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When Dying isn't Enough for Family to Forgive
This article is the fifth in a series of articles where I take each assumption from the original article and explore the concept in greater depth to include implications and possible interventions. & nbsp;In my last article, I wrote about the assumption < a href= " http://www.pallimed.org/2016/03/time-of-death-some-patients-prefer-to.html " target= " _blank " > People don ’t want to be alone when they die. < /a > < br / > < br / > < b > Here is our next assumption: Family matters will get resolved. < /b > < br / > < a href= " https://2.bp.blogspot.com/-RWH0SgM4MSA/V3WZPxqUmXI/AAAAAAAA47A/PIhwTeA23WkOpMZFEAM9LISvzEW1LLh_...
Source: Pallimed: A Hospice and Palliative Medicine Blog - July 1, 2016 Category: Palliative Care Tags: assumptions Byock family forgive lizzy miles reconciliation relationship resolve triangulation Source Type: blogs

When Dying isn't Enough for Family to Forgive
This article is the fifth in a series of articles where I take each assumption from the original article and explore the concept in greater depth to include implications and possible interventions.  In my last article, I wrote about the assumption People don’t want to be alone when they die.Here is our next assumption: Family matters will get resolved.A bestselling book by Dr. Ira Byock, The Four Things That Matter Most, suggests that at the end of the day, or at the end of life, it all boils down to these simple thoughts:“Please forgive me,”“I forgive you,”“Thank you,”and “I love you.”The book asser...
Source: Pallimed: A Hospice and Palliative Medicine Blog - July 1, 2016 Category: Palliative Care Tags: assumptions Byock family forgive lizzy miles reconciliation relationship resolve triangulation Source Type: blogs

Looking Back on 10 Years of Palliative Medicine
by Drew RosielleJuly 1, 2006 was the day I became a staff palliative care physician at the Medical College of Wisconsin, after having completed my fellowship there. So it's been 10 years I've been doing this, and I've been reflecting a little on what's changed in those years. So here are my thoughts. I don't want to pretend all of these are profound, most of them have been said by others before, and better, but things have changed in these 10 years - I've changed - and I decided to write a little about it. Much of this is just my own perceptions of things, a lot of them are my own misconceptions probably, and I don't want ...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 30, 2016 Category: Palliative Care Tags: opioids palliative care physician rosielle The profession Source Type: blogs

The Clare Project and " What Matters Most? " to young people with advanced cancer
< div class= " separator " style= " clear: both; text-align: center; " > < a href= " https://3.bp.blogspot.com/-gWJIqH68Y0U/V3Qi4DuBGmI/AAAAAAABWis/R8kB2axDhq8dBPDnQ7Vj1WjGCq4P9WRZACLcB/s1600/the-clare-project-logo-large-dark.jpg " imageanchor= " 1 " style= " clear: right; float: right; margin-bottom: 1em; margin-left: 1em; " > < img border= " 0 " height= " 240 " src= " https://3.bp.blogspot.com/-gWJIqH68Y0U/V3Qi4DuBGmI/AAAAAAABWis/R8kB2axDhq8dBPDnQ7Vj1WjGCq4P9WRZACLcB/s320/the-clare-project-logo-large-dark.jpg " width= " 320 " / > < /a > < /div > by Karen J. Wernli < br / > < br / > In the summer of 2014, my sister...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 29, 2016 Category: Palliative Care Tags: cancer pediatrics tweetchat twitter young adult Source Type: blogs

The Clare Project and "What Matters Most?" to young people with advanced cancer
by Karen J. Wernli In the summer of 2014, my sister-in-law, a new mother, died of cancer after 11 years with her disease. Although doctors gave her the best care they could, as a health researcher focused in cancer care, I wanted to do better for people like Clare. Then, at a scientific conference that fall, I learned that others had the same desire. Representatives from the National Cancer Institute were asking for studies to improve care for adolescents and young adults, including at the end of life. On the plane home, I started working with my research ideas. I realized that to know what young people with advanced-stage...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 29, 2016 Category: Palliative Care Tags: cancer pediatrics tweetchat twitter young adult Source Type: blogs

Pallimed Roundup: Advice to Graduating Palliative Fellows
The editors of Pallimed are proud to announce a new editorial feature: Pallimed Roundup. In these articles we will publish a collection of quotes culled from palliative care professionals around the world.Our first question was: What advice would you give to graduating palliative fellows? “Let the patient's and family's goals be your guide. You will be, and should be involved in discussions of discharge planning, financial and insurance issues, hospice and mortality statistics, but your true north should remain the goals of your patient and family.”-Ross Albert, MD PhD“Keep loving your patients till the end; they de...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 20, 2016 Category: Palliative Care Tags: advice albert bloise Bruera Byock cleary fratkin graduation palliative quotes roundup rousseau yang zacharias Source Type: blogs

Hospice and Palliative Care in Six Words - Celebrating Pallimed's 11th Anniversary
< div class= " separator " style= " clear: both; text-align: center; " > < a href= " https://1.bp.blogspot.com/-TkC6UlE8Qwg/V1gpiS2H2KI/AAAAAAABR10/saFw0Qi78lYbVRInLxWE4Eva5D2KfgYfgCLcB/s1600/pallimed%2Bturns%2B11.PNG " imageanchor= " 1 " style= " clear: right; float: right; margin-bottom: 1em; margin-left: 1em; " > < img border= " 0 " height= " 320 " src= " https://1.bp.blogspot.com/-TkC6UlE8Qwg/V1gpiS2H2KI/AAAAAAABR10/saFw0Qi78lYbVRInLxWE4Eva5D2KfgYfgCLcB/s320/pallimed%2Bturns%2B11.PNG " width= " 320 " / > < /a > < /div > by Christian Sinclair < br / > < br / > Eleven years ago today Drew Rosielle posted his < a h...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 8, 2016 Category: Palliative Care Tags: meta sinclair Source Type: blogs

Hospice and Palliative Care in Six Words - Celebrating Pallimed's 11th Anniversary
by Christian Sinclair Eleven years ago today Drew Rosielle posted his first post to pallimed.blogspot.com* about Hospice and Palliative Medicine becoming slated to be officially recognized as a specialty by ABIM and ABFM! We had a great year commemorating our 10th year anniversary. We posted 123 new posts to pallimed.org, a new 4-year high (that we are planning on breaking this year!) The Pallimed Facebook page flew past 10,000 likes, #hpm chat is still going strong, and we are starting to explore other social media platforms like Instagram.We still have a lot of work to do ahead this year, like:further establishing the Pa...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 8, 2016 Category: Palliative Care Tags: meta sinclair Source Type: blogs

How to be an Advocate for Hospice and Palliative Care
by Lauren Drew Front line caregiving is an all-consuming job. Even if you are technically “off the clock,” you are still carrying the emotional exhaustion of your day. You may work twelve hour shifts, and return home to care for your own family. Finding time for self-care is nearly impossible. I fully understand why most hospice and palliative care providers tell me that they just “don’t have the capacity” for advocacy. To them, advocacy is something that requires tons of time, or maybe a PhD in Political Science, or a close friendship with a Member of Congress. It requires none of these things, but at the end o...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 7, 2016 Category: Palliative Care Tags: #hpm advocacy drew health policy hpmchat politics tweetchat Source Type: blogs

Communication & Practice: Re-Imagining the End-Of-Life Experience
< div class= " separator " style= " clear: both; text-align: center; " > < /div > < div class= " separator " style= " clear: both; text-align: center; " > < a href= " https://3.bp.blogspot.com/-zhZ3vOcEokw/V07tizb9QqI/AAAAAAABP1o/PSEUT57UjncPVK8pKuvSWkCRypVkmfh5QCLcB/s1600/2016%2B%2523hpm%2Bchat%2Bsquares%2B%25283%2529.png " imageanchor= " 1 " style= " clear: right; float: right; margin-bottom: 1em; margin-left: 1em; " > < img border= " 0 " height= " 320 " src= " https://3.bp.blogspot.com/-zhZ3vOcEokw/V07tizb9QqI/AAAAAAABP1o/PSEUT57UjncPVK8pKuvSWkCRypVkmfh5QCLcB/s320/2016%2B%2523hpm%2Bchat%2Bsquares%2B%25283%2529.png...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 1, 2016 Category: Palliative Care Tags: communicaiton death openIDEO patient tinianov Source Type: blogs

Communication & Practice: Re-Imagining the End-Of-Life Experience
by Stacey TinianovTransformative change takes time and effort yet these epic journeys always begin with single steps. With bite-sized change in mind, how might we encourage little shifts in the way we communicate and practice to catalyze big change in re-imagining the end-of-life experience? Redesigning Communication If we would like to re-imagine the end-of-life experience, might we begin to reconsider our terminology as it relates to death? “She lost her battle with cancer.” Winners and loser conversations may be better suited for discussions around play-off games. When someone dies from their illness, claiming the...
Source: Pallimed: A Hospice and Palliative Medicine Blog - June 1, 2016 Category: Palliative Care Tags: communicaiton death openIDEO patient tinianov Source Type: blogs

Tell Me a Real Story
by Staci Mandrola Charlotte is three and a half years old. She loves stories. I tell real stories. John tells made up stories. The first words we hear when Charlotte walks in the house are “Tell me a story, PaPa!” Stories put me on a path more than 40 years ago. The path to being a doctor and then a hospice and palliative medicine doctor. I listened to my grandmother tell stories about her physician father leaving the house to check on a woman in labor or a dying patient. He might not return for days. His payment ranged from a chicken to a milk cow to a beat up John Deere. I listened to my dermatologist father tell the...
Source: Pallimed: A Hospice and Palliative Medicine Blog - May 10, 2016 Category: Palliative Care Tags: mandrola narrative physician The profession Source Type: blogs

Beyond the Primary Caregiver: Supporting the Other People in a Palliative Patient ’s Circle
This article addresses systems theory and how we can provide support for additional people in the palliative patient ’s life, beyond the primary caregiver. This is the fifth article in a series of joint conversations about the similarities and differences with pediatric and geriatric specialty populations. (Read the other posts: < a href= " http://www.pallimed.org/2014/11/developmental-life-cycles-working-with.html " target= " _blank " > Developmental Life Cycles < /a > , < a href= " http://www.pallimed.org/2014/12/mind-gap-specialty-social-workers.html " target= " _blank " > Social Work Research < /a > , < a href= " h...
Source: Pallimed: A Hospice and Palliative Medicine Blog - May 9, 2016 Category: Palliative Care Tags: caregiver caregiving family hospice miles palliative PCG Shukraft social work social worker systems theory Source Type: blogs

Beyond the Primary Caregiver: Supporting the Other People in a Palliative Patient’s Circle
This article addresses systems theory and how we can provide support for additional people in the palliative patient’s life, beyond the primary caregiver. This is the fifth article in a series of joint conversations about the similarities and differences with pediatric and geriatric specialty populations. (Read the other posts: Developmental Life Cycles, Social Work Research, End-of-Life Decisions, Getting Started).In many articles about hospice and palliative care, there is an additional emphasis placed on supporting the caregiver in addition to the patient.  In our work with patients, we are often asked to identif...
Source: Pallimed: A Hospice and Palliative Medicine Blog - May 9, 2016 Category: Palliative Care Tags: caregiver caregiving family hospice miles palliative PCG Shukraft social work social worker systems theory Source Type: blogs

Measures that Matter in Advanced Illness Care
by Meredith MacMartinI was drawn to the field of palliative care by something subjective, the feeling of deep satisfaction from providing goal-aligned care for my patients, and the desire to do that better. In training, I came to realize that while much of our work lies in the qualitative realm, the key to doing it better lies in the underlying structure and frame of good communication, symptom management, and care coordination. It is no surprise to me, then, that palliative care is embracing the increasing emphasis on healthcare quality and value; in other words, the quantitative measures that underlie the qualitative exp...
Source: Pallimed: A Hospice and Palliative Medicine Blog - April 27, 2016 Category: Palliative Care Tags: macmartin quality Source Type: blogs