Parent-mediated interventions to promote communication and language development in children with down syndrome aged between birth and six years
The objectives are as follows: To systematically assess the evidence for parent-mediated interventions aimed at improving communication and language development in children with Down syndrome aged between birth and six years. As a secondary aim, we will examine the effects of the treatment on parental behaviour and responsivity. We will also assess the effects of the treatment on the children's non-verbal means of communicating and socialisation. (Source: Current Awareness Service for Health (CASH))
Source: Current Awareness Service for Health (CASH) - March 17, 2016 Category: Consumer Health News Source Type: news

Prescribing, insurance changes get last-minute approval from Florida lawmakers
Florida lawmakers Friday approved measures that would expand the drug-prescribing powers of advanced registered nurse practitioners and address a controversial health-insurance issue known as "balance billing." In a flurry of maneuvering at the end of the annual legislative session, lawmakers also approved an insurance change that will benefit people with Down syndrome — an issue dear to Senate President Andy Gardiner, whose son has Down syndrome. Gardiner has made helping people with developmental… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - March 14, 2016 Category: Pharmaceuticals Authors: Jim Saunders Source Type: news

World Down Syndrome Day: Down Syndrome in the Workplace
Campaign to celebrate World Down Syndrome Day on March 21, and awareness of how people with Down Syndrome can find employment (Source: Disabled World)
Source: Disabled World - March 12, 2016 Category: Disability Tags: Awareness - Disability Source Type: news

Health Highlights: March 10, 2016
Here are some of the latest health and medical news developments, compiled by the editors of HealthDay: Indiana Bill Would Ban Abortions for Genetic Birth Defects A bill to ban abortions due to genetic birth defects such as Down syndrome was passed... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - March 10, 2016 Category: Journals (General) Source Type: news

Indiana poised to ban abortions due to fetal defects
INDIANAPOLIS (AP) — Indiana is poised to become the second state to ban abortions sought because a fetus has a genetic abnormality such as Down syndrome under a measure headed to Gov. Mike Pence for approval. (Source: U.S. News - Health)
Source: U.S. News - Health - March 10, 2016 Category: Consumer Health News Source Type: news

MGHfC study finds positive attitudes prevail within families of people with Down syndrome
(Massachusetts General Hospital) A study from a research team led by a MassGeneral Hospital for Children physician finds that, within most families, the experience of having a member with Down syndrome is generally a positive one. (Source: EurekAlert! - Biology)
Source: EurekAlert! - Biology - March 8, 2016 Category: Biology Source Type: news

Look At Me: Why Genetic Test Results Don't Tell the Full Story
I sometimes wonder what difference it would have made if my mom knew that I had Turner syndrome while she was pregnant with me. She is adamant she never would have aborted me. But today, pre-natal genetic screenings and other fetal tests for Turner syndrome are widely used, and I worry that too many are making irreversible decisions without understanding the disorder. Studies around the world have shown parents abort an average of 76 percent of fetuses found to have TS. Like Down syndrome or autism, Turner is a spectrum disorder with symptoms that range in severity, and a diagnosis is no indication of what an individual's ...
Source: Science - The Huffington Post - March 7, 2016 Category: Science Source Type: news

When Baby Is Due, Genetic Counselors Seen Downplaying False Alarms
Maplewood, N.J. - Little Kate Summersgill certainly didn’t look like a child with Down syndrome — no upward slanting eyes or telltale flat facial features. Devon and Mike Summersgill had believed baby Kate was all but certain to be born with the intellect-stunting disorder because of a blood test Devon’s doctor recommended during her 2014 pregnancy. Even after the birth, when their baby looked fine, their genetic counselor, Laura Limone, insisted that the result of the test was not a mistake, Devon says. Only after the Summersgills agonized over Kate’s future and spent almost $2,000 more on another ...
Source: Science - The Huffington Post - March 7, 2016 Category: Science Source Type: news

Enabling 2-wheeled cycling for youth with Down syndrome - Halayko J, Magill-Evans J, Smith V, Polatajko H.
PURPOSE: To study the effectiveness of cognitive orientation to daily occupational performance (CO-OP) to teach motor skills to youth with intellectual disabilities. METHODS: Six youth aged 12 to 19 years participated in this study. A multiple base... (Source: SafetyLit)
Source: SafetyLit - March 7, 2016 Category: Global & Universal Tags: Age: Adolescents Source Type: news

Video shows dad tearfully explains why son's Down syndrome is 'the most beautiful thing'
Robb Scott, 39, of Nova Scotia posted a video speaking up for his son and other children with Down syndrome after hearing a stranger call it 'an illness' - Robb totally disagrees. (Source: the Mail online | Health)
Source: the Mail online | Health - February 29, 2016 Category: Consumer Health News Source Type: news

Why this father says ‘Down syndrome is the best thing that ever happened to me’
During a recent trip to a store, Robb Scott overheard a little boy ask his father a simple question: "What is Down syndrome?" The boy's father told his son that it's an illness of "not knowing anything." Scott — the father of a 5-year-old with Down syndrome — wanted to correct the man's statement; but, […] (Source: Washington Post: To Your Health)
Source: Washington Post: To Your Health - February 26, 2016 Category: Consumer Health News Authors: Peter Holley Tags: child & maternal health Source Type: news

'It is not an illness': Emotional moment dad tearfully explains why his five-year-old son's Down syndrome is 'the most beautiful thing' to happen to him and his family
Robb Scott, 39, of Nova Scotia posted a video speaking up for his son and other children with Down syndrome after hearing a stranger call it 'an illness' - Robb totally disagrees. (Source: the Mail online | Health)
Source: the Mail online | Health - February 26, 2016 Category: Consumer Health News Source Type: news

Genomic analysis pinpoints a potential target for treatment of Down syndrome
A study of changes in the patterns of gene activity in the brains of people with Down syndrome reveals that the formation of the brain’s white matter is affected throughout life, a finding that suggests treatment might be possible for the condition that affects 400,000 Americans. (Source: Yale Science and Health News)
Source: Yale Science and Health News - February 25, 2016 Category: Universities & Medical Training Tags: Yale News Source Type: news

Gene Abnormality May Be Key to Down Syndrome, Scientists Say
Results might eventually lead to new treatments, study authors suggest Source: HealthDay Related MedlinePlus Pages: Down Syndrome, Genes and Gene Therapy (Source: MedlinePlus Health News)
Source: MedlinePlus Health News - February 25, 2016 Category: Consumer Health News Source Type: news

Gene Abnormality May Be Key to Down Syndrome, Scientists Say
Results might eventually lead to new treatments, study authors suggest (Source: U.S. News - Health)
Source: U.S. News - Health - February 25, 2016 Category: Consumer Health News Source Type: news

Gene Abnormality May Be Key to Down Syndrome, Scientists Say
THURSDAY, Feb. 25, 2016 -- Researchers say they've discovered a genetic abnormality that affects brain development in people with Down Syndrome, and they say this finding might lead to new treatments. "This discovery of the genetic changes that... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - February 25, 2016 Category: Journals (General) Source Type: news

Father's viral Down syndrome video promotes awareness, community says
An emotional video of a Truro father explaining what he's learned from having a son with Down syndrome has struck a chord with parents of special-needs children across Canada and around the world. (Source: CBC | Health)
Source: CBC | Health - February 25, 2016 Category: Consumer Health News Tags: News/Canada/Nova Scotia Source Type: news

Kenny Cridge aged 76 is the world's oldest man with Down's Syndrome
Like many people of his age with the condition, Kenny Cridge, from Somerset, was not expected to reach his teens. Staff at his care home describe him as a 'true gent'. (Source: the Mail online | Health)
Source: the Mail online | Health - February 23, 2016 Category: Consumer Health News Source Type: news

Two Worlds, One Lesson
II. The People you meet along the way Pediatric Cancer The king rides down the hallway on his big wheel screeching into the room carrying the "contraband." Caitlin explodes into laughter. "Caitie I got it- the pepperoni." Never before had she had anything like it. They formed a fast friendship over food and chemo meds. " I really can't taste anything unless it is salty or spicy," he informs her and she introduces him to chips and dunk (chips and spicy dip) and pickles. They know each other's schedules for receiving inpatient chemo and are happy when they can race each other down the hall...
Source: Healthy Living - The Huffington Post - February 5, 2016 Category: Consumer Health News Source Type: news

Better Speech Therapy for Children with Down syndrome
Study shows children with Down syndrome who have motor speech deficits have been inadequately diagnosed (Source: Disabled World)
Source: Disabled World - February 5, 2016 Category: Disability Tags: Therapy Types Source Type: news

More effective speech therapy approach for children with Down Syndrome
Children with Down syndrome who have motor speech deficits have been inadequately diagnosed, which could have a major impact on the interventions used by speech pathologists when treating patients, a new study indicates. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - February 5, 2016 Category: Science Source Type: news

Study suggests more effective speech therapy approach for children with Down syndrome
(University of Vermont) A new study indicates that children with Down syndrome who have motor speech deficits have been inadequately diagnosed, which could have a major impact on the interventions used by speech pathologists when treating patients. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - February 4, 2016 Category: Global & Universal Source Type: news

The Latest On Zika: New Countries Are Added To The CDC's Watch List
On Monday the U.S. Centers for Disease Control and Prevention added four countries and territories to its growing list of places with active Zika virus transmissions, which means that the cases occurred locally, rather than in travelers returning from a place where they acquired the virus. So far, no local cases of Zika have been reported in the United States.  The virus, which is spread by the Aedes aegypti mosquito, is strongly suspected to be linked to a new wave of microcephaly cases in Brazil. Babies born with the birth defect have smaller heads and brains that aren't fully developed, which can result in lif...
Source: Healthy Living - The Huffington Post - February 2, 2016 Category: Consumer Health News Source Type: news

Cell insight offers clues on biological processes linked to fertility
Congenital disorders such as Down's syndrome could be better understood, following new insights into how healthy cells are formed. Scientists have identified a set of proteins that play a key role in preventing errors during the formation of healthy cells. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - February 2, 2016 Category: Science Source Type: news

Undefeated wrestler lets opponent with Down syndrome win
A high school wrestling star gave up a shot at going undefeated this year, but some people think he had the perfect season. (Source: CNN.com - Health)
Source: CNN.com - Health - January 28, 2016 Category: Consumer Health News Source Type: news

Down Syndrome Is Thought to Hold Clues to Alzheimer's
As people with Down syndrome live longer, many are developing Alzheimer’s, sparking a push to find early changes associated with the disease, vaccine research and the building of new homes to provide specialized care. (Source: WSJ.com: Health)
Source: WSJ.com: Health - January 22, 2016 Category: Pharmaceuticals Tags: PAID Source Type: news

Down's Syndrome people risk 'extinction' at the hands of science, fear and ignorance
Society doesn't do enough to show women carrying a baby with Down's that the life inside them is precious, intelligent and capable of so much (Source: Telegraph Health)
Source: Telegraph Health - January 18, 2016 Category: Consumer Health News Tags: test medecine genetic editing prolife abortion dna extinction euthanasia down's syndrome Source Type: news

Blood test for Down's syndrome set to be offered on the NHS
The UK National Screening Committee has recommended the new blood test be made available in hospitals, to replace an exam which 35 per cent of women reject due to the risk. (Source: the Mail online | Health)
Source: the Mail online | Health - January 15, 2016 Category: Consumer Health News Source Type: news

Safer Down's test backed for NHS use
Pregnant women in the UK should soon get a safer and more accurate test for Down's syndrome, on the NHS, to reduce the risk of miscarriage. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - January 15, 2016 Category: Consumer Health News Source Type: news

Hundreds of babies could be saved after Down's Syndrome blood test is approved for NHS
Women will no longer face miscarriage through invasive Down's Syndrome tests (Source: Telegraph Health)
Source: Telegraph Health - January 15, 2016 Category: Consumer Health News Tags: die babies blood test NHS down's syndrome Source Type: news

Study to use Prozac to treat Down syndrome in utero
Stephen FellerDALLAS, Jan. 13 (UPI) -- Researchers are set to start recruiting pregnant women for a new multi-year study to test the effects of Prozac on fetuses diagnosed with Down syndrome. (Source: Health News - UPI.com)
Source: Health News - UPI.com - January 13, 2016 Category: Consumer Health News Source Type: news

How a model with Down syndrome made it to the catwalk
(Source: CNN.com - Health)
Source: CNN.com - Health - December 29, 2015 Category: Consumer Health News Source Type: news

ISIS aligns with Richard Dawkins and the radical left, orders mass murder of infants with Down's syndrome, birth defects, reports claim
(NaturalNews) Increasingly, radicalized American and Western Leftists are becoming ideologically aligned with the terrorist organization known as the Islamic State, and this latest example is just disgusting, if true.Reports from a Middle East-based human rights organization say... (Source: NaturalNews.com)
Source: NaturalNews.com - December 16, 2015 Category: Consumer Health News Source Type: news

This May Explain Down Syndrome Health Problems
Finding might lead to ways to help prevent heart disease, diabetes in these patients, researchers say (Source: WebMD Health)
Source: WebMD Health - December 14, 2015 Category: Consumer Health News Source Type: news

Genetic Abnormality May Explain Health Complications of Down Syndrome
Finding might lead to ways to help prevent heart disease, diabetes in these patients, researchers say Source: HealthDay Related MedlinePlus Pages: Down Syndrome, Genes and Gene Therapy (Source: MedlinePlus Health News)
Source: MedlinePlus Health News - December 14, 2015 Category: Consumer Health News Source Type: news

Genetic Abnormality May Explain Health Complications of Down Syndrome
Title: Genetic Abnormality May Explain Health Complications of Down SyndromeCategory: Health NewsCreated: 12/14/2015 12:00:00 AMLast Editorial Review: 12/14/2015 12:00:00 AM (Source: MedicineNet Kids Health General)
Source: MedicineNet Kids Health General - December 14, 2015 Category: Pediatrics Source Type: news

Apology over 'do not resuscitate' order
A hospital trust apologises for placing a "do not resuscitate" order on a patient with Down's Syndrome, and listing his learning difficulties among the reasons. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - December 8, 2015 Category: Consumer Health News Source Type: news

Why Scientists Need to Embrace Crowdfunding
From the junior physician attempting to start a pilot study to the seasoned researcher in the final years of an academic grant, the harsh reality of medical research funding constantly looms. Young researchers have faced the worst funding in half a century. The competition for public research grants has intensified to the point where less than 15% of proposals obtain funding. The $1.55 billion budget cut to the National Institute of Health (NIH) in 2013 alone resulted in an estimated 640 fewer research studies receiving funding. Researchers are now encouraged to prepare for grant applications years in advance and to expect...
Source: Science - The Huffington Post - November 19, 2015 Category: Science Source Type: news

NIH supports new studies to find Alzheimer’s biomarkers in Down syndrome
Groundbreaking initiative will track dementia onset, progress in Down syndrome volunteers. (Source: National Institutes of Health (NIH) News Releases)
Source: National Institutes of Health (NIH) News Releases - November 18, 2015 Category: American Health Source Type: news

Down syndrome bodybuilder fulfills his dream by appearing in his first competition
Inside video captures the former 205-pound front desk staffer at Bob's Gym North transformed before the audience's eyes into a confident and sculpted competitor, with his first ever fifth place ranking. (Source: the Mail online | Health)
Source: the Mail online | Health - November 18, 2015 Category: Consumer Health News Source Type: news

How A Dying Country Singer Is Saying Farewell To Her Daughter
A country music duo are focusing on family in the face of tragedy.  In June 2014, singer Joey Feek, who, with her husband Rory, makes up the duo Joey + Rory, was diagnosed with cervical cancer -- just four months after giving birth to the couple's first child, a daughter named Indiana. After a long battle, the family announced last month that she would be ending medical treatment. On November 9, Rory revealed that Joey was preparing for home hospice care on his blog, This Life I Live. In the post, the dad reflected on their final days in the hospital and shared how his family is planning to spend as much tim...
Source: Healthy Living - The Huffington Post - November 10, 2015 Category: Consumer Health News Source Type: news

Hospital doctor found guilty of manslaugher after blunders left a six-year-old boy dead
Jack Adcock, who had Down's syndrome and a heart condition, was misdiagnosed by "incompetent" Dr Hadiza Bawa-Garba (Source: Telegraph Health)
Source: Telegraph Health - November 4, 2015 Category: Consumer Health News Source Type: news

Growth Charts for Children with Down Syndrome
Pediatric researchers have developed the first set of growth charts for U.S. children with Down syndrome since 1988. These new charts provide an important tool for pediatricians to evaluate growth milestones for children and adolescents with this condition. With these new charts, pediatricians will be able to compare each patient's growth patterns with peers of the same age and sex who have Down syndrome. (Source: Disabled World)
Source: Disabled World - October 30, 2015 Category: Disability Tags: Calculators and Charts Source Type: news

How a model with Down syndrome made it to the catwalk
When Madeline was born November 13, 1996, it came as quite a shock to be told my tiny baby had Down syndrome. I was completely unaware of what the genetic disorder was. I had never known anyone with a disability, so I was oblivious to what it meant. (Source: CNN.com - Health)
Source: CNN.com - Health - October 29, 2015 Category: Consumer Health News Source Type: news

Mother of boy with Down's syndrome feared she'd failed her family
Sarah Roberts, 37, from Woking, Surrey believed she'd let her family down when her son was born with Down's syndrome. Now she says she was wrong to be scared of the future with baby Oscar. (Source: the Mail online | Health)
Source: the Mail online | Health - October 29, 2015 Category: Consumer Health News Source Type: news

Down syndrome teen takes modeling world by storm
(Source: CNN.com - Health)
Source: CNN.com - Health - October 28, 2015 Category: Consumer Health News Source Type: news

New growth charts developed for US children with Down syndrome
Pediatric researchers have developed the first set of growth charts for US children with Down syndrome since 1988. These new charts provide an important tool for pediatricians to evaluate growth milestones for children and adolescents with this condition. With these new charts, pediatricians will be able to compare each patient's growth patterns with peers of the same age and sex who have Down syndrome. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - October 27, 2015 Category: Science Source Type: news

New growth charts developed for US children with Down syndrome
(Children's Hospital of Philadelphia) Pediatric researchers have developed the first set of growth charts for US children with Down syndrome since 1988. These new charts provide an important tool for pediatricians to evaluate growth milestones for children and adolescents with this condition. With these new charts, pediatricians will be able to compare each patient's growth patterns with peers of the same age and sex who have Down syndrome. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - October 27, 2015 Category: Global & Universal Source Type: news

DNA test for Down's syndrome on the NHS could save lives
(Wiley) Offering pregnant women a DNA test for Down's syndrome on the NHS would reduce the dependency on invasive tests and potentially save the lives of unborn babies, a study shows. (Source: EurekAlert! - Biology)
Source: EurekAlert! - Biology - October 26, 2015 Category: Biology Source Type: news

“I get them distracted.”
(Katherine C. Cohen/Boston Children’s Hospital) Nate Simons Patient Liaison I’m a patient liaison. That’s my official title, but I prefer greeter. I greet the families that come in and walk them to their appointment rooms. I play with the kids. The kids are so adorable. They’re so cute. Sometimes if they’re cranky, I play “Wheels on the Bus” on Youtube on my phone. I get them distracted with “Wheels on the Bus.” That’s my favorite song ever. I used to listen to it myself when I was a kid. I love my job. I have a great boss, and I love the pay. I work here part-ti...
Source: Thrive, Children's Hospital Boston - October 23, 2015 Category: Pediatrics Authors: Lisa Fratt Tags: Care Team Down syndrome Down Syndrome Program Source Type: news