Effectiveness of Specialised Paediatric Palliative Care
Condition: Paediatric Palliative Care Intervention: Other: Specialised Peadiatric Palliative Care (SPPC) Sponsors: University Children's Hospital, Zurich; University of Basel; Cantonal Hospital of Aarau, Switzerland; University Children's Hospital Basel; University Hospital Inselspital, Berne Recruiting
Authors: Blake PG, Brown EA Abstract Person-centered care has become a dominant paradigm in modern health care. It needs to be applied to people with end-stage kidney disease considering the initiation of dialysis and to peritoneal dialysis (PD) prescription and care delivery. It is relevant to their decisions about goals of care, transplantation, palliative care, and discontinuation of dialysis. It is also relevant to decisions about how PD is delivered, including options such as incremental PD. Shared decision-making is the essence of this process and needs to become a standard principle of care. It requires enga...
Authors: Brown EA, Hurst H Abstract Peritoneal dialysis (PD) is only one component of care for older multimorbid, frail and/or palliative patients. Goals of care should be determined for all patients by shared decision-making at the start of during time on PD. Burden of PD should be minimized by individualizing the prescription by allowing for residual renal function and tailored to what is acceptable to the patient. PD facilities should develop the care pathways needed for this group of patients including integration with local geriatric, palliative care and social services. PMID: 32063211 [PubMed - as supplied by publisher]
This article considers what is known about the palliative care needs of hematologic malignancy patients, shows how the multidisciplinary palliative care team could improve their care, and explores how barriers to this relationship might be overcome. The evidence to support this review comes from review of recent, relevant papers known to the authors as well as PubMed searches of additional relevant articles over the past 3 years.Expert opinion: Further cultivating this relationship requires us to thoughtfully integrate the multidisciplinary palliative care team to respond to each patient's specific disease and needs, ...
[Independent (Kampala)] Kampala -The Palliative Care Association of Uganda -PCAU, has asked parliament to consider incorporating a provision on palliative care services in the proposed National Health Insurance Bill, 2019.
Conclusion: Both, the mTOR inhibitor everolimus as well as antiangiogenetic effects by the VEGFR inhibitor axitinib showed potential to prevent and retard formation of symptomatic spinal metastases. However, the therapeutic efficacy was only mild in this experimental model.
The EAPC White Paper addresses the issue of spiritual care education for all palliative care professionals. It is to guide health care professionals involved in teaching or training of palliative care and spiritual care; stakeholders, leaders and decision makers responsible for training and education; as well as national and local curricula development groups.
Key Information Summaries (KIS) were introduced throughout Scotland in 2013 so that anticipatory care plans written by general practitioners (GPs) could be routinely shared electronically and updated in real time, between GPs and providers of unscheduled and secondary care. We aimed to describe the current reach of anticipatory and palliative care, and to explore GPs'views on using KIS.
In this narrative medicine essay, a pediatric palliative oncologist meditates on the intersection of faith and medicine and of varying expressions of spirituality in the face of abject pain and suffering among her pediatric patients with cancer.
Abstract OBJECTIVE: Palliative care plays an essential role in enhancing the quality of life and quality of death for residents in long-term care homes (LTCHs). Access to palliative care specialists is one barrier to providing palliative care to LTCHs. This project focused on palliative telemedicine, specifically evaluating whether integration of early palliative care specialist consultation into an LTCH would be feasible through the implementation of videoconferencing during routine interdisciplinary care conferences. METHOD: This was a mixed-methods evaluation of a pilot program implementation over 6 months...