Parental Attitudes Toward Clinical Genomic Sequencing in Children With Critical Cardiac Disease

CONCLUSIONS: Families’ perceptions of genomic sequencing uses in critical cardiac disease appear to strain their overall trust in the health system. Erosion of trust is concerning because the potential of genomic sequencing in critical cardiac disease will be unrealized if families are unwilling to undergo genomic sequencing, let alone to participate in the ongoing research needed to link genomic sequencing variants to clinical outcomes. Our findings may have implications for genomic sequencing use in children with other critical, high-acuity diseases.
Source: Pediatric Critical Care Medicine - Category: Pediatrics Tags: Online Clinical Investigation Source Type: research