Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany
CONCLUSION: Compared with other chronic diseases, such as headache, diabetes or obesity, children with TSC have significantly lower HRQOL, which further decreases during adolescence. A decreased HRQOL of patients correlates with a lower QOL and increased symptoms of depression of their caregivers. These results may improve the comprehensive therapy and care of children and adolescents with TSC and their families and caregivers.TRIAL REGISTRATION: DRKS, DRKS00016045. Registered 01 March 2019, http://www.drks.de/DRKS00016045.PMID:34673401 | DOI:10.1016/j.ejpn.2021.10.003
Source: European Journal of Paediatric Neurology - Category: Neurology Authors: Laurent M Willems Susanne Schubert-Bast Janina Grau Christoph Hertzberg Gerhard Kurlemann Adelheid Wiemer-Kruel Thomas Bast Astrid Bertsche Ulrich Bettendorf Barbara Fiedler Andreas Hahn Hans Hartmann Frauke Hornemann Ilka Immisch Julia Jacobs Matthias Ki Source Type: research
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