In Memoriam.

In Memoriam. J Learn Disabil. 2020 Jan/Feb;53(1):5 Authors: Gallimore R PMID: 31810433 [PubMed - in process]
Source: Journal of Learning Disabilities - Category: Disability Authors: Tags: J Learn Disabil Source Type: research

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Publication date: Available online 25 January 2020Source: Best Practice &Research Clinical RheumatologyAuthor(s): Ay┼če A. KüçükdeveciAbstractThe goals in the management of established rheumatoid arthritis (RA) are to control pain and disease activity, prevent further joint damage, and enhance functioning and quality of life. Despite the fact that aggressive and the early use of biological and nonbiological disease-modifying antirheumatic drugs have been associated with substantial gains in clinical, radiological, and disability outcomes, a considerable proportion of patients still report significant p...
Source: Best Practice and Research Clinical Rheumatology - Category: Rheumatology Source Type: research
ConclusionThis is the first study to assess attitudes and practices of pediatric neurologists and epileptologists regarding sexual and reproductive healthcare for adolescent and young adult WWE. Our findings suggest that there is a need for development of improved systems for sexual and reproductive healthcare delivery and comanagement for adolescent and young adult WWE. Providers identified many barriers and facilitators that might serve as the basis for interventions to improve care.
Source: Epilepsy and Behavior - Category: Neurology Source Type: research
Publication date: March 2020Source: Epilepsy &Behavior, Volume 104, Part AAuthor(s): Delphine Coste-Zeitoun, Mathieu Kuchenbuch, Daniela Pennaroli, Clémence Castaignède, Sylvia Napuri, Christine Satre, Jean-Luc Schaff, Sylvie Sukno, Marie Hélias, Nathalie de Grissac-Moriez, Georges Delattolas, Dominique Olive, Christine Bulteau, Guy Zeitoun, Anna KaminskaAbstractIntroductionThe reason why some children and adolescent with epilepsy (CAWE) still challenge the “inclusive” educative policy needs to be explored.Methods/patientsWe conducted a transversal study in French medical, social, and e...
Source: Epilepsy and Behavior - Category: Neurology Source Type: research
Conclusions and implicationsResults support a largely transdiagnostic approach to treating sleep in children with NDD, and will inform the development of BNBD for Children with Neurodevelopmental Disorders (BNBD-NDD).
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
ConclusionsAge intensifies disparities in self held athletic, physical and academic perceptions attributable to differences in gender and rDCD status, however, differences in these domains appear to be independent of children’s overall views of themselves.
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
ConclusionAbout two third of the patients had poor treatment outcome. Educational status and mean length of hospital stays were independent predictors of poor treatment out-comes. An emergency care setup capable of early patient evaluation, identification and management of stroke complications is crucial to overcome early stroke related mortality.
Source: Journal of Clinical Neuroscience - Category: Neuroscience Source Type: research
Depression is common in hospice and palliative care populations, with prevalence's ranging from 17% in the palliative care population and upwards of 40% in hospice patients. Depressive disorders such as major depression frequently go unrecognized and undertreated. Consequences of depressive illness include worsening of quality of life, creation of disability and added symptom burden. Limitations of currently available antidepressant therapies include delayed onset of efficacy and low remission rates after multiple courses of pharmacotherapy.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research
Recent years have seen increasing acceptance of physician assisted death (PAD) in the United States with there now being eight states and the District of Columbia that have some form of legal PAD. This growing acceptance, however, continues to be met with resistance from a number of groups based in part on differing views on religion, morality, authority, and concerns regarding disability rights. What are the sources of conflict around PAD? Much of the disagreement is grounded in true differences of opinion, but at least some of the conflict arises from misunderstandings and lack of agreement regarding definitions of terms.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research
Frailty is a commonly used term in healthcare to describe a subset of the elderly patient population but there remains debate on how to identify and treat this syndrome. Advanced care planning is a key factor in treating the frail patient with hopes of slowing the progression of debilitation, including functional decline, polypharmacy, increased disability, and vulnerability. In addition, collaboration across healthcare disciplines remains a vital aspect in caring for and enabling positive outcomes for the frail individual and promotion of quality of life.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research
Stroke remains a leading cause of long-term disability and burdened quality of life not only for stroke survivors with remaining disability (SSRDs) but also for the informal caregivers (ICGs) who care for them. Approximately 50% of SSRDs will require ICG hands-on support, precluding them from leaving home. With current technology, social media might be the only way for ICG to gain training/access support. What resources are available out there for ICGs of SSRDs?
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research
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