source Type: research
Efficacy/Effectiveness and safety of emicizumab prophylaxis of people with hemophilia A: a systematic review and meta-analysis
CONCLUSIONS: Emicizumab prophylaxis was superior in reducing the ABR-all when compared with prophylaxis with FVIII or BPA.PMID:38066708 | DOI:10.1080/17474086.2023.2293096 (Source: Expert Review of Hematology)
Source: Expert Review of Hematology - December 9, 2023 Category: Hematology Authors: Roberto L úcio Muniz Ricardo Mesquita Camelo Maiara Silva Ara újo Mariana Michel Barbosa Augusto Afonso Guerra Francisco de Assis Acurcio Juliana Alvares-Teodoro Source Type: research
