Justin Shopp hopes to raise $25K for Cystic Fibrosis research in 5K walk Saturday
Nine-year-old Justin Shopp of Hampden Twp. is hoping to raise a record $25,000 Saturday in the Cystic Fibrosis Foundation’s “Great Strides” walk in Friendship Park, Mechanicsburg. Shopp, who was diagnosed cystic fibrosis two years ago, will be walking with his team, “Justin‘s Hope,” which raised $20,000 last year. The 5K walk gets under way at 10 a.m. To contribute, click here. Last year, the foundation raised $135 million, with $43 million coming from Great Strides walks across the U.S. in May, which is Cystic Fibrosis Awareness Month. Justin’s treatment involves taking more than ...
Source: Cystic Fibrosis Worldwide Blog - April 30, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Campaigns Source Type: blogs

May 3 run raises money for ‘65 roses ’
People are often perplexed by the symbolism of the rose at a cystic fibrosis event.                         Holly Shaw and her son, IV, share a moment and a rose. Photo by C.T. Shaw. The story began in 1965. Mary Weiss, a mother of three young boys with cystic fibrosis, and a passionate volunteer for the Cystic Fibrosis Foundation, was on the phone making calls. Her objective was to reach out to every civic club, service organization, and anyone that would listen to seek financial support for CF research. Af...
Source: Cystic Fibrosis Worldwide Blog - April 30, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Campaigns Source Type: blogs

Low-dose natural antimicrobial exacerbates chronic lung infection in cystic fibrosis
Respiratory failure caused by chronic lung infection with Pseudomonas aeruginosa bacteria is a common cause of death in patients with cystic fibrosis (CF), a genetic disease that is common in individuals of European descent. A study published on April 24th in PLOS Pathogens demonstrates that an antimicrobial peptide produced by human immune cells can promote mutations in the bacterium that make it more lethal. Daniel Wozniak, from The Ohio State University Wexner Medical Center, USA, and colleagues studied a process called “mucoid conversion”, which involves mutations in Pseudomonas that produce a sticky sugar ...
Source: Cystic Fibrosis Worldwide Blog - April 25, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Research and Discovery Source Type: blogs

FDA Grants Orphan Drug Designation for Bayer ’ s Investigational Ciprofloxacin DPI (Dry Powder for Inhalation) for Treatment of Non-Cystic Fibrosis Bronchiectasis
WHIPPANY, N.J., April 22, 2014 /PRNewswire/ — Bayer HealthCare today announced that the U.S. Food and Drug Administration’s (FDA) Office of Orphan Products Development has granted orphan drug designation for its investigational Ciprofloxacin Dry Powder for Inhalation (Ciprofloxacin DPI) for the treatment of non-cystic fibrosis bronchiectasis (NCFB). Patients with NCFB suffer from frequent severe acute pulmonary bacterial exacerbations which lead to further inflammation, airway and lung parenchyma damage. The Orphan Drug Designation program provides orphan status to drugs and biologics that are intended for...
Source: Cystic Fibrosis Worldwide Blog - April 24, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Research and Discovery Source Type: blogs

UVa creates virtual bacteria to shed light on cystic fibrosis infections
The two species of bacteria are genetically similar – both contagious, both drug resistant, both preying upon people with cystic fibrosis or weakened immune systems – yet they go about their sinister work very differently. There is much to be learned both from how they are alike and how they differ, and so researchers at the University of Virginia School of Medicine have recreated them in electronic form, building an elaborate computer model of each so that scientists can better understand them, better compare them and find new and better ways to stop them. The new metabolic model lets scientists examine Burkho...
Source: Cystic Fibrosis Worldwide Blog - April 24, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Research and Discovery Source Type: blogs

Camryn Koke continues her fight against Cystic fibrosis in Southold
In the basement of the Koke family’s home in Southold, 9-year-old Camryn is allowed to play with her dollhouse for one hour each morning before heading to school. On a recent day, she held her favorite doll, Raquelle — a pretty fashionista who likes going to the spa and is featured on TV’s “Barbie: Life in the Dreamhouse.” “She’s active and sassy — like me,” Camryn said with a smile as she smoothed the doll’s hair. In Camryn’s other hand was a nebulizer. The fourth-grader also wore a vest that provides periodic electronic chest compressions. Her mother, Jenn...
Source: Cystic Fibrosis Worldwide Blog - April 22, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Community Sponsors Source Type: blogs

Transplants give Garden Plain man a second chance at life
Chris Simon’s bucket list wasn’t anything fancy. He simply wanted to be able to ride a bike again. Or take a swim. Or go camping with friends. “Stuff I used to do all the time,” Simon said. “And all of a sudden it was taken away.” Those once simple joys were stolen by cystic fibrosis, the same disease that claimed his younger sister Emily’s life in 2009. The Simon family on Sunday will join millions of others around the world in celebrating Easter, a day symbolizing new beginnings. The holiday will have special significance for Chris, 26, who has another chapter dawning in his life...
Source: Cystic Fibrosis Worldwide Blog - April 20, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Uncategorized Source Type: blogs

Alcresta Announces Agreement with Cystic Fibrosis Foundation Therapeutics to Develop Point-of-Care Nutritional Products
NEWTON, Mass., Apr 17, 2014 (BUSINESS WIRE) — Alcresta®, a leading medical nutrition company developing       innovative enzyme-based products for individuals with unique nutritional needs battling acute conditions or chronic diseases, today announced the       company has signed an agreement with Cystic Fibrosis Foundation Therapeutics (CFFT) to accelerate the development of Alcresta’s       enzyme-based point-of-care products to support the nutritional status of people with cystic fibrosis (CF). CFFT is the nonp...
Source: Cystic Fibrosis Worldwide Blog - April 18, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Research and Discovery Source Type: blogs

Non-Cystic Fibrosis Bronchiectasis Patients Gain Mixed Results From Exercise, According To Study
Individuals with non-cystic fibrosis bronchiectasis are recommended to take on exercise training, however, the longer-term effects and benefits remain uncertain, according to researchers.  A new randomized controlled study was performed to determine the effects of exercise training and review of airway clearance therapy (ACT) on exercise capacity, quality of life and the incidence of acute exacerbations in individuals with non-cystic fibrosis (CF) bronchiectasis. 85 trial participants (mean FEV1 74% predicted; median Modified Medical Research Council Dyspnea grade of 1 (IQR [1-3]) were randomly allocated to eight...
Source: Cystic Fibrosis Worldwide Blog - April 18, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Research and Discovery Source Type: blogs

AbbVie today announced that undergraduate and graduate students living with cystic fibrosis (CF) can now apply for the 2014 AbbVie CF Scholarship, which honors young adults with CF as they pursue higher education. Students can apply for the scholarship from now until Monday, June 9, at www.AbbVieCFScholarship.com .
NORTH CHICAGO, Ill., April 16, 2014 /PRNewswire/ — AbbVie today announced that undergraduate and graduate students living with cystic fibrosis (CF) can now apply for the 2014 AbbVie CF Scholarship, which honors young adults with CF as they pursue higher education. Students can apply for the scholarship from now until Monday, June 9, at         www.AbbVieCFScholarship.com . The AbbVie CF Scholarship acknowledges students with CF who demonstrate creativity, academic excellence, community involvement and the ability to serve as a positive role model for the CF community. In h...
Source: Cystic Fibrosis Worldwide Blog - April 17, 2014 Category: Respiratory Medicine Authors: Webmaster Tags: Education Source Type: blogs