Haloterapy Opinions and Haloterapy Devices
Hi CF community This group is great and helped us a lot. I'm a parent of a recently diagnostic CF 8 year old girl. She had two positive sweat tests and we are waiting for the mutation test results. She has tried Haloterapy (Salt Rooms), and we saw good result in releasing and ticketing the mucus. In my opinion, it is one of the most efficient therapyes that she used. I'm writing you to: 1º-Know your opinion about Haloterapy. 2º-Do you know any portable Device that we can use at home? I have searched and found the following: http://www.healyourself.com.au/aroma...py-halotherapy http://www.salinetherapy.com/ https://w...
Source: Cystic Fibrosis Alternative Medicine Forum - October 4, 2015 Category: Respiratory Medicine Authors: Jose Coelho Tags: Alternative Medicine Source Type: forums

CF Bowel Obstruction Study
This study focuses on cystic fibrosis patients who have complaints of bowel obstruction and constipation. The goal of this study is to see if and how osteopathic manipulative medicine will affect these patients’ bowel functions. The study is being performed through Touro University. Treatments will take place in Vallejo, CA and in Portola Valley, CA. What is osteopathic manipulative medicine? Osteopathic manipulative medicine (OMM) is a hands-on technique of moving and mobilizing tissues of the body to be able to function optimally. In this project, the techniques that will be utilized are gentle and will be ...
Source: Cystic Fibrosis Alternative Medicine Forum - September 25, 2015 Category: Respiratory Medicine Authors: Sara Modlin Tags: Alternative Medicine Source Type: forums

Creatinine Help
I've been having a lot of trouble the last few years with IV meds putting a strain on my kidneys. It always seemed that no matter how much I drank, or how many liters of fluid I got, my creatinine would go up. I'd have to hold the antibiotics, and the result was a hospital stay or home IV cycle that wasn't as effective as it could have been. After my last hospital stay, I started doing research into natural ways to lower creatinine. I came across nettle leaf tea as being the best opinion. I asked my doctor if I could try it, and she said that would be fine. I couldn't find leaves to make tea, but the natural grocers had a...
Source: Cystic Fibrosis Alternative Medicine Forum - May 19, 2015 Category: Respiratory Medicine Authors: nmw0615 Tags: Alternative Medicine Source Type: forums

rso/ medical marijuana
hi i am zak i am a 18yer old i was wondering if eny cf patient has used marjuana how nd what way i was thinking of taking rso wich is use to help cancer nd meny other stuff (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 25, 2015 Category: Respiratory Medicine Authors: Zak Hayes Tags: Alternative Medicine Source Type: forums

Has anyone tried Plexus for Blood Sugar control?
Hi y'all! I am 32 yo female and found out last June my A1C was elevated. Rather than jump right into insulin, I decided to do my best to control by being careful about the foods I eat. I was having some success (when I was perfect) but now I'm pregnant! With pregnancies 1 and 2 this meant sugars that went a little crazy. My friend sells Plexus products (they have a full selection of supplements, probiotics, etc) and a specific product called Plexus Slim. Anyone heard of it? Well, don't let the name fool you. It was developed for blood sugar regulation and then they discovered some people lost weight on it (because of BS re...
Source: Cystic Fibrosis Alternative Medicine Forum - March 15, 2015 Category: Respiratory Medicine Authors: jmiller1 Tags: Alternative Medicine Source Type: forums

Help with Sinuses. Recommendations needed to break up sinus junk!
Hi guys, Does anyone have GOOD recommendations on how to break up sinus mucus/junk? Here is my situation.. I've had 4 sinus surgeries now, 2 clean outs and 2 drilling, and my sinuses STILL get blocked! When I say blocked, what I'm talking about is I literally have sinus pressure headaches every day, some days ibuprofen, tylenol, mucinex, and sudafed dont even take care of it. I do sinus rinses 2-3 times a day using distilled water, essential oils, 1 tablespoon of pickling salt, and .5 tablespoon of baking soda. I've used essential oils on outside of skin to help relieve pain and pressure but nothing majorly helps. I occ...
Source: Cystic Fibrosis Alternative Medicine Forum - January 30, 2015 Category: Respiratory Medicine Authors: TheSaltyOne Tags: Alternative Medicine Source Type: forums

Can TCM treat Cancer?
I wonder if TCM can cure cancer? From we all know, the medication of cancer is quite expensive and some can't afford it. While,there's an alternative medicine that is cheaper. I have found a website and they offer traditional chinese medicine in Singapore. What can you say guys? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - December 18, 2014 Category: Respiratory Medicine Authors: meganstar Tags: Alternative Medicine Source Type: forums

Halo therapy - salt room
Has anyone looked into halo therapy? I have been researching it and it looks really good! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - November 21, 2014 Category: Respiratory Medicine Authors: Teri Di Biase Mundt Tags: Alternative Medicine Source Type: forums

Other forms of treatment?
Does anyone do anything creative or different with their therapy and medication aside from vest and nebuliser? Those seem to be the gold standard but I'd like to know if anyone uses their own techniques (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - November 18, 2014 Category: Respiratory Medicine Authors: daver14 Tags: Alternative Medicine Source Type: forums

Medical Marijuana as an Addition to Modern Medicine
After some research, I believe that Medical Marijuana's benefits far out way the risks. There are multiple alternatives to the typical instruments used to smoke marijuana, such as Vaporizing. Vaporizing uses convection heating to heat the air in a device to such a high temperature that it 'vaporizes' the marijuana plant, therefore, releasing its cannabinoids including THC (the psychoactive chemical of the plant), CBD & CBN (non-psychoactive chemicals of the plant), into a plastic type balloon or a medical grade plastic 'whip'. Because of the state's decision to legalize of Medical Marijuana, it can be monitored as w...
Source: Cystic Fibrosis Alternative Medicine Forum - October 5, 2014 Category: Respiratory Medicine Authors: jrocco Tags: Alternative Medicine Source Type: forums

Using engineered probiotic bacteria for treating Pseudomonas-induced lung infection
Hi everyone, I am a member of a research group that engineered a commensal probiotic bacteria from the human gut to seek and kill Pseudomonas aeruginosa. This work is currently undergoing pre-clinical trial and we hope to reach clinical trial stage in a few years to treat Pseudomonas infections, which potentially include lung infections induced by Pseudomonas. In anticipation of the difficulties we may encounter in researching and promoting this treatment, we are conducting this short survey to understand the perspectives of healthcare specialists, patients and the public on this form of treatment. We hope that you could...
Source: Cystic Fibrosis Alternative Medicine Forum - September 30, 2014 Category: Respiratory Medicine Authors: jlfoo Tags: Alternative Medicine Source Type: forums

My Next Stem Cell Treatment, Need Your Help
I am 53 and planning to go in for my 3rd adult stem cell treatment in Sept. Should be off oxygen by Thanksgiving as a result. I know another CF Warrior going in a couple of weeks, and can't wait to hear about her results in the next few months. Can't disclose her name, because most CF docs get hostile about this. I had to leave Nashville/Vandy for that very reason. My CF doc in S. FL does not believe the stem cells work. He says, "You have no proof." But at least I can have an adult conversation with him. I told him that I am the proof. 3 years ago I had both feet in the grave with only weeks to live. 4 tuneups a...
Source: Cystic Fibrosis Alternative Medicine Forum - May 29, 2014 Category: Respiratory Medicine Authors: Angelo Tags: Alternative Medicine Source Type: forums

Headaches and Muscle Cramps
Many CF warriors experience chronic headaches. I have not yet heard from any doctors a clear and reasonable explanation as to why we have the headaches. My suspicion is that CF is not directly the cause of the headaches, but all the stuff we do and go through as a result of CF can point to several culprits. All I can contribute to this issue is my own experience. I have gone through periods of time with continuous headaches (if I don’t medicate the headache) and periods of time with absolutely no headaches. By the process of elimination, I have come to some conclusions. Due to CF causing a rapid depletion of vitamins...
Source: Cystic Fibrosis Alternative Medicine Forum - May 27, 2014 Category: Respiratory Medicine Authors: Angelo Tags: Alternative Medicine Source Type: forums

Bleeding Lungs
Every CF warrior needs to know about this whole food supplement. It is called Cyruta Plus. Made by Standard Process. It is sold by some chiropractors. Call the company at 800-848-5061 and they will give you list of resellers in or near your zip code. No negative side effects. Website for info: https://www.standardprocess.com/Prod...ss/Cyruta-PlusIt's the only thing I use for bleeding lungs and nose bleeds. I have not had a problem with bleeding lungs in years. On occasion I get nose bleeds. This stuff heals fragile blood vessels. I will do massive amounts of this stuff before I ever let them cauterize anything in my lungs....
Source: Cystic Fibrosis Alternative Medicine Forum - May 27, 2014 Category: Respiratory Medicine Authors: Angelo Tags: Alternative Medicine Source Type: forums

Stem Cell Therapy- Has anybody done it or know anyone who has?
I have been doing research on this for several years but have not talked to anyone who has done it. It sounds like it might work but it might also be a scam. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 25, 2014 Category: Respiratory Medicine Authors: scarecrow Tags: Alternative Medicine Source Type: forums

Please help I have Pseudomonas Aeruginosa bug in my lungs
Hi you all, I am new to the forum.I am looking for help and suggestion or anybody with same condition who has this bug in their lungs Pseudomonas Aeruginosa.I have this bug in my lungs for past two years and throw up blood with mucus often,my doctor has put me on Tobi and other antibiotics but it helps for while and nothing.......! I am thinking of doing collidal silver through nebulizer any thoughts....! Please help! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 20, 2014 Category: Respiratory Medicine Authors: acdkm Tags: Alternative Medicine Source Type: forums

Surprising Results with Essential Oils! Give it a Go!
**This by no means is "official" help for CF. This is simply my experience and what I have discovered from personal use. Sorry for the lengthy post but it is worth reading. Also, I'm trying to help and post this to a lot of my CF forums so it might be filled with some obvious info. MY PROBLEMS: I have not had many issues until 5 years ago. For the first couple of those years I was required to have 2 week hospital admissions for IV antibiotics every few months, then as time progressed and my lungs continued to scar my admissions became more frequent causing more resistance to various antibiotics. A big problem w...
Source: Cystic Fibrosis Alternative Medicine Forum - March 22, 2014 Category: Respiratory Medicine Authors: TheSaltyOne Tags: Alternative Medicine Source Type: forums

Early Stage Treatment for Breast Cancer Patients
iCAD has announced that more than 1,000 early stage breast cancer patients have been treated with Intraoperative Radiation Therapy (IORT) . (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - March 14, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: Alternative Medicine Source Type: forums

A miraculous home remedy !!!!!
I have a miracuolous home remedy that almost completely solve my problems. It's drinking Sodium-Chloride solution !!! Just a little every day, I also inhale it (boil it then inhale) and it cured muy lungs, I tried it first a month ago and it was a miracle to me. I advice everyone to try it. It is probably so beneficial as the main problem with cf is actually not transporting water and electrolites through lungs, intestines etc. This was a true miracle for me I advice everyone to try it it can do no harm. drinking Sodiium-Chloride solution for intravenouous rehidratation!!!​ A miraculous home remedy!!! (Source: Cysti...
Source: Cystic Fibrosis Alternative Medicine Forum - February 4, 2014 Category: Respiratory Medicine Authors: purple88 Tags: Alternative Medicine Source Type: forums

Anyone who took respiratory scleratoma massages.
Hi, Am mother of 3yrs old boy with double copy of df508. I am actively pursuing alternative medicine for my son. A naturopath I consulted suggested me about dr Kauffman's scleratoma techniques to deal with my sons frequent lung infections. He has given me few internet links (below) to understand the scleratoma techniques. there are many scleratomas but my interest is on this respiratory scleratoma. http://bulk-mail.axint.net/pipermail...st/000059.html http://bulk-mail.axint.net/pipermail...er/000070.html terrywilliamsasthama in YouTube i understand these are some massages to turn on the reflexes. I have no clu...
Source: Cystic Fibrosis Alternative Medicine Forum - February 4, 2014 Category: Respiratory Medicine Authors: Mallika Tags: Alternative Medicine Source Type: forums

IT Works Greens
Hi, Has anyone tried the IT Works Greens??? Curious if you have had any benefit. I have been reading a lot about this and it seems to have many superfoods in it. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 15, 2014 Category: Respiratory Medicine Authors: awagner Tags: Alternative Medicine Source Type: forums

Himalayan Salt Inhaler
Hey fellow CFers, I was wondering if anyone has heard of the Himalayan Salt Inhaler? Dr. Oz had it marked as one of the best new products. I was curious to know if anyone with CF has used it and if so, how did you like it/did it help you? This inhaler seems like it would be beneficial, of course, I will continuing my current medications. The Himalayan Salt Inhaler would not replace other medications that the doctors prescribe. Below is a link for the inhaler http://www.himalayansaltinhaler.com/ Thank you for your help and feedback! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - September 14, 2013 Category: Respiratory Medicine Authors: AmberFerguson Tags: Alternative Medicine Source Type: forums

Success killing Stenotrophomonas Maltophilia with TOBI Pod Inhaler
We've had a rough year dealing with the colonization of a new bug, Stenotrophomonas Maltophilia which is quite med resistant. They did an experiment on my daughter's sputum in a petri dish with TIP(TOBI Pod Inhaler) which is normally used to eradicate Pseudomonas Aeruginosa. and it killed some Steno! We started using the TIP on June 28th and our sputum sample from July 26th shows that the bacteria count has gone from 10 to the power of 4 to 10 to the power of 3. It's working! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - August 2, 2013 Category: Respiratory Medicine Authors: myfanwy Tags: Alternative Medicine Source Type: forums

New website on CF nutrition and natural health care
Hey folks. I hope you're well. I just wanted to let you know I have created a new website focused on sharing the science and research behind CF, proper nutrition, and natural health care. I've collected a lot of information on what kinds of foods CFers need and what kinds of foods we must avoid, plus some more in-depth science on how CF works at the cellular level up. I also explain what kinds of nutritional experiments I've been doing and how this has improved my health and quality of life. My goal is to empower CFers to make informed decisions about what we should be allowing into our bodies and how this impacts our heal...
Source: Cystic Fibrosis Alternative Medicine Forum - July 26, 2013 Category: Respiratory Medicine Authors: Epona Tags: Alternative Medicine Source Type: forums

A 10m $ Paper Based Device to Detect Infectious Diseases
University of Washington got funds about 10m dollar to develop paper-based device which can test and detect infectious diseases. In the initial stage they started testing influenza virus & other sexual transferred diseases. Here are more details about this news. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 28, 2013 Category: Respiratory Medicine Authors: emilymainzer Tags: Alternative Medicine Source Type: forums

Has anyone had any experience with using public Steam Rooms and Saunas
I joined a gym/health club that has a nice steam room that they infuse with essential oils, and they also have a big sauna. Basically I feel really tempted to try them out after a workout. Has anyone had any experience with public steam rooms and saunas? I'm 22 and have Cystic Fibrosis. Thanks, Genevieve (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 20, 2013 Category: Respiratory Medicine Authors: Genevieve11 Tags: Alternative Medicine Source Type: forums

Anyone had experience with essential oils?
Hi there, I was curious if anyone has had any experience with essential oils, particularly do Terra brand? I have read some really encouraging testimonials on these and I am continuously looking for ways to combine my conventional CF clinic medical model with alternative therapies to boost my overall health and wellness. I would love to hear any feedback! Thank you! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 22, 2013 Category: Respiratory Medicine Authors: kristenj Tags: Alternative Medicine Source Type: forums

diffusing essential oils
I have several friends who claim great success keeping their families healthy by using essential oils in a diffuser. In doing some research on the web, I found that there are certain oils that can be greatly helpful for those with CF, but I also found that there can be some concern for CF kids about any diffuser that uses water along with the oil? Not sure why? Anyone here use a diffuser or know which ones do or do not use water? or if that's even being overly worried and I can really pick whatever diffuser I want? ;) TIA - Heidi mom of Dekorrah - 5mo son with Delta F-508 CF (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 14, 2013 Category: Respiratory Medicine Authors: heidikk Tags: Alternative Medicine Source Type: forums

Smoking Pot/RSO Oil
I have been using Rick Simpson Oil now for 3 weeks and I have seen some amazing results.http://phoenixtears.ca/ I have also been smoking Marijuana for a year now. Ive found that it breaks and forces that mucus up. Sure the coughing hurts and is certainly not fun but if you can tough out the painful part smoking gets easier over time and the pain relief is almost instant! Anyone else experiencing great results with Marijuana use? I was not ever officially diagnosed with CF we started to suspect I had it a year ago. Over time I noticed my "asthma" attacks getting worse and worse and it feels like I have a lung infe...
Source: Cystic Fibrosis Alternative Medicine Forum - March 4, 2013 Category: Respiratory Medicine Authors: burnanator420 Tags: Alternative Medicine Source Type: forums

colloidal Silver?
Hello All! This is my first time posting, but I am desperately trying to find information about colloidal silver. There is some talk bubbling up among my Cf community about nebulizing colloidal silver, so I wanted to get a feel for it from y'all. I've been trying to find research on the issue but all I can come up with is claims by the actual companies selling the product. I will admit I am very skeptical, so this post will reflect my fear. Please know I am not trying to offend anyone or start an argument, but I would like to see some healthy debate on the issue. I think we can be adults and not get everyone's ire up. :...
Source: Cystic Fibrosis Alternative Medicine Forum - February 11, 2013 Category: Respiratory Medicine Authors: politicaljules Tags: Alternative Medicine Source Type: forums

Alternative Pain Medicine
Hi all! I posted in the Adult Section just now - but wanted to post here as well. Looking for some alternatives to pain medicine - my BF is currently taking VICODIN (6-8 pills per day) to manage his chronic pain from CF and also to deal with the pain that comes with his recent lung surgery (left lung had collapsed recently) His current pain doctor feels that he is abusing the pain medicine, he is a 26 year old male (BF) Looking for some suggestions/help! We are in the process in looking for a new doctor for a second opinion but I would love to hear some alternative pain medicine that helps with the pain in the inner ...
Source: Cystic Fibrosis Alternative Medicine Forum - January 31, 2013 Category: Respiratory Medicine Authors: Nicole Emily Buckley Tags: Alternative Medicine Source Type: forums

More Active
I really wish this section of CF.com was more active. I believe we could really change the CF community with this info. Check out my blog www.insidecf.blogpsot.com and see how Im using alternative medicine and diet. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 29, 2013 Category: Respiratory Medicine Authors: jbrandonAW Tags: Alternative Medicine Source Type: forums

Alternatives to Aquadeks
I was very disappointed to read that my Aquadeks have food dyes and GMOs on the ingredient list- can any of you recommend an alternative with a comparable vitamin profile? Thanks! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 11, 2013 Category: Respiratory Medicine Authors: jmiller1 Tags: Alternative Medicine Source Type: forums

Halo?
Hi All! Has anyone seen this new Halo product or tried it? (http://halogermdefense.com/) Is it safe for CFers? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - November 29, 2012 Category: Respiratory Medicine Authors: smurn Tags: Alternative Medicine Source Type: forums

CF related bowel cancer and alternative therapies?
Hi I am 12 years post lung transplant for CF. Last year, I was diagnosed with small bowel adenocarcinoma at 39, did surgery and chemo ,and five months after stopping chemo , it came back and metastasized. I had more surgery and am doing chemo again. My oncologists have never seen a CF -post-lung transplant pt with cancer before so I feel like I am playing doctor in this role as an expert of my body and doing my own research on PubMed, ect. has any other cf adult out there had bowel cancer and how did you handle it with the docs? were you post-transplant ? if so, how did you handle the chemo and immunosuppressants? Did ...
Source: Cystic Fibrosis Alternative Medicine Forum - November 18, 2012 Category: Respiratory Medicine Authors: amstenzel Tags: Alternative Medicine Source Type: forums

Wanted: Participants for test group homeopathic treatment of Cystic Fibrosis
. Hello, My name is Deny De Meyer, I am a Belgian classic homeopath. Currently, I’m in the process of starting up a test group of people with cystic fibrosis, for a homeopathic treatment of 3 months. It’s my intention to gather a lot of experience over a short period of time regarding the treatment of CF-patients by means of homeopathy: to see how deep homeopathy can affect them and what results are possible. You might be wondering, “A Belgian homeopath, what’s she doing here on this American forum?” In order to achieve as much information as possible over such a short time, it is necessary...
Source: Cystic Fibrosis Alternative Medicine Forum - October 30, 2012 Category: Respiratory Medicine Authors: Deniee55 Tags: Alternative Medicine Source Type: forums

Anyone have any experience with Quinton or Marine Plasma?
My wife is pregnant with a CF baby due in January. My aunt owns a health products company in Colorado and she's been doing some research and talking with doctors and she highly suggests that we start some treatments with a product called Quinton which i believe is also called marine plasma. It's supposed to be great for all around health and help fight diseases/sickness etc. She's sending 6 boxes for free to get started which is awesome, and so far I haven't seen anything negative about it. Does anyone have any experience with this stuff? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - October 10, 2012 Category: Respiratory Medicine Authors: dougs280z Tags: Alternative Medicine Source Type: forums

chiropractor
Just wondering what your thoughts are on chiropractic care for a cfer. Does it help? Does it improve lung function and overall well being. Considering it for my daughter. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - October 5, 2012 Category: Respiratory Medicine Authors: Bella's-mom Tags: Alternative Medicine Source Type: forums

Possible new way to fight lung infections
Check out this article. http://www.spiritindia.com/health-ca...cles-7534.html A study done in collaboration with the University of Washington found that using a metallic "Trojan Horse" - tricking the bacteria by replacing the iron they need from their environment with the metallic element gallium - can ki ll bacteria. The study will appear in the April 2 issue of the Journal of Clinical Investigation. The UC team headed by Bradley Britigan, MD, chairman of the internal medicine department at UC and staff physician at the Cincinnati Department of Veterans Affairs Medical Center, found substituting galliu...
Source: Cystic Fibrosis Alternative Medicine Forum - September 4, 2012 Category: Respiratory Medicine Authors: rmotion Tags: Alternative Medicine Source Type: forums

M. abscessus patient recovers using bioactive compounds and supplements
My husband is recovering very nicely from M. abscessus after using an intensive regimen of bioactive compounds and supplements. New website with all the information is ntmnews.com. http://www.prweb.com/releases/2012/7/prweb9701215.htm (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - July 16, 2012 Category: Respiratory Medicine Authors: sedonagate Tags: Alternative Medicine Source Type: forums

Anyone Heard of MSM / DMSO?
My Dad has found, through research, a naturally ocurring compound called MSM. Naturally ocurrs in the body and in many foods. Basically a sulphur that our body needs. Why does it POTENTIALLY relate to CF? Because MSM affects cell membranes, especially mucous membranes. It basically naturally coats cell membranes to help relieve them of excess pressure, fluid and toxins. It is believed to have amazing anti-inflammatory effects. I found a few articles referencing MSM use for the respiratory and digestive tracts. There aren't many studies done on this, and as usual, our ridiculous FDA does not want to approve this. Only side ...
Source: Cystic Fibrosis Alternative Medicine Forum - June 29, 2012 Category: Respiratory Medicine Authors: 3RingCircus Tags: Alternative Medicine Source Type: forums

Inhaled glutathione
.....how many times a day do you use it? When in the daily routines do you use it? During vest? Immediately after vest? Where in the list of other inhaled Meds does it find the greatest benefit in your experiences? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 27, 2012 Category: Respiratory Medicine Authors: brianbrandi Tags: Alternative Medicine Source Type: forums

Vitamins...
The cf clinic called and said my oldest DD's vit D is low and she should now take two source CF's. She is already taking one source cf, 1 vit D3 2,000 IU's, faxseed, garlic, fish oil, and vit C. I told her she was supposed to take a second source CF and she groaned. So now I'm in search of better ways to get this under control. I guess part of me is just frusterated that instead of trying to help us find better food's the clinics are quick to push pills. Well there is no guarantee the pills are even worth the money that is spent on them. So we're just shoving random stuff in their bodies hoping it works? We have removed gl...
Source: Cystic Fibrosis Alternative Medicine Forum - June 27, 2012 Category: Respiratory Medicine Authors: mysticrose Tags: Alternative Medicine Source Type: forums

Cure diseases/infections/viruses with microcurrents
I originally posted this link int he Adults section but then noticed this section and thought it might be best suited here. Very interesting video I cam accross while searching stuff. draw from it what you will, some might totally not belive it and think it's crazy but who knows. I guess when you're deperate enough you'll try anything and it seems they've got quite a bit of evidence of it working - all be it suppressed or even dismissed to the public. Anyway here it is <a href="http://video.google.ca/videoplay?docid=2095786730805958061&q=bob+beck&tot al=241&start=0&num=10&so=0&type=search&am...
Source: Cystic Fibrosis Alternative Medicine Forum - June 26, 2012 Category: Respiratory Medicine Authors: lilmac7 Tags: Alternative Medicine Source Type: forums

AP for green smoothies
A while back Josh had candida overgrowth and began drinking green smoothies as a part of his treatment. We had a recipe book, but I just found this AP that gives good info about the health benefit if each ingredient too. Just thought I'd share. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 24, 2012 Category: Respiratory Medicine Authors: Jane Tags: Alternative Medicine Source Type: forums

Trying to rid PA!
Our 6yo is still positive for PA. Since PA dx in Jan, we have done 11weeks of Tobi. Then went gluten free, dairy free, nearly sugar free, and 2weeks of inhaled colloidal silver. Also started glutathione, magnesium, and NAC during this time. Results came back today that she is still positive. Thoughts? Suggestions? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 20, 2012 Category: Respiratory Medicine Authors: brianbrandi Tags: Alternative Medicine Source Type: forums

Probiotics ~ Do you think they help
I have a 2 1/2 month old DDf508 that I have recently put on a probiotic with LGG. I am curious if you more experienced cf mom's or CFer's feel that taking a probiotic with LGG has helped you or your little one stay out of the hospital and are overall healthier with less inflamation and better digestion? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 1, 2012 Category: Respiratory Medicine Authors: Allmylife Tags: Alternative Medicine Source Type: forums

Microcyn???? Mucolyxir???
I've been reading a lot info on Microcyn? But I'm finding old data. Anyone currently using it? Please share the good and the bad. I'm aiming to get the PA out of my 6yo. Also, any current thoughts on mucolyxir. Again the threads and info I am finding is not recent. Any insight is appreciated. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 22, 2012 Category: Respiratory Medicine Authors: brianbrandi Tags: Alternative Medicine Source Type: forums

Green Smoothies
Thanks to a couple of you I am now on the green smoothie kick! So far, the only ones I have made have strawberries, spinach, and one banana in them. I know there are a ton of recipes online but are there any specific ones people like? I would love to know, so I can vary it up! And a huge thank you to those of you that have posted blogs on the more "natural" medicines for CF. It has helped me a ton! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 19, 2012 Category: Respiratory Medicine Authors: sue35 Tags: Alternative Medicine Source Type: forums

Flavon
group has finaly opened an office in the U.S. - so to those that wished to purchase - it will be opened soon - I will send a link once I get it. Asia - after over ayear on taking flavon kids and green has had a runnng nose once, her staph never returned and still has natural flora - however its from her throat. Her elastaze has jumped from 420 to 530 and - finally - she has no progress in lungs comerated to last year. She always had some little progress. I cannot say its flavon - I can only say I believe taking it made a difference in her health. Our cf specialist says its a great idea and that flavonoids make capilary mo...
Source: Cystic Fibrosis Alternative Medicine Forum - April 18, 2012 Category: Respiratory Medicine Authors: AleksandraKaczynska Tags: Alternative Medicine Source Type: forums