Viewpoint: 'Children see a person not a disability'
'Children don't see my boy as Down's syndrome; adults do' (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - February 19, 2015 Category: Consumer Health News Source Type: news

Brains of people with Down syndrome age faster, UCLA study discovers
FINDINGS A new UCLA study is the first to demonstrate that Down syndrome accelerates aging in different parts of the body. The researchers showed that the biological age of brain tissue from someone with Down syndrome appeared 11 years older than the person’s chronological age. Similarly, the biological age of blood tissue was nearly five years older than the person’s chronological age. The UCLA team will next test tissue samples from teens with Down syndrome to pinpoint when aging speeds up in people with the condition. IMPACT The findings could explain why people with Down syndrome face a six times highe...
Source: UCLA Newsroom: Health Sciences - February 18, 2015 Category: Universities & Medical Training Source Type: news

MADE KNOWN: Tips to Help Children with Disabilities
The odds are against mothers and fathers who have been given a child that is different. Recently, Ruzan Badalyan and Samuel Forrest made news when their world changed when baby Leo was given the diagnosis of Down syndrome - all because disabilities are not accepted in Armenia. (Source: Disabled World)
Source: Disabled World - February 17, 2015 Category: Disability Tags: Child Disability Source Type: news

Cell-Free DNA Test Most Accurate for Trisomy 21 ScreeningCell-Free DNA Test Most Accurate for Trisomy 21 Screening
Screening for Down syndrome by analyzing cell-free DNA (cfDNA) in maternal blood has a higher detection rate and lower false-positive rate than other screening approaches, the authors of a new meta-analysis conclude. Reuters Health Information (Source: Medscape ObGyn and Womens Health Headlines)
Source: Medscape ObGyn and Womens Health Headlines - February 12, 2015 Category: OBGYN Tags: Ob/Gyn & Women ' s Health News Source Type: news

UH team works to help patients with Down syndrome see better
(University of Houston) New computer-simulated prescribing strategies for glasses may improve the vision of individuals with Down syndrome, thanks to a team of University of Houston College of Optometry researchers who received a $1.67 million grant from the National Eye Institute. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - February 11, 2015 Category: Global & Universal Source Type: news

Canadian teen with Down syndrome a YouTube star
Madison Tevlin is challenging perceptions about people with Down syndrome (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - February 10, 2015 Category: Consumer Health News Source Type: news

Joey’s message of hope: Listen to your heart
Five minutes. That’s how long Joey Williams was expected to live – IF he made it to term, which his doctors were not expecting. His mother, Rebecca Williams, received the  prognosis when she was 21 weeks pregnant. Prenatal testing had already revealed that Joey had Down syndrome and a significant type of congenital heart disease in which one of the sides of his heart was underdeveloped. His diagnoses included atrial septal defect and ventricular septal defect. When Rebecca heard the news of her son’s meager life expectancy, she was devastated. Yet she also felt a well of unconditional love grow ...
Source: Thrive, Children's Hospital Boston - February 9, 2015 Category: Pediatrics Authors: Erin Horan Tags: Heart conditions Our patients’ stories Source Type: news

Namibia: Support for Down Syndrome Mothers
[Namibia Economist]Dr Eline van der Linden, Chairperson of the Down Syndrome Association of Namibia (DSAN) said when her daughter Namasiku was born with Down syndrome ,she had no clue how to handle this child with special needs and there was no support organization to turn to. This was one of the reasons she, other parents and caretakers of persons with Down syndrome decided to launch DSAN in October 2012. "We still face quite a few challenges but our association is a work in progress and we will not give up," she stated add (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - February 8, 2015 Category: African Health Source Type: news

Samuel Forrest forced to choose between his wife and Down syndrome son
Samuel Forrest's wife gave birth to their first child Leo on January 21 in an Armenian hospital. But just hours after the birth, Leo's New Zealand born father was given an ultimatum by his wife of 18 months. (Source: the Mail online | Health)
Source: the Mail online | Health - February 6, 2015 Category: Consumer Health News Source Type: news

VIDEO: The 'inspirational' teen singer with Down's syndrome
Debate over a Down’s Syndrome teenager’s singing ability (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - February 5, 2015 Category: Consumer Health News Source Type: news

Green Tea Dosage and Cost
Daily recommended epigallocatechin 3-0 gallate (EGCG) dosage is 9 mg per kilogram of body weight, where the EGCG content of Greenselect is 13%. (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - February 3, 2015 Category: Pediatrics Source Type: news

Green Tea Abstracts
Green tea (EGCG) Greenselect abstracts (Source: Riverbend Down Syndrome Parent Support Group)
Source: Riverbend Down Syndrome Parent Support Group - February 3, 2015 Category: Pediatrics Source Type: news

Non-invasive first trimester blood test reliably detects Down's syndrome
(Wiley) Cell-free fetal DNA testing, which measures the relative amount of free fetal DNA in a pregnant woman's blood, is a new screening test that indicates the risk of Down syndrome (trisomy 21), (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - February 2, 2015 Category: Global & Universal Source Type: news

NIH launches tool to advance Down syndrome research
Web portal will help approved professionals to plan clinical studies. (Source: National Institutes of Health (NIH) News Releases)
Source: National Institutes of Health (NIH) News Releases - January 27, 2015 Category: American Health Source Type: news

(Inadequately) Talking to My Kid About Death
This past year, our family has experienced the death of my grandma and the recent deaths of both my husband's father and our family dog, Sammy. In the midst of grief, we had to deliver our own poorly-planned, scrambled explanations of death to our youngest son Aaron, who is 11 and has Down syndrome. At the best of times, I have a hard time guessing what's going on in Aaron's head. His cognitive disability means that he doesn't always acknowledge his understanding in ways that we comprehend. His emotions and attempts to communicate can come out as misdirected behavior. The challenge is to be compassionate and patient with ...
Source: Healthy Living - The Huffington Post - January 16, 2015 Category: Consumer Health News Source Type: news

World Down Syndrome Day Conference
Down Syndrome International announces the 4th World Down Syndrome Day Conference, based on the theme “'My Opportunities, My Choices' - Enjoying Full and Equal Rights and the Role of Families” will take place at United Nations Headquarters in New York, USA on Friday 20 March 2014. (Source: Disabled World)
Source: Disabled World - January 10, 2015 Category: Disability Tags: Events Source Type: news

Walking dynamics in preadolescents with and without Down syndrome - Wu J, Beerse M, Ajisafe T, Liang H.
This study aimed to investigate whether children with Down syndrome (DS) have a lower K/G ratio, a primary ... (Source: SafetyLit: All (Unduplicated))
Source: SafetyLit: All (Unduplicated) - December 25, 2014 Category: Global & Universal Tags: Age: Infants and Children Source Type: news

Prenatal Tests: What Your Patients Should KnowPrenatal Tests: What Your Patients Should Know
A new generation of prenatal testing options has boomed, offering worried mothers and fathers-to-be screening tests that let them know not only the gender of their baby, but also whether the child is at risk for Down syndrome and other abnormalities. WebMD Health News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - December 23, 2014 Category: Consumer Health News Tags: Ob/Gyn & Women ' s Health News Source Type: news

Let's Unpack The Stories Behind Those Mysterious Texas Brains
Last month, a Halloween-appropriate story went viral, of a cache of brains, decades old, that seemed to have vanished. The missing brains were part of a gift of 200 or so bequeathed to the University of Texas at Austin in 1986, after a frenzied bidding war among institutions including Harvard University. Dating back to the 1950s, the brains came from patients of what was then called the Texas State Lunatic Asylum (since rechristened the Austin State Hospital), an atypically benevolent mental institution from the days when such places could be as bleak as prisons. The university was ostensibly keeping the brains to rese...
Source: Science - The Huffington Post - December 23, 2014 Category: Science Source Type: news

National Down Syndrome Registry, Built and Administered by...
DS-Connect®: the Down Syndrome Registry is a secure, free resource for the entire Down syndrome community(PRWeb December 18, 2014)Read the full story at http://www.prweb.com/releases/2014/12/prweb12402601.htm (Source: PRWeb: Medical Pharmaceuticals)
Source: PRWeb: Medical Pharmaceuticals - December 19, 2014 Category: Pharmaceuticals Source Type: news

Doctor and two nurses charged with manslaughter after boy with Down's Syndrome died in hospital
Jack Adcock, who had Down’s syndrome and other pre-existing health problems, died of pneumonia at Leicester Royal Infirmary almost five years ago. (Source: the Mail online | Health)
Source: the Mail online | Health - December 18, 2014 Category: Consumer Health News Source Type: news

Lincolnshire woman sheds 7st to stay alive for daughter born with Down's syndrome
Stacie Watts, 28, dropped from 20 stone to 12 stone and lost six dress sizes, raising more than £300 for the Leeds General Infirmary, which saved the life of her daughter Ellie-Mae, now four. (Source: the Mail online | Health)
Source: the Mail online | Health - December 17, 2014 Category: Consumer Health News Source Type: news

Breaking from Our Eugenic Past
The recognition of this history is timely because advances in genetic and reproductive technologies will put increasingly more people in the position of having to wrestle with questions about the kind of child they want – and don’t want – to bring into the world.read more (Source: Psychology Today Parenting Center)
Source: Psychology Today Parenting Center - December 12, 2014 Category: Psychiatry & Psychology Authors: Jessica Cussins Tags: Education Health Parenting Philosophy assisted reproduction down syndrome eugenics GenePeeks genetics genomics Haunted Files Jon Entine Lee Silver new york university north carolina reproductive justice reproductive rights Source Type: news

Roche Acquires Molecular Diagnostics Firm
Though financial details were not disclosed, Roche has declared its acquisition of Ariosa Diagnostics, a California-based molecular diagnostics firm. Ariosa provides highly targeted and non-invasive prenatal testing that assesses the risk of Down syndrome (DS) and other genetic abnormalities. (Source: Medical Design Online News)
Source: Medical Design Online News - December 3, 2014 Category: Medical Equipment Source Type: news

When a Little Girl With Down Syndrome Showed What's 'Possible'
Nearly nine years ago a doctor offered us a grim pronouncement of developmental delays and mental retardation. And last week, our daughter spelled possible. (Source: ABC News: Health)
Source: ABC News: Health - December 2, 2014 Category: Consumer Health News Tags: Lifestyle Source Type: news

Roche says will buy U.S. maker of prenatal Down syndrome test
ZURICH (Reuters) - Roche said on Tuesday it will acquire San Jose, CA-based Ariosa Diagnostics, Inc., a molecular diagnostics firm which makes a prenatal test to assess the risk of Down syndrome and other genetic abnormalities. (Source: Reuters: Health)
Source: Reuters: Health - December 2, 2014 Category: Consumer Health News Tags: healthNews Source Type: news

Results from Clinical Study in Young Adults with Down Syndrome
Transition's wholly-owned subsidiary, Transition Therapeutics Ireland Limited ("TTIL") completed this first study in Down syndrome subjects without dementia to allow optimal dose selection for future larger studies. (Source: Disabled World)
Source: Disabled World - November 20, 2014 Category: Disability Tags: Clinical Trials Source Type: news

Seeing the divine in children born disabled ignores their very real humanity
People have interpreted anomalies in babies as messages from God for centuries, and modern scientists are attempting to link genetic differences to our chemical-laced lifestyles. These overlook one simple fact: the human life before themWhen my brother was born, I was told he was a sign from God. Church ladies hovered around him, cooing over his bright, blue almond-shaped eyes and declaring him to be an angel, sent from heaven. Or even a little bit of God here on Earth. My brother was born with Down’s syndrome and for most of his life, people have been making it a point to talk about how he is a divine gift – a...
Source: Guardian Unlimited Science - November 18, 2014 Category: Science Authors: Lyz Lenz Tags: Children Genetics Health Down's syndrome Biology Science Society Religion Source Type: news

Dementia Tied to Mortality in Older Adults With Down Syndrome
Crude mortality rates for individuals with dementia were five times higher than for those without (Source: The Doctors Lounge - Psychiatry)
Source: The Doctors Lounge - Psychiatry - November 11, 2014 Category: Psychiatry Tags: Family Medicine, Internal Medicine, Neurology, Pharmacy, Psychiatry, Journal, Source Type: news

Functional Milestones Identified for Persons With Down Syndrome
Most maintain personal hygiene by age 13, work independently by 20; 34 percent live independently (Source: The Doctors Lounge - Psychiatry)
Source: The Doctors Lounge - Psychiatry - November 11, 2014 Category: Psychiatry Tags: Family Medicine, Nursing, Pediatrics, Psychiatry, Journal, Source Type: news

The mother who defied her doctors over Down's syndrome
Marien von Roth, 33, defied doctors' warnings that her babies could be born with Down's syndrome. She said the routine Down’s tests had ‘ruined’ her pregnancies. (Source: the Mail online | Health)
Source: the Mail online | Health - November 1, 2014 Category: Consumer Health News Source Type: news

Let's (Cautiously) Celebrate the "New Eugenics"
It's a subject doctors, health providers and medical experts are discussing feverishly, but often quietly: whether parents should undergo genetic tests, either before conception or after, to determine if their unborn child might have a serious genetic disorder. Hanging over the debate is the specter of eugenics--fears that the ability to manipulate the health of our future babies could devalue the sanctity of life. About three percent of babies in the United States are born with a major structural or genetic birth defect. It's a bracing occurrence for a family and a multi-billion hit to our already strained medical sys...
Source: Science - The Huffington Post - October 30, 2014 Category: Science Source Type: news

This Man Ditched Wall Street To Start A Business That Hires People With Disabilities
Ben Wright began seeing the world differently when his two youngest children were born with Down syndrome. He realized educational and career opportunities would be much tougher to come by for kids that are deemed less able to succeed in the eyes of society, so he decided to leave his job at a Wall Street firm and ensure a future for children like his own. "What we noticed was -- at about age 21, 22, 23, at least here in North Carolina -- folks with (intellectual and developmental disabilities) just sort of fell off the grid," he told HuffPost Live on Tuesday. "We selfishly didn't want our children to be ...
Source: Healthy Living - The Huffington Post - October 30, 2014 Category: Consumer Health News Source Type: news

Why Yoga is like food
As far as Emily Davidson, MD, MPH, RYT is concerned, claiming to not like yoga is like saying you don’t like food. “There’s a really big range of what kinds of yoga practices you can do,” she explains. Davidson, who is the director of Boston Children’s Down syndrome Program, speaks from personal experience. She started practicing yoga in 1998 after she was diagnosed with coronary artery disease and discovered that, along with improving her flexibility and strength, yoga helped manage the stress of her diagnosis and treatment. In fact, she liked it so much that she went on to complete a 200-hou...
Source: Thrive, Children's Hospital Boston - October 29, 2014 Category: Pediatrics Authors: Kipaya Kapiga Tags: All posts Down syndrome yoga Source Type: news

Clues to genetics of congenital heart defects emerge from Down syndrome study
The largest genetic study of congenital heart defects in individuals with Down syndrome found a connection to rare, large genetic deletions affecting cilia, scientists report. The high risk for congenital heart defects in this group provides a tool to identify changes in genes, both on and off chromosome 21, which are involved in abnormal heart development. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - October 25, 2014 Category: Science Source Type: news

Clues to genetics of congenital heart defects emerge from Down syndrome study
(Emory Health Sciences) The largest genetic study of congenital heart defects in individuals with Down syndrome found a connection to rare, large genetic deletions affecting cilia. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - October 24, 2014 Category: Global & Universal Source Type: news

New insight on why people with Down syndrome invariably develop Alzheimer's disease
(Sanford-Burnham Medical Research Institute) Researchers discover the cell events in the brains of individuals with Down syndrome that lead to the amyloid pathology observed in the brains of patients with Alzheimer's disease. The findings support a novel approach to treating and preventing both diseases. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - October 23, 2014 Category: Global & Universal Source Type: news

I wish I'd aborted the son I've spent 47 years caring for: It's a shocking admission - but read on before you judge
Gillian Relf, 69, from Kent, regrets having her son, Stephen, 47, because he was born with Down's Syndrome. (Source: the Mail online | Health)
Source: the Mail online | Health - October 23, 2014 Category: Consumer Health News Source Type: news

Ellie Harrington with Down's syndrome who has learnt to talk by copying her sister Evie
Two-year-old Ellie Harrington, from Ely, Cambridgeshire, has started walking early in order to keep up with four-year-old sister Evie. Parents say the pair are a 'little double act'. (Source: the Mail online | Health)
Source: the Mail online | Health - October 22, 2014 Category: Consumer Health News Source Type: news

Fashion lines designed specifically for people with Down syndrome
Ashley DeReamus and her mother Connie from Hoover, Alabama, have founded Ashley By Design, one of two new fashion lines designed specifically for people with Down syndrome. (Source: the Mail online | Health)
Source: the Mail online | Health - October 13, 2014 Category: Consumer Health News Source Type: news

Former Ballerina Teaches Students with Down Syndrome to Dance
The Free 2 Be Me Dance Troupe is the subject of a new documentary. (Source: ABC News: Health)
Source: ABC News: Health - October 11, 2014 Category: Consumer Health News Tags: Health Source Type: news

Watch: Former Ballerina Teaches Dance to Down Syndrome Students
Colleen Perry returned to dance to work with her new students. (Source: ABC News: Health)
Source: ABC News: Health - October 10, 2014 Category: Consumer Health News Tags: Health Source Type: news

Ex-Ballerina Teaches Down Syndrome Students to Dance
The Free 2 Be Me Dance Troupe is the subject of a new documentary. (Source: ABC News: Health)
Source: ABC News: Health - October 10, 2014 Category: Consumer Health News Tags: Health Source Type: news

Multiple neurodevelopmental disorders have a common molecular cause
(Cell Press) Neurodevelopmental disorders such as Down syndrome and autism-spectrum disorder can have profound, lifelong effects on learning and memory, but relatively little is known about the molecular pathways affected by these diseases. A study published in the American Journal of Human Genetics shows that neurodevelopmental disorders caused by distinct genetic mutations produce similar molecular effects in cells, suggesting that a one-size-fits-all therapeutic approach could be effective for conditions ranging from seizures to attention-deficit hyperactivity disorder. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - October 9, 2014 Category: Global & Universal Source Type: news

Day occupation is associated with psychopathology for adolescents and young adults with Down syndrome - Foley KR, Jacoby P, Einfeld S, Girdler S, Bourke J, Riches V, Leonard H.
BackgroundYoung adults with Down syndrome experience increased rates of emotional and behavioural problems compared with the general population. Most adolescents with Down syndrome living in Western Australia participate in sheltered employment as their ma... (Source: SafetyLit: All (Unduplicated))
Source: SafetyLit: All (Unduplicated) - October 4, 2014 Category: Global & Universal Tags: Age: Adolescents Source Type: news

Dementia among people with Down syndrome doubles in three years
People with intellectual disabilities less likely to develop hypertension and heart attacks (Source: The Irish Times - Health)
Source: The Irish Times - Health - October 1, 2014 Category: Consumer Health News Source Type: news

Down Syndrome Symptoms
(Source: eMedicineHealth.com)
Source: eMedicineHealth.com - September 30, 2014 Category: Journals (General) Source Type: news

Down syndrome helps researchers understand Alzheimer's disease
(University of Wisconsin-Madison) The link between a protein typically associated with Alzheimer's disease and its impact on memory and cognition may not be as clear as once thought, according to a new study from the University of Wisconsin-Madison's Waisman Center. The researchers looked at the role of the brain protein amyloid-β in adults living with Down syndrome, a genetic condition that leaves people more susceptible to developing Alzheimer's. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - September 18, 2014 Category: Global & Universal Source Type: news

Molecular mechanisms of birth defects among older women: Why older women can have babies with Down Syndrome
Researchers studying cell division in fruit flies have discovered a pathway that may improve understanding of molecular mistakes that cause older women to have babies with Down syndrome. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - September 11, 2014 Category: Science Source Type: news

Down's Syndrome babies should be killed, urges top scientist
(NaturalNews) Top scientist Richard Dawkins isn't interested in protecting life on Earth. He's only interested in protecting a planet full of people that he approves of. To him, Down syndrome babies have no importance in the world and should be terminated before they take their first... (Source: NaturalNews.com)
Source: NaturalNews.com - September 11, 2014 Category: Consumer Health News Source Type: news