Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants

This study made it clear that research participants want to make autonomous decisions on the disclosure or non-disclosure of their results. While the motivations for participants ’ decisions were very diverse, we were able to identify several common criteria that had a strong influence on their choices. Providing information on these factors is crucial to enable participants to make truly informed decisions.
Source: Journal of Community Genetics - Category: Genetics & Stem Cells Source Type: research