Prevalence of unmet palliative care needs in adults with cystic fibrosis

Cystic fibrosis (CF) is a complex, chronic disease in which many adults with CF report suffering from persistent physical and psychological concerns, such as dyspnea, fatigue, anxiety, and depression [1 –6]. These individuals also cope with immense, life-long treatment burden and are required to navigate decisions around complex and high-risk treatments from a young age [7]. These factors significantly impair quality of life (QoL) of individuals with CF [1–5,7]. Palliative care is an overall ap proach to care, and a clinical specialty, that has been shown in a recent meta-analysis to improve important patient-centered outcomes, such as QoL and symptom burden [8].
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Original Article Source Type: research