Engaging the Voices of Children: A Scoping Review of How Children and Adolescents Are Involved in the Development of Quality-of-Life –Related Measures

Patient-reported outcomes are increasingly recommended to guide patient care, develop and evaluate interventions, and modify health systems. However, not enough is known about whether and how children and adolescents, as “experts” in their own health and quality of life (QoL), are being engaged in the development of instruments. Our goals in this review were (1) to identify all QoL-related instruments that have included children and/or adolescents in the development of questionnaire content, including identifica tion of themes and items; and (2) to report how this was done; and (3) to highlight those that used qualitative methods.

Source: Value in Health - December 28, 2020 Category: International Medicine & Public Health Authors: Jessica Willis, Dena Zeratkaar, Julia ten Hove, Peter Rosenbaum, Gabriel M. Ronen Source Type: research