Guiding the rational design of patient-centred drug trials in Cystic Fibrosis: A Delphi study
Ensuring that research is patient-centred is a priority of research organisations including the CF specific networks [1,2]. Within the clinical space, common themes of defining patient-centred care include improving access to care, ensuring patients ’ physical comfort during treatment, providing appropriate emotional support and identifying and respecting patients’ preferences in order to deliver care that is meaningful and valuable to patients [3,4]. Although less well defined in the trials space, integrating these attributes into trial de livery improves recruitment and retention to trials, participant satisfaction, and increases access to a more representative patient group [1,5–7] and allows research teams to better meet participants’ psychosocial needs [8] and to prioritise outcomes that matter to patients.
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: R. Dobra, J.S. Elborn, S. Madge, L. Allen, M. Boeri, F. Kee, S. Goundry, T. Purcell, C. Saunders, J.C. Davies Tags: Original Article Source Type: research