Evaluating the impact of information and support for people with nystagmus in the digital age: A patient and carer questionnaire study.

Conclusions: This study highlights a significant variation in the support and information received by people in the UK with nystagmus. It also supports the role of charities and increasingly, social media in the provision of patient information. The study also highlights the need for standardized guidelines for the management of patients with nystagmus, particularly with regard to support and information. PMID: 31876191 [PubMed - as supplied by publisher]

https://www.ncbi.nlm.nih.gov/pubmed/31876191?dopt=Abstract

Source: Current Eye Research - December 25, 2019 Category: Opthalmology Authors: Gummer SL, Evans M, Cygan A, Osborne D, Griffiths HJ, Lee H, Self JE Tags: Curr Eye Res Source Type: research