Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children with Severe Neurological Impairment During Decision-Making

Parents of children with severe neurologic impairment (SNI) often face high-stakes medical decisions when their child is hospitalized. These decisions involve technology/surgery, goals of care/advance care planning, or transitions of care.

Source: Journal of Pain and Symptom Management - June 17, 2021 Category: Palliative Care Authors: Jori F. Bogetz, Amy Trowbridge, Hannah Lewis, Kelly J. Shipman, Danielle Jonas, Julie Hauer, Abby R. Rosenberg Source Type: research