Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set

CONCLUSION: A consensus-based international set of health outcomes relevant to all persons with hemophilia, and corresponding measurement instruments, was identified for use in clinical care to facilitate harmonized longitudinal monitoring and comparison of outcomes.PMID:34027286 | PMC:PMC8117824 | DOI:10.1002/rth2.12488

Source: Thrombosis and Haemostasis - May 24, 2021 Category: Hematology Authors: Erna C van Balen Brian O'Mahony Marjon H Cnossen Gerard Dolan Victor S Blanchette Kathelijn Fischer Deborah Gue Jamie O'Hara Alfonso Iorio Shannon Jackson Barbara A Konkle Diane J Nugent Donna Coffin Mark W Skinner Cees Smit Alok Srivastava Fred van Eenen Source Type: research