Perceptions of Role in Treatment Decision Making and Understanding of Late Effects among Hodgkin Lymphoma Survivors: Results from a National Survey HL Decision Making and Late Effects

Background: Hodgkin Lymphoma (HL) survivors are at risk of treatment-related late effects (LEs). With these potential risks and increasing numbers of treatment options for newly diagnosed patients, communication and shared decision making are essential to supporting patients throughout the cancer care continuum. We aimed to gather perspectives of HL survivors about their actual role in treatment decision making and their understanding of LEs.Methods: After initial pilot testing at a cancer survivor conference, we disseminated a 23-question survey in a single-wave e-mail through the Leukemia& Lymphoma Society's national listserv.

Source: Clinical Lymphoma, Myeloma and Leukemia - August 2, 2021 Category: Hematology Authors: Anita J Kumar, Rachel Murphy-Banks, Ruth Ann Weidner, Susan K Parsons Source Type: research