The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers

Little information is available regarding the burden of living with and managing epidermolysis bullosa, including the distinct challenges faced by patients with different disease types/subtypes.

Source: Orphanet Journal of Rare Diseases - January 3, 2020 Category: Internal Medicine Authors: Anna L. Bruckner, Michael Losow, Jayson Wisk, Nita Patel, Allen Reha, Hjalmar Lagast, Jamie Gault, Jayne Gershkowitz, Brett Kopelan, Michael Hund and Dedee F. Murrell Tags: Research Source Type: research