'This disease takes away everything': One family's story of Tay-Sachs

The first clue that something might be wrong with Cameron was, oddly enough, a diagnosis of Tay-Sachs disease in her cousin. Cameron had just received a perfect report at her five-month checkup when her parents, Blyth and Charlie Lord, got the news about 18-month-old Hayden. The daughter of Charlie's identical twin brother, Hayden, had been misdiagnosed a few months earlier as having cerebral palsy before getting the news that she had Tay-Sachs, an extremely rare, fatal genetic disease that causes…
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