COVID in NYC: What We Could Do Better.
Authors: Powell T, Chuang E Abstract New York City hospitals expanded resources to an unprecedented extent in response to the COVID pandemic. Thousands of beds, ICU beds, staff members, and ventilators were rapidly incorporated into hospital systems. Nonetheless, this historic public health disaster still created scarcities and the need for formal crisis standards of care. These were not available to NY clinicians because of the state's failure to implement, with or without revision, long-standing guidance documents intended for just such a pandemic. The authors argue that public health plans for disasters should b...
Source: American Journal of Bioethics - May 30, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Rural and Remote Communities: Unique Ethical Issues in the COVID-19 Pandemic.
Authors: Erwin C, Aultman J, Harter T, Illes J, Kogan RCJ PMID: 32407245 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 15, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Potential Implications of Testing an Experimental mRNA-Based Vaccine During an Emerging Infectious Disease Pandemic.
Authors: Nichol AA PMID: 32407254 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 15, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Ends and Means of Solidarity.
Authors: Jennings B PMID: 32364466 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Solidarity and Community Engagement in Global Health Research.
Authors: Pratt B, Cheah PY, Marsh V Abstract Community engagement (CE) is gaining prominence in global health research. A number of ethical goals-spanning the instrumental, intrinsic, and transformative-have been ascribed to CE in global health research. This paper draws attention to an additional transformative value that CE is not typically linked to but that seems very relevant: solidarity. Both are concerned with building relationships and connecting parties that are distant from one another. This paper first argues that furthering solidarity should be recognized as another ethical goal for CE in global health ...
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.
Authors: Dickert NW, Bernard AM, Brabson JM, Hunter RJ, McLemore R, Mitchell AR, Palmer S, Reed B, Riedford M, Simpson RT, Speight CD, Steadman T, D Pentz R Abstract Clinical trials for acute conditions such as myocardial infarction and stroke pose challenges related to informed consent due to time limitations, stress, and severe illness. Consent processes should be sensitive to the context in which trials are conducted and to needs of patients and surrogate decision-makers. This manuscript describes a collaborative effort between ethicists, researchers, patients, and surrogates to develop patient-driven, patient-c...
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Sense and Sensibility.
Authors: Spatz ES PMID: 32364469 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Consent in the Acute Setting: A Necessary Evolution.
Authors: Blitzer D, Sade RM PMID: 32364470 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

'Who is (Really) the Focus of Engagement?' - Evidence From Engagement Research.
Authors: Lander J, Dierks ML PMID: 32364471 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Partnering With Research Staff Members to Bridge Gaps in Consent.
Authors: Anderson EE PMID: 32364472 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Solidarity, Social Risk, and Community Engagement.
Authors: Scholz SJ PMID: 32364473 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.
Authors: Kraft SA, Duenas DM, Lewis H, Shah SK PMID: 32364474 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Empowering Marginalized Communities.
Authors: Jayaram A PMID: 32364475 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Rules of the Road for Patient-Driven Consent Processes.
Authors: Nix HP, Weijer C PMID: 32364476 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

The Role of Solidarity in Research in Global Health Emergencies.
Authors: Wright K, Sheather J PMID: 32364477 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Better Consent-and Not Just for When Time Is Short.
Authors: Menikoff J PMID: 32364478 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

"Living Robots": Ethical Questions About Xenobots.
"Living Robots": Ethical Questions About Xenobots. Am J Bioeth. 2020 Jun;20(5):W1-W3 Authors: Coghlan S, Leins K PMID: 32364479 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Consent Related Challenges for Neonatal Clinical Trials.
Authors: Guttmann KF, Wu YW, Juul SE, Weiss EM PMID: 32364480 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Community Empowerment Through Education: The Inherent Foundation of Promoting Solidarity in Global Health Research.
Authors: Valentine GC, Perez K, Weiss EM PMID: 32364481 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Peers, Near-Peers, and Outreach Staff to Build Solidarity in Global HIV Research With Adolescents.
Authors: Ott MA, Apondi E, MacDonald KR, Embleton L, Thorne JG, Wachira J, Kamanda A, Braitstein PKA PMID: 32364482 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Is Solidarity Possible in Global Health Policy and Systems Research?
Authors: Rattani A PMID: 32364483 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

From Knowing to Understanding: Revisiting Consent.
Authors: Rempala K, Hornewer M, Vukov J, Meda R, Khan S PMID: 32364484 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Solidarity in Global Health Research-Are the Stakes Equal?
Authors: Daftary A, Viens AM PMID: 32364485 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Guiding Principles of Community Engagement and Global Health Research: Solidarity and Subsidiarity.
Authors: Brakman SV PMID: 32364486 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

The Two Components of Beneficence and Wellbeing in Medicine: A Restatement and Defense of the Argument.
Authors: Bester JC PMID: 32364487 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Enlisting the Experts: Experienced Research Participants in Study Planning.
Authors: Dresser R PMID: 32364488 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

A Model to Be Emulated.
Authors: Weinfurt KP PMID: 32364489 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - May 5, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

The COVID-19 Pandemic: Critical Care Allocated in Extremis.
Authors: Goold SD PMID: 32330105 [PubMed - as supplied by publisher] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 25, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Balancing Risk and Reward: Greater Research Oversight Is Appropriate for Novel Therapies for Children With Life-Limiting Illness.
Authors: Unguru Y PMID: 32223620 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Bringing Known Drugs to Pediatric Research: Safety, Efficacy, and the Ambiguous Minor Increase in Minimal Risk.
Authors: Sharma A, Johnson LM PMID: 32223621 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy.
Authors: Richardson JP, Sharp RR PMID: 32223622 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Balancing Scientific Progress With Pediatric Protections: No Direct Benefit Now, But Potential Novel Therapy in the Future.
Authors: Lee SW, Ginsberg JC PMID: 32223623 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Civic Engagement, Autism and Deliberative Democracy: Prioritizing the Inclusion of Marginalized Perspectives.
Authors: Tabor HK PMID: 32223624 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

A Care Ethics Approach to Ethical Advocacy for Community Conditions.
Authors: Day PG, Sanchack KE, Lennon RP PMID: 32223625 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Beyond Autism: Advocacy for Neurodevelopmental Differences.
Authors: Graf WD PMID: 32223626 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Hope Springs Eternal: Pitfalls of Partial Representation by Advocates Who Only Want the Best.
Authors: Siegel B PMID: 32223627 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Non-Electoral Representation and Promoting Welfare-Beyond Descriptive Representation.
Authors: Frith L PMID: 32223628 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Representation Is Never Perfect, But Are Parents Even Representatives?
Authors: Benjamin E, Ziss BE, George BR PMID: 32223629 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Autism Advocacy Before and After DSM-5.
Authors: Nelson RH PMID: 32223630 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Autistic Self Advocacy in the Developmental Disability Movement.
Authors: Ne'eman A, Bascom J PMID: 32223631 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Ethical Representation by Patient Advocacy Organizations Also Requires Responsible Management of Potential Financial Conflicts of Interest.
Authors: Bruno B, Rose S PMID: 32223632 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Neurodiversity and Autism Advocacy: Who Fits Under the Autism Tent?
Authors: Richman KA PMID: 32223633 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Representing the Autism Spectrum.
Authors: Chapman R, Veit W PMID: 32223634 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Additional Challenges to Fair Representation in Autistic Advocacy.
Authors: Fellowes S PMID: 32223635 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Parents of Autistic Children Are Deserving of Support.
Authors: Buturovic Z PMID: 32223636 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Patient Representation: Mind the Gap Between Individual and Collective Claims.
Authors: Jongsma KR, Schicktanz S PMID: 32223637 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Like Autism, Representation Falls on a Spectrum.
Authors: Elster N, Parsi K PMID: 32223638 [PubMed - indexed for MEDLINE] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - April 2, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

The "Ought-Is" Problem: An Implementation Science Framework for Translating Ethical Norms Into Practice.
The "Ought-Is" Problem: An Implementation Science Framework for Translating Ethical Norms Into Practice. Am J Bioeth. 2020 May;20(4):62-70 Authors: Sisk BA, Mozersky J, Antes AL, DuBois JM Abstract We argue that once a normative claim is developed, there is an imperative to effect changes based on this norm. As such, ethicists should adopt an "implementation mindset" when formulating norms, and collaborate with others who have the expertise needed to implement policies and practices. To guide this translation of norms into practice, we propose a framework that incorporates implement...
Source: American Journal of Bioethics - March 26, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Using Implementation Science to Enact Specific Ethical Norms: The Case of Code Status Policy.
Authors: Shearer E, Magnus D PMID: 32208071 [PubMed - in process] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - March 26, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research

Translational Ethics and Challenges Involved in Putting Norms Into Practice.
Authors: Bærøe K, Henden E PMID: 32208072 [PubMed - in process] (Source: American Journal of Bioethics)
Source: American Journal of Bioethics - March 26, 2020 Category: Medical Ethics Tags: Am J Bioeth Source Type: research