What ’s On Your Mind? I Need Help: Identifying Social Media Resources Available to Caregivers of ALS Patients (S747)

Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disorder that causes muscle weakness, disability, and eventually death, with a median survival of 3-5 years and affecting all populations with a rise among Hispanics. ALS patients are mostly cared for by family caregivers (FCGs). FCGs often experience burden, high depression rates, psychological distress and impaired quality-of-life. Also, FCGs may not be able to leave their homes to access resources. Social media might be a way to accessing support, but little is known about quality and quantity of ALS FCGs ’ resources.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research