Gearing Up for 2023 Part II: Implementing the NIH Data Management and Sharing Policy

Guest post by Dr. Lyric Jorgenson, Acting Associate Director for Science Policy and Acting Director of the NIH Office of Science Policy, originally released on the Under the Poliscope blog.
Lyric Jorgenson, NIH Acting Associate Director for Science Policy and Acting Director of the Office of Science Policy.
Sequels are all the rage these days.  I figure if Marvel can make endless “Avengers” movies, I could start making blog sequels.  Back in the beginning of the year, I wrote Part I of this blog series about how NIH is working to implement the new NIH Data Management and Sharing Policy (DMS Policy).  I mentioned at that time that additional resources were forthcoming.
I should note that when we started to receive comments on what was to become the NIH DMS Policy, one thing in particular stood out to us.  Many commentors told us it would be helpful to have clear information on how to protect the privacy and respect the autonomy of participants when sharing data.  Now, we all know that cliffhangers build anticipation, so without further delay, I want to share with you some of the tools NIH has been working on to answer that call.
First, if you have seen the Avengers movies, you likely will have noticed that they tend to introduce a new villain that the team needs to battle with either new tools (think of OSP with Thor’s Stormbreaker axe) or the help of new superheroes like Captain Marvel. While not exactly a new villain, the lack of consistent consent language t...

Source: NIH Extramural Nexus - May 12, 2022 Category: Research Authors: Lyric Jorgenson Tags: blog Open Mike Uncategorized biospecimen data management Data sharing informed consent privacy Source Type: funding