Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children with Chronic Illness and Medical Complexity

Children with chronic illnesses have complex health-care needs, leading to frequent health-care use for acute illness, high medical care costs, and ultimately, poor health outcomes. Children with chronic illness and medical complexity (CIMC) are patients under the age of 18 who have three or more of the following: (1) medications and/or supportive therapies (nutrition, respiratory, dialysis); (2) chronic medical diagnoses for 12 months or more; and (3) dependence on technology (central or long-term peripheral line, tracheostomy, gastrostomy; Cohen et al., 2011).
Source: Journal of Pediatric Health Care - Category: Pediatrics Authors: Tags: Article Source Type: research

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Conclusions: SMART provided promising oncologic outcomes at the cost of significant treatment related morbidity. Due to the significant treatment associated morbidity and favorable treatment alternatives, we have not broadly adopted SMART at our institution.
Source: Frontiers in Oncology - Category: Cancer & Oncology Source Type: research
Abstract BACKGROUND: Ethnicity may be associated with important aspects of end-of-life care, such as what treatments are received, access to palliative care and where people die. However, most studies have focused on end-of-life care of white, Hispanic and black patients. We sought to compare end-of-life care delivered to people of Chinese and South Asian ethnicity with that delivered to others from the general population, in Ontario, Canada. METHODS: In this population-based cohort study, we included all people who died in Ontario, Canada, between Apr. 1, 2004, and Mar. 31, 2015. People were identified as ha...
Source: cmaj - Category: General Medicine Authors: Tags: CMAJ Source Type: research
ConclusionsEighteen factors may increase the risk of carbapenem resistance inK. pneumoniae infection; eight factors may be associated with bothK. pneumoniae infections in general and CRKP in particular. The eight shared factors are likely to be ‘true’ risk factors for CRKP infection. Evaluation of risk factors in different situations may be helpful for empirical treatment and prevention of CRKP infections.
Source: Antimicrobial Resistance and Infection Control - Category: Infectious Diseases Source Type: research
CONCLUSION: Severe bacterial soft tissue infections can be still life-threatening despite guideline-conform treatment and are associated with a high mortality especially in high-risk patients even with intensive medical care. They can lead to disfiguration and loss of function resulting in a greatly reduced quality of life. Rapid diagnostics and therapy are essential for successful treatment. PMID: 31996943 [PubMed - as supplied by publisher]
Source: Der Chirurg - Category: Surgery Authors: Tags: Chirurg Source Type: research
Medical convenience trays and kits, labeled as: Medical Action Industries, Inc.: ***CVC*** Clear Sequence Change Kit, REF 77070B ***DIALYSIS*** Clear Sequence Change Kit, REF 77068B ***PEDS CVC*** Clear Sequence Change Kit, REF 77190B ***PICC*** Clear Sequence Change Kit, REF 77069B Adult Central Line Dressing Change Kit, REF 74636C Central Line Dressing Kit, VCU, REF 57647B Central Line Removal Kit, REF 78631B Chest Tube Cleaning Kit, REF 73000 CVC Dressing Change Kit, REF 80643D Dressing Change Kit, REF 71538 ED Suture Set, REF 59299C Laceration Kit, REF 59806B Laceration Tray, REF 56957 Laceration Tray, REF 57888B Lacer...
Source: Medical Device Recalls - Category: Medical Devices Source Type: alerts
Publication date: Available online 31 December 2019Source: Journal of Clinical and Experimental HepatologyAuthor(s): Vaibhaw Kumar, Jaya Benjamin, Varsha Shasthry, Kishore Gurumoorthy Subramanya Bharathy, Piyush Kumar Sinha, Guresh Kumar, Viniyendra PamechaAbstractBackgroundLiver transplantation (LT) is a game changer in cirrhosis. Poor muscle mass defined as sarcopenia may potentially upset the LT scoreboard.AimTo assess the prevalence and impact of sarcopenia on the intraoperative and early post-operative outcomes in Indian patients undergoing LT.MethodsPre LT, single slice routine CT images at L3 vertebra of 115 LT reci...
Source: Journal of Clinical and Experimental Hepatology - Category: Gastroenterology Source Type: research
The Luer connector, with its simple twisting male and female design features, is a standard in the health care industry.1 This simple and novel design with both a functional connection and a dependable seal is used almost exclusively in a variety of equipment familiar to most emergency departments, including, but not limited to, intravenous (IV) tubing and syringes as well as automated blood pressure inflation tubing. In addition to these common sources, emergency nurses must also at times care for patients with tubes or catheters serving various purposes, including those for hemodialysis, enteral feedings, airway (tracheo...
Source: Journal of Emergency Nursing: JEN - Category: Nursing Authors: Tags: Danger Zone Source Type: research
We report our 10-year experience of performing presternotomy ECC for cardiac reoperation and the clinical results. Fifty-seven consecutive cardiac reoperations involving resternotomy were performed between January 2006 and December 2015. ECC was established prior to median sternotomy in all patients. Two patients sustained injury to the right ventricle during sternotomy. Eleven patients sustained injury to the mediastinal structures during dissection (right atrium in 3; superior vena cava in 2; inferior vena cava in 3; left internal thoracic artery in 1; and saphenous vein graft in 2 patients). Longer ECC time and greater ...
Source: Nagoya Journal of Medical Science - Category: International Medicine & Public Health Tags: Nagoya J Med Sci Source Type: research
Conclusions: ICU-based end-of-life care resources do not appear to change mortality but are associated with increased hospice utilization. Given that this finding was not confirmed by the instrumental variable analysis, future studies should attempt to verify this finding, and identify specific resources or processes of care that impact the care of ICU patients at the end of life.
Source: Critical Care Medicine - Category: Emergency Medicine Tags: Clinical Investigations Source Type: research
AbstractBackgroundContemporary data on mitral valve (MV) surgery in patients with infective endocarditis (IE) are limited.MethodsThe National Inpatient Sample was queried to identify patients with IE who underwent MV surgery between 2003 and 2016. We assessed (a) temporal trends in the incidence of MV surgery for IE, (b) morbidity, mortality, and cost of MV repair vs replacement, and (c) predictors of in ÔÇÉhospital mortality.ResultsThe proportion of MV operations involving patients with IE increased from 5.4% in 2003 to 7.3%, and the proportion of MV repair among those undergoing surgery for IE increased from 15.2% to 25.0% (Ptrend 
Source: Journal of Cardiac Surgery - Category: Cardiovascular & Thoracic Surgery Authors: Tags: SURGICAL TECHNIQUE Source Type: research
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