Staff experiences of wearing the Rainbow Badge in a paediatric hospital setting: a mixed-methods survey
Conclusions
This study demonstrates that the Rainbow Badge initiative increases staff awareness of LGBTQ+ issues and helps to create a safe, inclusive environment for staff, young people and families. (Source: Archives of Disease in Childhood)
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: O'Dwyer, C., Kehoe, A., Shanahan, D., O'Brien, W., Hall, D. Tags: Open access Original research Source Type: research
Are children living with obesity more likely to experience musculoskeletal symptoms during childhood? A linked longitudinal cohort study using primary care records
Conclusions
Girls living with obesity at the start or end of primary school are more likely to attend their GP for a musculoskeletal consultation. Routine linkage of NCMP data to EHRs provides useful insights into childhood health conditions related to excess weight in early childhood. Recognition of obesity as a contributing factor for musculoskeletal symptoms may inform clinical management, particularly in girls. (Source: Archives of Disease in Childhood)
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Firman, N., Homer, K., Harper, G., Robson, J., Dezateux, C. Tags: Press releases Original research Source Type: research
Wales Infants and childreNs Genome Service (WINGS): providing rapid genetic diagnoses for unwell children
Conclusion
This study demonstrates that trio rWGS is having a positive impact on the care of acutely unwell infants and children in an NHS setting. In particular, the study shows that rWGS can be applied in an NHS setting, achieving a diagnostic yield comparable with the previously published diagnostic yields achieved in research settings, while also helping to improve patient care and management. (Source: Archives of Disease in Childhood)
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Sloper, E., Jezkova, J., Thomas, J., Dawson, K., Halstead, J., Gardner, J., Burke, K., Oruganti, S., Calvert, J., Evans, J., Anderson, S., Corrin, S., Pottinger, C., Murch, O. Tags: Original research Source Type: research
Hospital care in the first 10 years of life of children with congenital anomalies in six European countries: data from the EUROlinkCAT cohort linkage study
Conclusions
Children with a congenital anomaly consume a significant proportion of hospital care resources. Priority should be given to public health primary prevention measures to reduce the risk of congenital anomalies. (Source: Archives of Disease in Childhood)
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Morris, J. K., Loane, M., Wahlich, C., Tan, J., Baldacci, S., Ballardini, E., Cavero-Carbonell, C., Damkjaer, M., Garcia-Villodre, L., Gissler, M., Given, J., Gorini, F., Heino, A., Limb, E., Lutke, R., Neville, A., Rissmann, A., Scanlon, l., Tucker, D. F Tags: Open access Original research Source Type: research
Communicative development inventory in type 1 and presymptomatic infants with spinal muscular atrophy: a cohort study
Conclusions
These results suggest that language and communication development may follow a similar pattern to that observed in motor function with the possibility to develop skills (eg, ability to say clear words) that are not usually present in untreated infants but with a level of performance that does not reach that of their typically developing peers. (Source: Archives of Disease in Childhood)
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Buchignani, B., Cicala, G., Cumbo, F., Ricci, M., Capasso, A., Ticci, C., Mazzanti, S., Brolatti, N., Tosi, M., Dosi, C., Antonaci, L., Coratti, G., Pera, M. C., Leone, D., Palermo, C., Berti, B., Frongia, A. L., Sacchini, M., Bruno, C., Masson, R., DAmic Tags: Original research Source Type: research
Characteristics of children requiring admission to neonatal care and paediatric intensive care before the age of 2 years in England and Wales: a data linkage study
Conclusions
Healthcare professionals caring for babies and children in NNU and PICU see some of the same children in the first 2 years of life. While some children are following established care pathways (eg, staged cardiac surgery), the small proportion of children needing NNU care subsequently requiring PICU care account for a large proportion of the total PICU population. These differences may affect perceptions of risk for this group of children between NNU and PICU teams. (Source: Archives of Disease in Childhood)
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Seaton, S. E., Battersby, C., Davis, P. J., Fenton, A. C., Anderson, J., van Hasselt, T. J., Draper, E. Tags: Open access Original research Source Type: research
New oral polio vaccines type 2
As a medical student Archivist learnt that the Sal’K’ polio vaccine [the inactivated polio vaccine (IPV)] was the ‘K’illed injected preparation and Sabin, live attenuated, polio vaccine was the oral preparation, often given to graduates of neonatal units on discharge! Oral polio vaccines have many advantages, they do induce systemic antibodies and mucosal immunity and they do prevent prolonged excretion of the virus and community transmission. The main worry is that some circulating vaccine-derived polioviruses (cVDPVs) lose attenuating mutations and they then cause paralytic disease. Ochoge M et al...
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Tags: Miscellanea Source Type: research
Defining treatment success in children with surgical conditions
Conclusions
The CSOR TSS summarises how successfully children with surgical conditions have been treated, and can therefore be used to compare hospitals’ observed and expected outcomes. (Source: Archives of Disease in Childhood)
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Rivero-Arias, O., Buckell, J., Knight, M., Craig, B. M., Ramakrishnan, R., Kenny, S., Allin, B., on behalf of the CSOR Collaborative Group, Allin, Ayman, Bradnock, Brennan, Buckell, Giuliani, Grimaldo-Giraldo, Hall, Hinton, Jenkinson, Jester, Kenny, Knigh Tags: Open access, Editor's choice Original research Source Type: research
Inflammatory bowel disease: recent developments
Paediatric-onset inflammatory bowel disease (IBD) is a complex and heterogenous condition. Incidence of disease in those aged <18 years has doubled over the last 25 years, with concurrent increased prevalence and no decrease in disease severity. The tools available at diagnosis for investigation have developed over the last 10 years, including better utilisation of faecal calprotectin, improved small bowel imaging and video capsule endoscopy. Alongside this, management options have increased and include biological and small molecule therapies targeting alternative pathways (such as interleukin 12/23, integrins and Janus...
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Ashton, J. J., Beattie, R. M. Tags: Open access Review Source Type: research
Survival outcomes for congenital heart disease from Southern Malaysia: results from a congenital heart disease registry
Conclusions
Eight out of 10 patients with CHDs survived up to 15 years of age. However, 10% of CHDs who require intervention die before the procedure. Thus, improving congenital cardiac surgery and enhancing the overall healthcare system are crucial to improve survival. (Source: Archives of Disease in Childhood)
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Mat Bah, M. N., Kasim, A. S., Sapian, M. H., Alias, E. Y. Tags: ADC Global child health Source Type: research
Don't 'take consent. Provide disclosure
The purpose of consent English courts have confirmed the importance of consent prior to clinical interventions. Accepting that this is an essential prerequisite for lawful treatment, does consent serve any further purpose other than providing information? Children’s doctors have a duty to take reasonable steps to put the patient (or their parent) into a position where they can make an informed decision about whether to subject themselves to the proposed treatment. Court judgements echo the tone of ‘taking consent’ (a phrase so often used by doctors), construed as an acquisition. Lord Donaldson, in Re W [1...
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Wheeler, R. Tags: Ethics and law for clinical practice Source Type: research
Informed non-dissent for brain death testing in children: ethical and legal perspectives
A 14-year-old girl, Hana, is admitted to the paediatric intensive care unit following a sudden collapse at home. She is found to have sustained a severe haemorrhagic stroke. Despite emergency neurosurgical intervention, she deteriorates over several days. Her family have been struggling to accept the possibility that she would not recover. Hana remains unresponsive, has fixed dilated pupils and has developed diabetes insipidus. The clinical team suspect that she is brain dead. Should the family’s consent be sought for brain death testing? (This case is fictitious.) In mid-2022, the high profile case of Archie Batters...
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Wilkinson, D., Miller, C., Turner, S. W. Tags: Ethics and law for clinical practice Source Type: research
Defining surgical success
Although Benjamin Franklin opined that death and taxation are the only certainties in this life, for most of us, the need to undergo a surgical procedure at some point is also inevitable. Society consequently has a vested interest in the outcomes of surgery being successful. Through recorded history, just surviving an operative intervention was regarded as near miraculous. Aseptic technique, anaesthesia and understanding of resuscitation made surgery safe, at least for first world populations, but the objective analysis of what surgeons do and the outcome of their activity is a relative novelty in historical terms. While t...
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Jaffray, B. Tags: Editorial Source Type: research
Atoms
Reining in—October 2023 The hazel door swung ajar onto the penumbrally-lit corridor, the guttural scream of the hinges piercing the silence. The line of mute, quietly agitated applicants for the post uncomfortably positioned on the hard, lime green plastic chairs, reminiscent of museum pieces of 1960s furnishing, their survival having been secured wholly through their durability, providing the institution with a perfect excuse to ‘save resources for priority areas’. "Please come in, doctor." Grateful for the cursory introduction to the panel (mouth so dry as to glue tongue to palate) the interrogation beg...
Source: Archives of Disease in Childhood - April 18, 2024 Category: Pediatrics Authors: Brown, N. Tags: Highlights from this issue Source Type: research
Highlights from the literature
Paediatric updates for SPIRIT and CONSORT Setting up and running large multicentre network, randomised clinical trials (RCTs) in child health is hard work, expensive and time-consuming. To run the study within a robust research governance structure is crucial to scientific credibility, usefulness of the results and conclusions of the study, and reduces research waste. Reporting your work accurately and in a comprehensive and transparent way requires a structure and standardisation. So far, the Standard Protocol Items: Recommendations for Interventional Trials (SPIRIT) and Consolidated Standards of Reporting Trials (CONSORT...
Source: Archives of Disease in Childhood - March 19, 2024 Category: Pediatrics Tags: Miscellanea Source Type: research
