A Look at 3 Entrepreneurial Efforts in the Rare Disease Space
I previously shared about the amazing time I had listening to patients and caregivers at the RARE Patient Advocacy Summit that is hosted by Global Genes.  One of the sessions at the event was a number of organizations that have created health IT applications specific to rare disease.  It was incredible to see how something like a rare disease could drive people to create solutions for themselves and their loved ones.  Their passion for the topic and first person understanding of the challenges was amazing to see. Given their commitment to solve important problems for rare disease patients and their caregivers, I thought...
Source: EMR and HIPAA - October 14, 2022 Category: Information Technology Authors: John Lynn Tags: Ambulatory Clinical Communication and Patient Experience Health IT Company Healthcare IT Hospital - Health System Interoperability Caregivers Chronic Patients Chronically Simple Costello Syndrome Global Genes Healthcare IT Video In Source Type: blogs