The impact of the COVID-19 pandemic on the emotional well-being and home treatment of Belgian patients with cystic fibrosis, including transplanted patients and paediatric patients.

Cystic Fibrosis (CF) is the most common life shortening genetic disorder with a worldwide prevalence of about 1 in 4000 births. CF is a multi-organ disease, affecting lungs and digestive system. The daily intensive treatment has multiple components and is considered a heavy burden on patients and their families. Although life expectancy has increased over the past decade and is expected to improve further with promising CFTR modulators, no cure is presently available. Thus far, lung transplantation (LTX) is the only option to overcome respiratory insufficiency, but LTX involves further chronic comorbidities requiring intensive treatment.

Source: Journal of Cystic Fibrosis - July 30, 2020 Category: Respiratory Medicine Authors: Trudy Havermans, Janne Houben, Francois Vermeulen, Mieke Boon, Marijke Proesmans, Natalie Lorent, Erik de Soir, Robin Vos, Lieven Dupont Source Type: research