Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study

This study used quantitative and qualitative research methods to analyze how acute hepatic porphyria (AHP) affects patients with varying annualized porphyria attack rates. The overall impact of AHP on patients...

Source: Orphanet Journal of Rare Diseases - April 26, 2021 Category: Internal Medicine Authors: Liz Gill, Sue Burrell, John Chamberlayne, Stephen Lombardelli, Jordanna Mora, Nicola Mason, Marieke Schurer, Madeline Merkel, Stephen Meninger and John J. Ko Tags: Research Source Type: research