Setting a research agenda for vascular Ehlers-Danlos syndrome using a patient and stakeholder engagement model

This study describes the formation of the vEDS Research Collaborative and methods used for stakeholder engagement.

Source: Journal of Vascular Surgery - February 26, 2020 Category: Surgery Authors: Liz Sage, Melissa L. Russo, Peter H. Byers, John Demasi, Shaine A. Morris, Lauren N. Puryear, Daphne S. Fulton, Sherene Shalhub, Vascular Ehlers-Danlos Syndrome Research Collaborative Source Type: research