The impact of caring for an individual with aromatic l-amino acid decarboxylase (AADC) deficiency: A qualitative study and the development of a conceptual model
Conclusions: This is the first qualitative study to report on the experience of caring for an individual with AADC deficiency. Caregivers reported that caring had a substantial multifaceted impact on their lives. These findings highlight the importance of considering the caregiver experience when evaluating the burden of AADC deficiency.PMID:34259573 | DOI:10.1080/03007995.2021.1955668
Source: Current Medical Research and Opinion - Category: Research Authors: Hanna Skrobanski Kate Williams Christian Werner Sian O'Neill Katharina Buesch Sarah Acaster Source Type: research
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