Family caregivers of rare disease: A survey on health ‐related quality of life in family caregivers for Gaucher disease patients in China

ConclusionThe findings showed FCs of patients with GD had lower HRQoL. There is an urgent need to address the health concerns of FCs of people with rare diseases including their HRQoL.

Source: Molecular Genetics & Genomic Medicine - August 13, 2021 Category: Genetics & Stem Cells Authors: Jiao Xu, Han Bao, Xinye Qi, Jiahui Wang, Hang Yin, Chunyang Shang, Rachel Leeyin Tan, Qunhong Wu, Weidong Huang Tags: ORIGINAL ARTICLE Source Type: research