Role of patients associations in connective tissue calcifiying diseases: a position statement from EuroSoftCalc.Net group
Patients have been showing a growing interest in taking active participation in decision making, and having the opportunity to drive clinical investigation. This is more common for patients who have a rare dis...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: Pedro Valdivielso, Marta Jacinto, Guillemette Devernois, Jorge Laplana, Maria Garc ía-Fernández and Ludovic Martin Tags: Position statement Source Type: research
More News: Internal Medicine | Rare Diseases