Interventions and Predictors of Transition to Hospice for People Living with Dementia: A State of the Science Review
1. Upon successful completion, participants will be able to describe the current state of the science related to interventions and predictors that lead to hospice transitions for persons living with dementia.2. Upon successful completion, participants will be able to understand gaps in the evidence related to hospice transitions and recommendations for future research. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Srija Gogineni, Tina Sadarangani, Karen Bullock, Margaret McDonald, Dena Schulman-Green, Abraham A. Brody, Komal P. Murali Source Type: research
A Case Series Recognizing Terminal Lucidity in Non-Dementia Hospice and Palliative Care Patients
1. Describe the signs and symptoms of terminal lucidity.2. Integrate knowledge of terminal lucidity to guide prognostic expectations and advance care planning counseling. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Kelly Chin, Jessica Chin, Jennifer Tom, Antonio Corona Source Type: research
National Emergency Department Utilization by Patients with Alzheimer's Disease and Related Dementias
1. Participants will be able to describe national patterns in dementia patients ’ emergency department utilization.2. Participants will be able to describe how dementia patients' prior site of residence / care appears to be associated with their subsequent ED utilization and costs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Jason K. Bowman, James A. Tulsky, Christine S. Ritchie, Joan M. Teno Source Type: research
Palliative Care in Early Dementia: A Scoping Review (GP141)
1. Describe palliative needs in early dementia and effective elements in palliative care for early dementia.2. Comment on the controversies around timing of early palliative care and describe elements of a dementia-specific approach to advance care planning. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Karen de Sola-Smith, Jenny T. van der Steen, Christine S. Ritchie, Lauren Hunt, Joni Gilissen, Lieve Van den Block Source Type: research
Experiences of Caregivers of Persons Dying with Rapidly Progressive versus Slower-Duration Dementia Syndromes (GP122)
1. Understand the end-of-life experiences from the perspective of bereaved care partners with sporadic Creutzfeldt Jacob Disease.2. Evaluate end-of-life experiences from the perspective of bereaved care partners with Alzheimer's dementia or other slower-course dementia syndromes. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Krista L. Harrison, Madina Halim, Sarah B. Garrett, Christine S. Ritchie, Alexander Smith Source Type: research
Characteristics and Palliative Care Needs of People with versus without Dementia in Skilled Nursing Facility Care (GP108)
1. Describe the palliative care needs among people with ADRD versus non ADRD during post-acute skilled nursing facility care in nursing homes.2. Discuss how universal palliative care screening for people with ADRD may not reveal all unique palliative care needs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Joan G. Carpenter, Merve Gurlu, Laura Hanson, Nancy A. Hodgson, ElishaBaafi Oduro, Shijun Zhu, Mary T. Ersek Source Type: research
“Was I Not Enough?”: The Impacts of Being Forgotten by Mothers with Dementia on Adult-Child Identity and Sense of Self (GP100)
1. Understand adult-children's experiences of being forgotten by their mothers with dementia.2. Understand the importance of assessing adult-children's experiences of being forgotten by their parents with dementia. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Kristie Wood, Marie-Anne Suizzo, Hillary D. Lum Source Type: research
Advance care planning in dementia care: eliciting values from serious illness experiences (GP104)
1. Participants will self-report the ability to elicit and identify common values and concerns related to comfort-focused versus longevity-focused end-of-life care using serious illness experience questions as an advance care planning framework in people with dementia and their care partners.2. Pa rticipants will self-report the ability to recall differences in the relationship between serious illness experiences and end-of-life care preferences depending on severity of cognitive impairment and other factors such as cancer versus non-cancer-related experiences. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Glory Thai, Valecia Hanna, Peiyuan Zhang, Diane Echavarria, Jennifer Wolff, Martha Abshire Saylor Source Type: research
Advance Care Planning: including Persons with Dementia and their Caregivers (GP105)
1. Learners will identify one best practice for advance care planning among persons with dementia.2. Learners will contrast experiences of advance care planning by level of cognitive impairment. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Martha Abshire Saylor, Valecia Hanna, Glory Thai, Peiyuan Zhang, John Cagle, Jennifer Wolff Source Type: research
Trends in Use of the Cognitive Assessment and Care Planning Services (CAACPS) Visit: A Primary Palliative Care Tool (RP303)
1. Learners will be able to identify gaps in primary palliative care resources for community-living persons with dementia and their caregivers.2. Learners will be able to describe the Cognitive Assessment and Care Planning Services (CAACPS) visit, what it includes, and how it can serve as a primar y palliative care tool in the ambulatory care setting. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Jennifer B. Seaman, Yurun Cai, Danxu Ren Source Type: research
A National Study of Psychosocial Well-being of Spouses of Persons Living with Dementia in the Last Years of Life
1. To compare the psychosocial needs of spouses of persons living with dementia in the last years of life to spouses of persons with no cognitive impairment in the last years of life.2. To understand clinical and policy-level strategies that can address the unique psychosocial needs of spouses of persons living with dementia prior to the death of their partners. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Ashwin Kotwal, Irena Cenzer, Jacqueline Torres, Melissa Aldridge, Claire K. Ankuda, Lauren Hunt, Alexander Smith, Krista L. Harrison Source Type: research
Hospice Use Patterns of Medicare Beneficiaries with Parkinson Disease and Dementia with Lewy Bodies
1. Understand the differences in hospice use patterns for people with Parkinson's disease or Lewy body dementia compared to Alzheimer's disease.2. Understand the differences in hospice characteristics for agencies caring for people with Parkinson's disease or Lewy body dementia compared to those caring for people with Alzheimer's disease. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Meredith Bock, Siqi Gan, Melissa Aldridge, Krista L. Harrison, Kristine Yaffe, Alexander Smith, John Boscardin, Lauren Hunt Source Type: research
“I Just Feel So Unloved”: Grieving Unresponsiveness from Mothers with Dementia - Introducing Coping Profiles (RP204)
1. Participants will be able to 1) understand relational loss with a parent with late-stage dementia, 2) understand behaviors that contribute to assessments of unresponsiveness from a mother with dementia.2. Participants will be able to 1) understand patterns of coping and meaning-making regarding a mother with dementia's unresponsiveness, and 2) understand how to assess and respond to grief due to a parent with dementia's unresponsiveness. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Kristie Wood, Marie-Anne Suizzo, Hillary D. Lum Source Type: research
Characterizing Opportunities in Diagnostic Disclosure Communication in Dementia Care: A Qualitative Study (RP105)
1. Describe the unique challenges of diagnostic disclosure communication in dementia care2. Identify person-centered communication strategies that can improve the quality, experience, and reliability of diagnostic disclosure communication in dementia care (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Joanna Paladino, Vicki Jackson, Deborah Blacker, Christine S. Ritchie Source Type: research
Death with and without Dementia: Impact on Family Antidepressant Prescriptions (RP220)
1. Participants will be able to identify differences in antidepressant prescriptions in family members of patients with and without dementia before and after death.2. Participants will be able to identify additional caregiver and patient factors associated with antidepressant prescriptions includi ng demographics, caregiver-patient relationship, nursing home status, and family size. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Eli Iacob, Mike Hollingshaus, Rebecca L. Utz, Djin L. Tay, Katherine Ornstein, Pamela L. Barrientos, Michael Newman, Tom Belnap, Caroline E. Stephens Source Type: research
