Quality of life in people with epidermolysis bullosa: a systematic review

ConclusionQoL is more affected in people who have RDEB and JEB. Regarding sex and age, women and children need special care in their monitoring. It is necessary that guidelines on pain management be more disseminated and put into practice. Future studies should use standardized specific instruments to assess the QoL in EB individuals, while considering the particularities of the different age groups.
Source: Quality of Life Research - Category: Health Management Source Type: research