A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China

There are over 16.8 million rare disease patients in China, representing a large community that should not be neglected. While the public lack the awareness of their existence and difficult status quo, for one...

Source: Orphanet Journal of Rare Diseases - July 22, 2021 Category: Internal Medicine Authors: Xuefeng Li, Meiling Liu, Jinduan Lin, Bingzhe Li, Xiangyu Zhang, Shu Zhang, Zijuan Lu, Jianyong Zhang, Jincheng Zhou and Li Ou Tags: Research Source Type: research