Alzheimer’s disease: the unique experience of family caregivers

This study verified the experience of care from the perspective of family caregivers of older adults with AD from the qualitative approach. The phenomenological method proposed by Giorgi and Sousa (2010) was adopted. Nine family caregivers (4 wives and 5 daughters) participated during dif ferent stages of the disease and after death. From the main question “ How is your experience of caring for your relative with Alzheimer ‘ s disease? “ emerged 13 thematic units associated with each stage of the disease. The findings raise the need of caregivers, which include initial diagnosis and goes through the creation of a space for listening and care, given the gradual loss experienced throughout the caring process. Thus, there must be investments in forming professionals of all fields related to healthcare in order to promote quality of life and well-being for caregivers, as well as the need for interdisciplinary teams for the unique experience of dementia care.R ésumé La démence est un syndrome à évolution lente et progressive, de nature chronique, et son sous-type la maladie d ’ Alzheimer étant le plus fréquent (Burlá, 2015). De nombreuses études sont réalisées en fonction des demandes du patient, mais du côté de l ’ aidant familial, elles sont rares. Cette recherche a eu pour objectif conna ître l ’ exp érience des soins du point de vue des aidants familiaux des personnes âgées atteints de la MA à travers une abordage qualitative. En ce qui concerne ...
Source: Psicologia USP - Category: Psychiatry & Psychology Source Type: research