Associations Between Hyperphagia, Symptoms of Sleep Breathing Disorder, Behaviour Difficulties and Caregiver Well-Being in Prader-Willi Syndrome: A Preliminary Study

This study used data collected in the Australasian PWS Registry (n = 50, mean age 11.2 years) to evaluate associations between child behaviours and caregiver mental well-being. Symptoms of sleep-related breathing disorder, child depression and social difficulties were associated with poorer caregiver mental and physical well-being. Growth hormone therapy use was associated with better caregiver mental and physical well-being. Optimising management of problematic behaviours and sleep disturbances have the potential to support caregivers who are the most vital network of support for individuals affected by PWS.PMID:34498151 | DOI:10.1007/s10803-021-05265-5

Source: Journal of Autism and Developmental Disorders - September 9, 2021 Category: Psychiatry Authors: Jessica Mackay Gillian M Nixon Antony R Lafferty Geoff Ambler Nitin Kapur Philip B Bergman Cara Schofield Chris Seton Andrew Tai Elaine Tham Komal Vora Patricia Crock Charles Verge Yassmin Musthaffa Greg Blecher Daan Caudri Helen Leonard Peter Jacoby Andr Source Type: research