Assessing Palliative Care Needs in Patients with Ehlers-Danlos Syndrome (GP760)

Ehlers-Danlos Syndrome (EDS) is a grouping of 13 disorders affecting connective tissues, particularly collagen, characterized by tissue fragility, joint hypermobility, and hyperextensibility. EDS symptoms can include pain, dislocations, subluxations, joint instability, impaired ability to eat, and vascular symptoms. Palliative care (PC) is appropriate for patients diagnosed with EDS due to the high symptom burden of the disease and the impact of EDS on quality of life for both patients and family caregivers.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research