'Absolutely heartbreaking': Mother's agony as daughter battles deadly disease - symptoms

A MOTHER in desperation is hoping that potentially life-saving treatment will be developed in time to save her 13-year-old daughter Aggie, who suffers from a severe yet rare form of TUBB4a-related leukodystrophy - a genetic disease that affects the central nervous system.
Source: Daily Express - Health - Category: Consumer Health News Source Type: news